Facilitators and barriers to participation in physical activities in children and adolescents living with cerebral palsy: a scoping review

Abid, Manel; Cherni, Yosra; Batcho, Charles Sèbiyo; Traverse, Élodie; Lavoie, Marie Denise; Mercier, Catherine

doi:10.1080/09638288.2022.2150327

Cited by 8 publications

(3 citation statements)

References 109 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In our study, the parents expressed how dependent they felt on others, on an accessible environment, and on the access to tailored assistive devices. Our findings are in concordance with the findings of Abid et al ( 29 ) that personal and environmental factors influencing physical activity behaviors among youths living with CP are complex and that they interact with each other. As a consequence, a person-based approach for rehabilitation interventions is needed ( 29 ).…”

Section: Discussionsupporting

confidence: 93%

“…Our findings are in concordance with the findings of Abid et al ( 29 ) that personal and environmental factors influencing physical activity behaviors among youths living with CP are complex and that they interact with each other. As a consequence, a person-based approach for rehabilitation interventions is needed ( 29 ). Interaction that is perceived to increase a sense of dependence runs the risk of undermining the potential for autonomy and empowerment.…”

Section: Discussionsupporting

confidence: 93%

See 1 more Smart Citation

“It is something that gives us hope”: Lived experience among parents to children with cerebral palsy who are non-ambulant of the phenomenon physical activity, with or without the use of a novel dynamic standing device

Lauruschkus

Holmberg

Tornberg

2023

Front. Rehabil. Sci.

View full text Add to dashboard Cite

IntroductionRegular physical activity confers health benefits for all. Parents commonly want their children to be physically active, and want to be physically active themselves, but children with cerebral palsy (CP) who are non-ambulant face challenges, and they need support to be physically active. Dynamic standing in the novel motorized assistive device Innowalk has positive effects in children who are non-ambulant—it gives them a chance to be physically active. The aim of this study was to explore the lived experience of physical activity of parents themselves and for their children with cerebral palsy who are non-ambulant.MethodsA descriptive inductive design with a hermeneutic phenomenological approach was used for the analysis of interviews with 11 parents of children with CP who are non-ambulant who participated in a study of exercise effects of dynamic standing.ResultsThe parents experienced physical activity for their children as being important but difficult, especially for their child, as described in Theme 1: “Being aware of health benefits while struggling with family time.” The children were perceived as being dependent on other people, the environment, and equipment for participating in physical activity, referring to Theme 2: “Being dependent.” The opportunity for their children to become physically active on a regular basis through an assistive device gave the parents hope for a better life, which formed Theme 3: “Getting hope in a challenging life situation.”ConclusionPhysical activity for children with CP who are non-ambulant is possible through an elaborate network of social relations and environmental conditions. Limiting the degree of dependence and containing the negative consequences of high a degree of dependence are vital in the support of physical activity. Relations, support, and assistive devices that strengthen empowerment and autonomy should be prioritized, and if this works, the experience of physical activity can be positive, giving families hope.

show abstract

Section: Discussionsupporting

confidence: 93%

Section: Discussionsupporting

confidence: 93%

“It is something that gives us hope”: Lived experience among parents to children with cerebral palsy who are non-ambulant of the phenomenon physical activity, with or without the use of a novel dynamic standing device

Lauruschkus

Holmberg

Tornberg

2023

Front. Rehabil. Sci.

View full text Add to dashboard Cite

show abstract

“…As these tools describe activity, they considerably steered the ICF linking process towards the ICF AP component. Of course, the high number of studies focusing on activities could be due to the fact that, as people with CP age, they tend to experience functional decline and other complications such as pain [ 51 ], and these aspects could impact their activity levels [ 52 ], which makes the understanding of their activity capacities or performance relevant.…”

Section: Discussionmentioning

confidence: 99%

Looking beyond Body Structure and Function: ICF Foci and Who Is Being Assessed in Research about Adolescents and Young Adults with Cerebral Palsy—A Scoping Review

Santana,

Rosenbaum,

van der Kemp

et al. 2024

IJERPH

View full text Add to dashboard Cite

Purpose: The purpose of this study is to summarize the ICF foci, looking beyond body structures and function, and to analyze who has been assessed in research about adolescents and young adults (AYAs) with CP in the phase of transition to adulthood. Method: Medline, EMBASE, PsycINFO, and CINAHL databases were searched using terms related to cerebral palsy, adolescents/young adults, health development, participation, and independence. Studies including youth with CP (13–30 years old) published in English from 2014 to 2021 were considered. The methods of assessment reported in the included studies were used to identify the ICF foci and who was assessed. Results: In this study, 86 studies were reviewed. The main ICF foci are activity and participation (51% of the studies), personal factors (23%), ICF not covered (14%), ICF not defined (9%), with environmental factors being the least focused ICF component (3%). Most studies assessed AYAs directly (49% of studies). Conclusions: Activity- and participation-related constructs are the leading research focus of studies, and more attention is needed concerning environmental factors. AYAs are the main source of information, and the perspectives of other key figures are also being valued. To bridge the gap between child and adult health care, a broader view of health development and approaches to explore AYA developmental issues must be taken.

show abstract

Prevalence of meeting 24-hour movement guidelines and its associations with health indicators in people with disabilities: A systematic review and meta-analysis

Huang,

Li,

et al. 2024

Disability and Health Journal

View full text Add to dashboard Cite

Facilitators and barriers to participation in physical activities in children and adolescents living with cerebral palsy: a scoping review

Cited by 8 publications

References 109 publications

“It is something that gives us hope”: Lived experience among parents to children with cerebral palsy who are non-ambulant of the phenomenon physical activity, with or without the use of a novel dynamic standing device

“It is something that gives us hope”: Lived experience among parents to children with cerebral palsy who are non-ambulant of the phenomenon physical activity, with or without the use of a novel dynamic standing device

Looking beyond Body Structure and Function: ICF Foci and Who Is Being Assessed in Research about Adolescents and Young Adults with Cerebral Palsy—A Scoping Review

Prevalence of meeting 24-hour movement guidelines and its associations with health indicators in people with disabilities: A systematic review and meta-analysis

Contact Info

Product

Resources

About