Factors affecting participation in physical activities in Saudi children with Down syndrome: mothers’ perspectives

Alwhaibi, Reem; Aldugahishem, Hayfa M.

doi:10.1080/09638288.2018.1433241

Cited by 20 publications

(82 citation statements)

References 76 publications

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“…Saudi Arabian mothers of children with intellectual disabilities experienced higher levels of stress compared to fathers, as they often work as the primary caregivers for their children (Aldosari & Pufpaff, 2014 ). Furthermore, there are a limited number of specialized centres for children with DS in the KSA (Alwhaibi & Aldugahishem, 2019 ). To the best of the authors’ knowledge, there is only one study by Alwhaibi and Aldugahishem ( 2019 ) that explored maternal perceptions’ regarding physical activity in children with DS in the KSA.…”

Section: Introductionmentioning

confidence: 99%

“…Furthermore, there are a limited number of specialized centres for children with DS in the KSA (Alwhaibi & Aldugahishem, 2019 ). To the best of the authors’ knowledge, there is only one study by Alwhaibi and Aldugahishem ( 2019 ) that explored maternal perceptions’ regarding physical activity in children with DS in the KSA. However, it was limited to one city, Riyadh, and included only mothers of elementary school-aged children.…”

Section: Introductionmentioning

confidence: 99%

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Physical activity among children with down syndrome: maternal perception

Alghamdi

Banakhar

Badr

et al. 2021

International Journal of Qualitative Studies on Health and Well

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Purpose : Studies have shown that children with Down syndrome (DS) are at high risk for physical inactivity and obesity. This study aimed to explore mother’s perceptions of the physical activity levels, needs, benefits, facilitators, and barriers in their children with DS. Methods : For this descriptive qualitative study, 17 participants were recruited through centres for children with DS in the Kingdom of Saudi Arabia. Semi-structured interviews were conducted with mothers who were able speak Arabic or English and have a child with a confirmed diagnosis of Trisomy 21 (DS) between ages three and 17 years. Thematic analysis was used to analyse the study data. Results : Data analysis revealed the following themes regarding children with DS: 1) their physical functioning level; 2) daily physical activity at home; 3) physical activity at school; 4) physical activity benefits; 5) physical activity facilitators; and 6) physical activities barriers. Conclusion : Findings from this study can help health professionals gain insight on the physical activity facilitators and barriers for children with DS in order to design tailored intervention programmes to improve the support and the engagement of children with DS into regular physical activities.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Physical activity among children with down syndrome: maternal perception

Alghamdi

Banakhar

Badr

et al. 2021

International Journal of Qualitative Studies on Health and Well

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“…Meanwhile, meeting the needs of daily activities involves teaching basic habits, including eating, bathing and dressing, which is often conducted by the mother. In this study, sick children were taken to alternative medicine for massage, and they also attended school like others [23].…”

Section: Discussionmentioning

confidence: 99%

“…In Indonesia, the possible obstacles include the limited knowledge, attitudes and negative views of the social environment, limitations in therapy, the incidence of less stable physical and mental conditions in mothers [9] and rejection by individuals within the residence, as well as some family members [10]. Alwhaibi and Aldugahishem identified some limitations with the presence of intellectual and communication disorders in children, which affects participation with others, busy mothers, rejection by children from the surrounding environment and lack of specifically designed facilities for those with disabilities, subsequently serving as a barrier to physical activity [11].…”

Section: Introductionmentioning

confidence: 99%

Experiences of mothers of children with Down syndrome

Suza¹,

Napitupulu²,

Hariati³

2020

fmpcr

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Background. Down syndrome is a genetically occurring chromosomal abnormality, characterized by mild to moderate intellectual impairment, difficulties in verbal and non-verbal communication, as well as disruption in social interactions. In addition, mothers of affected children possess various emotional experiences and must have strategies to provide optimal care in the face some physical and social challenges. Objectives. The aim of this study was to describe the experiences of mothers of children with Down syndrome. Material and methods. This was a qualitative research with a phenomenological approach, and the participants consisted of 10 mothers selected through purposive sampling. In addition, the study was conducted in Binjai, Indonesia, from April to May 2018. Data collection was performed using in-depth interviews with voice recording. Content analysis was adopted using the Collaizi method, and the principle of trustworthiness was subsequently applied. Results. A total of 5 themes were recognized, including 1) having an emotional experience, 2) accepting the child's situation, 3) meeting the needs of children, 4) experiencing obstacles in caring for children and 5) expectation of the mother. Conclusions. The study, based on the experiences of mothers of children with Down syndrome, provides important information for families, health workers and the health service system to enhance understanding of the condition, as well as the appropriate handling techniques. Furthermore, it is also necessary to further investigate the experiences of positive emotions in affected mothers.

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“…Esto podría llamarse metamorfosis, la cual cumple cinco funciones fundamentales: promueve el crecimiento del desarrollo, la compensación, cultivan la unidad social, la sociedad y profundizan la comprensión (Goethals, Marrinan, Spyrou & Stein, 2019). Elementos que se relacionan directamente con los objetivos a lograr en la actividad física para este tipo de poblaciones (Alwhaibi & Aldugahishem, 2019). Además, se discuten las fuentes internas y externas de transformación, con énfasis en la importancia de la tutoría para producir un crecimiento metamórfico, elementos a tener en cuenta en la presente investigación.…”

Section: Introductionunclassified

Metamorfosis educativa de la actividad física para personas con síndrome de Down (Educational metamorphosis of physical activity for people with Down syndrome)

Navarro

Pérez

Pereira

et al. 2020

Retos

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El sistema educativo colombiano después de los 14 años de edad se desentiende de las personas con Síndrome de Down, las cuales son propensas a desarrollar enfermedades crónicas no transmisibles por los altos grados de sedentarismos. Un ejemplo es el municipio de Sincelejo, Sucre, Colombia, donde son excluidos de las clases de educación física. La Fundación para el Síndrome de Down (FUNDISDOWN), ubicada en dicho municipio, encargada de realizar actividades diarias, tiene un bajo componente de actividad física. Este estudio tiene como objetivo elaborar un sistema educativo de actividad física agua y tierra que transforme la condición física de estos jóvenes. Los métodos modelación, enfoque de sistema, triangulación de información y el análisis de contenido de la Batería Eurofit adaptada y aplicada en conjunto con estudiantes universitarios del programa de Ciencias del Deporte, permitieron analizar el estado actual de la condición física y elaborar el sistema. La muestra intencional fue de 21 jóvenes con síndrome de Down de ambos sexos. El diagnóstico de la situación actual de la condición física tiene valores deficientes. El sistema educativo de actividad física se crea como alternativa de solución a las deficiencias encontradas. Se hacen aportes desde la teoría educativa de la actividad física para el trabajo con estos jóvenes, se define el estado actual de la condición física y se potencia un sistema educativo como resultado del diagnóstico que se valida desde su factibilidad, aplicabilidad y potencialidad práctica donde después de una aplicación de tres meses se mejoran algunos indicadores físicos y educativos. Abstract: People with Down syndrome are prone to develop chronic noncommunicable diseases due to high degrees of sedentary lifestyle. The Colombian educational system after 14 years ignores them. In the municipality of Sincelejo, Sucre, Colombia, they are excluded from physical education classes. The Foundation for Down Syndrome (FUNDISDOWN) is responsible for carrying out daily activities that have a low component of physical activity. The objective of this study is to develop an educational system of water and land physical activity that transforms the physical condition of these young people. The methods modeling, system approach, triangulation of information and content analysis in conjunction with the Eurofit Battery, allowed to analyze the current state of physical condition and develop the system. Descriptive inferential statistics was used with the SPSS 24.0 software for the analysis of the results. The intentional sample was of 30 young people with Down syndrome of both sexes. The diagnosis of the current situation of the physical condition has deficient values. The educational system of physical activity is created as an alternative solution to the deficiencies found. Contributions are made from the educational theory of physical activity to work with these young people, the current state of physical condition is defined and an educational system is strengthened as a result of the diagnosis that is validated from its feasibility, applicability and practical potential where after from a three-month application some physical and educational indicators will be improved.

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Factors affecting participation in physical activities in Saudi children with Down syndrome: mothers’ perspectives

Cited by 20 publications

References 76 publications

Physical activity among children with down syndrome: maternal perception

Physical activity among children with down syndrome: maternal perception

Experiences of mothers of children with Down syndrome

Metamorfosis educativa de la actividad física para personas con síndrome de Down (Educational metamorphosis of physical activity for people with Down syndrome)

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