Expressed information needs of patients with osteoporosis and/or fragility fractures: a systematic review

Raybould, Grace; Babatunde, Opeyemi; Evans, Amy; Jordan, Joanne L.; Paskins, Zoë

doi:10.1007/s11657-018-0470-4

Cited by 49 publications

(64 citation statements)

References 42 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Understanding the patient's experience with the TM program in terms of barriers, facilitators, and needs in healthcare delivery will assist with future quality improvement initiatives, including the development of a selfmanagement program that is tailored to the unique needs of individuals with osteoporosis. Past research has indicated that programs that are derived from the patient perspective are associated with better outcomes [25]; future research could involve implementing and evaluating the program. Future research should evaluate health outcomes and performance indicators of participants in the OP TM program, comparing to those attending the clinic in person.…”

Section: Discussionmentioning

confidence: 99%

“…A systematic review [25] identified that people with osteoporosis want information about the nature of osteoporosis/ fracture risk, medication, self-management, and understanding the role of bone density test. In contrast to these results, our patients were less interested in learning about the nature of osteoporosis and medication, and more interested lifestyle factors and wellness strategies to cope with the emotional impact of the condition.…”

Section: Characteristicmentioning

confidence: 99%

See 1 more Smart Citation

Understanding patient experiences and challenges to osteoporosis care delivered virtually by telemedicine: a mixed methods study

et al. 2019

View full text Add to dashboard Cite

This study sought to understand patient experiences, benefits, and challenges to osteoporosis care delivered virtually by telemedicine. Telemedicine bridges the access gap to specialized osteoporosis care in remote areas. Improving coordination of investigations, access to allied health members, and future initiatives may improve osteoporosis-related morbidity and mortality in this population. Introduction There is limited research on the role of telemedicine (TM) in the management of osteoporosis (OP). We previously reported that OP patients assessed by TM had a higher prevalence of fragility fractures, co-morbidities, and need for allied health resources than those serviced by the outpatient clinic. The purpose of this study is to understand the experiences, benefits, and challenges associated with receiving OP care by TM from the patient perspective. Methods We adopted a convergent, mixed methods study design whereby both a quantitative component (mailed survey) and qualitative component (30-min telephone interviews) were conducted simultaneously. In addition to reporting survey data, thematic analysis was applied to interview data. Results Participants were comfortable with virtual technology and perceived that their quality of care by TM was comparable to in-person visits. Expressed benefits included the convenience of timely care close to home, reduced burden of travel and costs, and enhanced sense of confidence with being assessed by an osteoporosis specialist. Perceived barriers included poor follow-up with allied health professionals in the TM program (e.g., physiotherapist) and coordination of tests and investigations. Many participants indicated interest in an OP self-management program, with content focusing on diet and lifestyle factors. Conclusion The TM program bridges the access gap for those living with OP in underserviced and remote areas. However, we identified the need to improve the existing processes to better coordinate access to allied health team members and arrangements for investigations. Participants also expressed interest for a virtual osteoporosis self-management program.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Characteristicmentioning

confidence: 99%

Understanding patient experiences and challenges to osteoporosis care delivered virtually by telemedicine: a mixed methods study

et al. 2019

View full text Add to dashboard Cite

show abstract

“…(25) Finally, the 1-year mortality for hip-fracture patients ranges from 15% to 30% for community-dwelling residents (25,27,31) to 40% to 55% for long-term care facility residents. (33) To communicate riskrelated messages effectively, all health care professionals should provide consistent and sustained messaging throughout the care pathway, beginning at time of diagnosis and continuing repeatedly. (32) Thus, they are not likely to take appropriate steps to address their risk.…”

Section: Fundamental Recommendations and Rationalesmentioning

confidence: 99%

“…(32) Thus, they are not likely to take appropriate steps to address their risk. (33) To communicate riskrelated messages effectively, all health care professionals should provide consistent and sustained messaging throughout the care pathway, beginning at time of diagnosis and continuing repeatedly. (4,5) These messages also should be communicated to family/caregivers.…”

Section: Fundamental Recommendations and Rationalesmentioning

confidence: 99%

“…(93) Moreover, failure to meet patients' educational needs (eg, medication, self-management, the nature of osteoporosis) has been associated with poor treatment adherence, deterioration of the doctor-patient relationship, and important negative psychosocial consequences. (33) Explore and address any issues with treatment plan adherence that arise. (19) For example, patient adherence with oral bisphosphonates historically has been problematic.…”

Section: Recommendationmentioning

confidence: 99%

See 1 more Smart Citation

Secondary Fracture Prevention: Consensus Clinical Recommendations from a Multistakeholder Coalition

Conley

Adib²,

Adler

et al. 2019

Journal of Bone and Mineral Research

171

111

View full text Add to dashboard Cite

Osteoporosis‐related fractures are undertreated, due in part to misinformation about recommended approaches to patient care and discrepancies among treatment guidelines. To help bridge this gap and improve patient outcomes, the American Society for Bone and Mineral Research assembled a multistakeholder coalition to develop clinical recommendations for the optimal prevention of secondary fracture among people aged 65 years and older with a hip or vertebral fracture. The coalition developed 13 recommendations (7 primary and 6 secondary) strongly supported by the empirical literature. The coalition recommends increased communication with patients regarding fracture risk, mortality and morbidity outcomes, and fracture risk reduction. Risk assessment (including fall history) should occur at regular intervals with referral to physical and/or occupational therapy as appropriate. Oral, intravenous, and subcutaneous pharmacotherapies are efficacious and can reduce risk of future fracture. Patients need education, however, about the benefits and risks of both treatment and not receiving treatment. Oral bisphosphonates alendronate and risedronate are first‐line options and are generally well tolerated; otherwise, intravenous zoledronic acid and subcutaneous denosumab can be considered. Anabolic agents are expensive but may be beneficial for selected patients at high risk. Optimal duration of pharmacotherapy is unknown but because the risk for second fractures is highest in the early post‐fracture period, prompt treatment is recommended. Adequate dietary or supplemental vitamin D and calcium intake should be assured. Individuals being treated for osteoporosis should be reevaluated for fracture risk routinely, including via patient education about osteoporosis and fractures and monitoring for adverse treatment effects. Patients should be strongly encouraged to avoid tobacco, consume alcohol in moderation at most, and engage in regular exercise and fall prevention strategies. Finally, referral to endocrinologists or other osteoporosis specialists may be warranted for individuals who experience repeated fracture or bone loss and those with complicating comorbidities (eg, hyperparathyroidism, chronic kidney disease). © 2019 American Society for Bone and Mineral Research.

show abstract

The Challenges and Limitations of Osteoporosis Diagnosis

Miedany

2022

New Horizons in Osteoporosis Management

View full text Add to dashboard Cite

Expressed information needs of patients with osteoporosis and/or fragility fractures: a systematic review

Cited by 49 publications

References 42 publications

Understanding patient experiences and challenges to osteoporosis care delivered virtually by telemedicine: a mixed methods study

Understanding patient experiences and challenges to osteoporosis care delivered virtually by telemedicine: a mixed methods study

Secondary Fracture Prevention: Consensus Clinical Recommendations from a Multistakeholder Coalition

The Challenges and Limitations of Osteoporosis Diagnosis

Contact Info

Product

Resources

About