Factors affecting the level of burden of caregivers of children with type 1 diabetes

Kobos, Ewa; Imiela, Jacek

doi:10.1016/j.apnr.2014.09.008

Cited by 54 publications

(81 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Our findings showed that the mean caregiving burden score was 1.98, which is close to the moderate level. In the study of Rubira et al, and Cobos et al, the mean caregiving burden was obtained 2.02 (13) and 2.1 (4), respectively using this scale. The maximum and the minimum caregiving burdens were seen in general strain and emotional involvement sub-scales, respectively.…”

Section: Discussionmentioning

confidence: 83%

“…General strain covers physical and emotional disturbances induced by caregiving activities, caregiving problems and required time for providing caregiving services. Cobos et al reported the highest caregiving burden in general strain, while in the study of Rubira et al, it was seen in isolation (4, 13). The comparison of different diseases revealed that cerebral palsy accounts for the most burden in total scale and in general strain, isolation and disappointment sub-scales.…”

Section: Discussionmentioning

confidence: 89%

“…In this study, the mothers of children with chronic diseases were generally playing the caregiver role where female caregivers experienced higher caregiving burden in general strain sub-scale than male ones. According to other studies, as the main and key caregivers, mothers accept higher responsibilities than other members of family and bear higher caregiving burden than fathers (4). Our findings showed that the mean caregiving burden score was 1.98, which is close to the moderate level.…”

Section: Discussionmentioning

confidence: 99%

“…In addition, the mean score of caregiving burden in each sub-scale was derived by calculating the mean score of items associated with that sub-scale. Finally, caregiving burden was classified into three levels: low (1–1.99), moderate (2–2.99) and severe (3–4). Farajzadeh et al have developed the Farsi version of this scale, and its content and face validities have been assessed (12).…”

Section: Methodsmentioning

confidence: 99%

“…However, prognosis, life expectancy and quality of life are ambiguous in such children (3). According to research, the families of children with chronic diseases have trouble in coping with their disease (4). Generally, caregivers from within the family bear important and multidimensional responsibilities over time to manage a chronic disease (1).…”

Section: Introductionmentioning

confidence: 99%

See 4 more Smart Citations

Caregiving burden of children with chronic diseases

et al. 2017

View full text Add to dashboard Cite

BackgroundThe care demands of children with chronic diseases can affect caregivers’ health by imposing caregiving burden to them. The health status of caregivers plays a vital role in the quality of care provided to such children and in their quality of life.ObjectiveTo determine caregiving burden in caregivers and to identify relevant influential factors.MethodsIn this cross-sectional study, a total number of 249 caregivers of children with chronic diseases who referred to hospitalization and ambulatory departments of Bandar Abbas, Iran in 2016 were selected using convenience sampling method. The main caregivers who were older than 18 years and provided care to a sick child for at least three months consecutively were included. Caregiving burden was measured using the Caregiver Burden Scale. Data was analyzed SPSS 16 using descriptive statistics, Spearman’s correlation coefficient and Mann-Whitney U test.ResultsMean score of caregiving burden was 1.98 which was close to moderate level. The highest caregiving burden was observed in general strain dimension (2.35), and cerebral palsy imposed the maximum burden to caregivers (2.24). Correlation coefficient revealed that perceived caregiving burden was in connection with children’s and caregivers’ age, duration of disease and caregiving, child’s level of disability, number of family members and income level (p<0.05). Mann-Whitney U test showed that female caregivers, villagers, and caregivers dealing with more than one patient experienced higher burden (p<0.05).ConclusionDifferent variables can increase caregiving burden. Therefore, planning for holistic and family-centered interventions to decrease caregiving burden is necessary for health care providers.

show abstract

Section: Discussionmentioning

confidence: 83%

Section: Discussionmentioning

confidence: 89%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Caregiving burden of children with chronic diseases

et al. 2017

View full text Add to dashboard Cite

show abstract

Home Gastrostomy Feeding Education Program: Effects on the Caregiving Burden, Knowledge, and Anxiety Level of Mothers

Pars

Soyer

2019

J Parenter Enteral Nutr

View full text Add to dashboard Cite

BackgroundIt is highly important for healthcare professionals to give discharge education to families to increase their knowledge of gastrostomy care and complications and to inform them about the correct behaviors. The purpose of the present descriptive pretraining and posttraining evaluation study was to investigate the effects of a standardized, evidence‐based discharge education program prepared for children with gastrostomy tubes on the caregivers’ knowledge, anxiety levels, and caregiving burden.MethodsThe primary caregivers of children with a gastrostomy tube (n = 30) were interviewed on the first day of the education program and the first week and third month after the program, and a pretest/posttest, the Zarit Caregiver Burden Scale and the State‐Trait Anxiety Inventory were applied. Complications were determined by assessing the number of unplanned clinic visits and complications in the study group compared with the historical control group (historical comparison; n = 30).ResultsThe study revealed that the knowledge levels of mothers increased in the first week and third month after training, and their caregiving burden and state‐trait anxiety levels significantly decreased. Although some complications arising from the enteral nutrition process were observed, it was found that the complications were fewer, and the difference was statistically significant compared with the group that did not receive the standardized, evidence‐based discharge education program.ConclusionThe standardized education program should be recommended because caregivers managed the home care process more successfully, and the stress, anxiety, and difficulties experienced during homecare decreased.

show abstract

Parent Quality of Life scale in Type 1 Diabetes: a scale development and validation study

Yaz

ÇINAR

2023

Eur J Pediatr

View full text Add to dashboard Cite

Factors affecting the level of burden of caregivers of children with type 1 diabetes

Cited by 54 publications

References 27 publications

Caregiving burden of children with chronic diseases

Caregiving burden of children with chronic diseases

Home Gastrostomy Feeding Education Program: Effects on the Caregiving Burden, Knowledge, and Anxiety Level of Mothers

Parent Quality of Life scale in Type 1 Diabetes: a scale development and validation study

Contact Info

Product

Resources

About