Eye-trackers, digital-libraries, and print-referencing: A single case study in CDKL5

Benson-Goldberg, Sofia; Erickson, Karen A.

doi:10.1016/j.ridd.2021.103913

Cited by 7 publications

(2 citation statements)

References 37 publications

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“…Individuals with CDD face difficulties such as communication difficulties and cortical visual impairment. Interventions, such as visual attention tracker, may assist in informing the wider team whether educational interventions are providing benefit ( 70 ).…”

Section: Resultsmentioning

confidence: 99%

International Consensus Recommendations for the Assessment and Management of Individuals With CDKL5 Deficiency Disorder

et al. 2022

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CDKL5 Deficiency Disorder (CDD) is a rare, X-linked dominant condition that causes a developmental and epileptic encephalopathy (DEE). The incidence is between ~ 1:40,000 and 1:60,000 live births. Pathogenic variants in CDKL5 lead to seizures from infancy and severe neurodevelopmental delay. During infancy and childhood, individuals with CDD suffer impairments affecting cognitive, motor, visual, sleep, gastrointestinal and other functions. Here we present the recommendations of international healthcare professionals, experienced in CDD management, to address the multisystem and holistic needs of these individuals. Using a Delphi method, an anonymous survey was administered electronically to an international and multidisciplinary panel of expert clinicians and researchers. To provide summary recommendations, consensus was set, a priori, as >70% agreement for responses. In the absence of large, population-based studies to provide definitive evidence for treatment, we propose recommendations for clinical management, influenced by this proposed threshold for consensus. We believe these recommendations will help standardize, guide and improve the medical care received by individuals with CDD.

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Section: Resultsmentioning

confidence: 99%

International Consensus Recommendations for the Assessment and Management of Individuals With CDKL5 Deficiency Disorder

et al. 2022

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“…The content users require should be available in the digital library design in order to make it more appealing and attract more users (Benson-Goldberg & Erickson, 2021;Xie, Babu, Joo, & Fuller, 2015). This is important for the system's usefulness to be more effective.…”

Section: Discussionmentioning

confidence: 99%

Digital library: Lecturers' perceptions of facilitating learning resources in the industrial era 4.0

Aliyyah,

Rasmitadila,

Fauziah

et al. 2024

JEELR

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This research explores lecturers' perceptions of digital libraries as a learning resource for the industrial era 4.0 that can be used anytime and anywhere to solve the low interest in developing lecturers because of the difficulty of accessing references to conventional libraries, which require lecturers to visit the library building. Data was collected through semi-structured interviews with 15 lecturers, and data analysis was performed using thematic analysis. The analysis results found four main themes: benefits, challenges, recommendations, and positive and negative impacts of digital libraries. The research concluded that the existence of a digital library can make it easy for lecturers to browse the references needed quickly, easily, and flexibly just by entering the library's website page. This research contributes to solving the problem of lecturers in Indonesia over the limited learning resources in conventional libraries that are difficult to access online and require particular visiting time because they have to come directly during library operating hours. Therefore, support from the government, university leaders, and the wider community is needed to develop a digital library system to facilitate lecturers in Indonesia having adequate learning resources for the industrial era 4.0.

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A systematic literature review for the use of eye-tracking in special education

Donmez

2022

Educ Inf Technol

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Eye-trackers, digital-libraries, and print-referencing: A single case study in CDKL5

Cited by 7 publications

References 37 publications

International Consensus Recommendations for the Assessment and Management of Individuals With CDKL5 Deficiency Disorder

International Consensus Recommendations for the Assessment and Management of Individuals With CDKL5 Deficiency Disorder

Digital library: Lecturers' perceptions of facilitating learning resources in the industrial era 4.0

A systematic literature review for the use of eye-tracking in special education

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