Extending specialist palliative care to people with heart failure: Semantic, historical and practical limitations to policy guidelines

Chattoo, Sangeeta; Atkin, Karl

doi:10.1016/j.socscimed.2009.02.025

Cited by 34 publications

(32 citation statements)

References 26 publications

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“…Five studies used a combination of qualitative and quantitative research methods. 57,74,86,88,90 Half of the studies were published since 2007, [55][56][57][58][59][61][62][63]67,68,[70][71][72][74][75][76]81,87,88 and the majority (n = 33, 86.8%) of research was published since 2000, 15,[55][56][57][58][59][61][62][63][64][65][66][67][68][69][70][71][72][74][75][76][77][78][79][80][81]…”

Section: A Review Of the Empirical Literaturementioning

confidence: 99%

“…In a role study in palliative care -and despite policy guidelines to share care -covert and overt tensions between services were noted, particularly in the practice of referrals. 63 Personal commitment and local organisational goals appeared to highlight dilemmas posed by uncertainty of prognosis, particularly in patients with heart failure. In these ways, boundary-spanning managers and newly appointed link workers who were perceived to have less clinical knowledge had less ability to influence others in the vertical dimension, even if supported by policy initiatives, newly funded posts or intentional clinical or managerial placement.…”

Section: Formal and Informal Role Negotiationmentioning

confidence: 99%

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Facilitating knowledge exchange between health-care sectors, organisations and professions: a longitudinal mixed-methods study of boundary-spanning processes and their impact on health-care quality

Nasir

Robert

Fischer

et al. 2013

Health Services and Delivery Research

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Facilitating knowledge exchange between health-care sectors, organisations and professions: a longitudinal mixed-methods study of boundary-spanning processes and their impact on health-care quality. Health Serv Deliv Res 2013;1(7). Health Services and Delivery ResearchISSN 2050-4349 (Print) ISSN 2050-4357 (Online) This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HS&DR archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hsdr. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Services and Delivery Research journalReports are published in Health Services and Delivery Research (HS&DR) if (1) they have resulted from work for the HS&DR programme or programmes which preceded the HS&DR programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors. HS&DR programmeThe Health Services and Delivery Research (HS&DR) programme, part of the National Institute for Health Research (NIHR), was established to fund a broad range of research. It combines the strengths and contributions of two previous NIHR research programmes: the Health Services Research (HSR) programme and the Service Delivery and Organisation (SDO) programme, which were merged in January 2012.The HS&DR programme aims to produce rigorous and relevant evidence on the quality, access and organisation of health services including costs and outcomes, as well as research on implementation. The programme will enhance the strategic focus on research that matters to the NHS and is keen to support ambitious evaluative research to improve health services.For more information about the HS&DR programme please visit the website: www.netscc.ac.uk/hsdr/ This reportThe research reported in this issue of the journal was funded by the HS&DR programme or one of its proceeding programmes as project number 09/2001/25. The contractual start date was in May 2010. The final report began editorial review in August 2012 and was accepted for publication in January 2013. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HS&DR editors and production house have tried to ensure the accuracy of the authors' report and would like to thank the reviewers for their constructive comments on the final report document. However, they do not accept liability for damages or losses arising from material published in this report.This report presents independent research funded by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, NETSCC, the HS&DR programme or the Department of Health. If there are verbatim quotations included in this publication the vie...

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Section: A Review Of the Empirical Literaturementioning

confidence: 99%

Section: Formal and Informal Role Negotiationmentioning

confidence: 99%

Facilitating knowledge exchange between health-care sectors, organisations and professions: a longitudinal mixed-methods study of boundary-spanning processes and their impact on health-care quality

Nasir

Robert

Fischer

et al. 2013

Health Services and Delivery Research

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“…At the onset of the hospice movement, cancer was the disease on which its infrastructures were (albeit largely implicitly) calibrated, and to a considerable extent this seems still to be the case (Chattoo & Atkin, 2009;Murray, Sheikh, & Lynn, 2008). Cancer's relative prognosticability (compared to for example COPD, heart failure or 'simply' old age) has modelled the institutionalisation of hospice care, and this includes determining an end of time for people eligible for hospice care -but in ways that differ between countries.…”

Section: Introductionmentioning

confidence: 99%

Deadlines: doing times in (Dutch) hospice

Pasveer

2018

Mortality

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For a person to enter a Dutch hospice as resident, a clearly articulated deadline is needed: a life expectancy of three months or less. This paper argues that this institutional timeframe of a singular, clocktimed period of more or less linearly approaching death (the end of time), affords life to unfold in hospice as a relatively clockless multitude of temporal orderings enacted by staff and residents (the time of the end). Based on a period of ethnographic fieldwork in hospices and focusgroup interviews with hospice staff, I analyse how temporal orderings manifest and intersect in different ways. The quality of these intersections presence end-of-life normativities in ways that may be instructive when designing and reflecting on end-of-life care.

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“…In comparison with other chronic diseases, this disease causes more destruction to individual'sfunction in social, family, and marital relationships and reduces professional performance (Johansson, 2006;Chattoo & Atkin, 2009). …”

Section: Introductionmentioning

confidence: 99%

Investigating the Effect of Education on Self-Care among Chronic Heart Failure Patients Admitted to Shahid Mostafa Khomeini Hospital of Ilam

Qavam¹,

Sahebi²,

Shohani³

et al. 2016

GJHS

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Background: Congestive heart failure is a common cause of hospitalization. If patients can adhere to self-care behaviors, the progression of the disease can be prevented. The aim of this study is to evaluate the effect of education on self-care in chronic heart failure patients admitted to Shahid Mostafa Khomeini Hospital of Ilam in 2016.Methods: This study is of intervention typeand 40 patient's sufferingfrom heart failure were selected. Research tools include a standard indicator questionnaire for measuring self-care by patients. The questionnaire contains 22 questions about their certainty ofself-care. Four point Likert scale was used for scoring and SPSS V.19 was used for data analysis. Results:The sample consisted of 16 men (40%) and 24 women (60%) most of which were married (75%). The statistical correlation between the total score of self-care behavior before and after education was significant (P VALUE = 0.003), which shows that the education conducted on the patients was effective and caused more scores in all areas. Conclusion:Self-care behavior can be attained and spread through education. It is recommended that the patients suffering are given enough information about their diet and activities after their discharge from hospital.

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Extending specialist palliative care to people with heart failure: Semantic, historical and practical limitations to policy guidelines

Cited by 34 publications

References 26 publications

Facilitating knowledge exchange between health-care sectors, organisations and professions: a longitudinal mixed-methods study of boundary-spanning processes and their impact on health-care quality

Facilitating knowledge exchange between health-care sectors, organisations and professions: a longitudinal mixed-methods study of boundary-spanning processes and their impact on health-care quality

Deadlines: doing times in (Dutch) hospice

Investigating the Effect of Education on Self-Care among Chronic Heart Failure Patients Admitted to Shahid Mostafa Khomeini Hospital of Ilam

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