Factors Associated with Self-Reported Mammography Use for Women With and Women Without a Disability

Courtney-Long, Elizabeth A.; Armour, Brian S.; Frammartino, Brunella; Miller, Jacqueline W.

doi:10.1089/jwh.2010.2609

Cited by 47 publications

(42 citation statements)

References 34 publications

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“…However, the CHIS and NHIS are the only population-based data that bridge the continuum from breast cancer screening to cancer diagnosis. The CHIS and NHIS both ask the same question on self-reported mammography screening and these data have been published routinely as population-level data on screening mammography both among small subsamples as well as national data reported by the CDC (Bleyer & Welch, 2012; Bostean, Crespi, & McCarthy, 2013; CDC, 2012; Courtney-Long, Armour, Frammartino, & Miller, 2011; Eberth, Huber, & Rene, 2010; Ponce et al, 2012; Ryu, Crespi, & Maxwell, 2013). Studies comparing the validity of self-reported mammography with medical records report low incongruences (Bancej, Maxwell, & Snider, 2004) and find that women tend to overreport mammography use, especially racial and ethnic minorities (Ferrante et al, 2008; McPhee et al, 2002; Rauscher et al 2008; Zapka et al, 1996).…”

Section: Discussionmentioning

confidence: 99%

Non-normal Screening Mammography Results, Lumpectomies, and Breast Cancer Reported by California Women, 2001–2009

Irvin

Breen

Meissner

et al. 2015

Women's Health Issues

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Background Although screening mammography may contribute to decreases in breast cancer mortality in a population, it may also increase the risk of false positives, anxiety, and unnecessary and costly medical procedures in individuals. We report trends in self-reported non-normal screening mammography results, lumpectomies, and breast cancer in a representative sample of California women. Methods Data were obtained from the 2001, 2005, and 2009 cross-sectional California Health Interview Surveys (CHIS) and weighted to the California population. CHIS employed a multistage sampling design to administer telephone surveys in 6 languages. Our study sample was restricted to women 40 years and older who reported a screening mammogram in the past 2 years. Sample sizes were 13,974 in 2001, 12,069 in 2005, and 15,552 in 2009. Women reporting non-normal results were asked whether they had an operation to remove the lump and, if so, whether the lump was confirmed as malignant. Findings Between 2001 and 2009, the percent of California women who reported having been diagnosed with breast cancer was relatively stable. For each of the three age groups studied, the percentage of non-normal mammography results increased and the percentages of lumpectomies decreased and, for every woman reporting a diagnosis of breast cancer, three women reported a lumpectomy that turned out not to be cancer. This ratio was greater for younger women and less for older women. Conclusions Despite relatively constant rates of breast cancer diagnosis from 2001 to 2009, the percentage of non-normal mammography results increased and lumpectomies declined.

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Section: Discussionmentioning

confidence: 99%

Non-normal Screening Mammography Results, Lumpectomies, and Breast Cancer Reported by California Women, 2001–2009

Irvin

Breen

Meissner

et al. 2015

Women's Health Issues

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“…However, similar rises have not been observed for women with ID (Center for Disease Control, 2011;Sullivan et al, 2004). Barriers to mammography have been noted for women with disabilities of all kinds (Courtney-Long, Armour, Frammartino, & Miller, 2011), and women with ID have additional unique, disability-specific barriers (Barr, Giannotti, Van Hoof, Mongoven, & Curry, 2008;Wilkinson, Deis Bowen & Bokhour, 2011). Women with ID who live with their families are least likely, out of all women with ID, to receive regular mammography (Wilkinson, Lauer, Fruend, & Rosen, 2011).…”

Section: Introductionmentioning

confidence: 89%

More Than Just a Mammogram: Breast Cancer Screening Perspectives of Relatives of Women With Intellectual Disability

Greenwood¹,

Dreyfus²,

Wilkinson³

2014

Intellectual and Developmental Disabilities

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Women with intellectual disability (ID) have similar rates of breast cancer as the general public, but higher breast cancer mortality and lower rates of regular screening mammography. Screening rates are lowest among women who live with their families. Though women with ID often make decisions in partnership with their relatives, we lack research related to family member perspectives on mammography. We conducted a qualitative study of family members of women with ID, with an interview guide focused on health care decision making and experiences, and breast cancer screening barriers, facilitators, and beliefs as related to their loved ones. Sixteen family members underwent semistructured interviews. Important themes included mammography as a reference point for other social and cultural concerns, such as their loved one's sexuality or what it means to be an adult woman; fear of having to make hard decisions were cancer to be diagnosed acting as a barrier to screening; a focus on quality of life; and desire for quality health care for their loved one, though quality care did not always equate to regular cancer screening. Adults with ID are valued members of their families, and their relatives are invested in their well-being. However, families fear the potentially complicated decisions associated with a cancer diagnosis and may choose to forgo screening due to misinformation and a focus on quality of life. Effective interventions to address disparities in mammography should focus on adults with ID and their families together, and incorporate the family context.

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“…They encounter problems in relation to physical space in the consultation rooms, diffi culties in getting undressed and transferring to the examination table, and fi nding an appropriate position for the procedure. Furthermore, equipment is not always adaptable to the physical conditions of these patients (9) . Diffi culty in accessing medical centres is also related to location, considering that the best quality services are concentrated in urban cities (10)(11) .…”

Section: Institutional Barriers To Gynaecological Assistance -Specifimentioning

confidence: 99%

“…This characteristic leads to the assumption that prevention of complications and the promotion of health must be stimulated by the healthcare team, which must notify the population on the importance of early detection of problems that can be asymptomatic. Another factor that discourages these women are the costs of being tested when they do not have a health plan or when the health plan does not off er full coverage in relation to gynaecological screening, which confi gures another fi nancial barrier (9,12) . Another obstacle is related to the healthcare professionals who provide gynaecological care to women with physical disabilities.…”

Section: Individual Barriers To Full Gynaecological Care -General Conmentioning

confidence: 99%

Contextual analysis of gynaecological care provided to women with physical disability

Carvalho

Brito

Medeiros

2014

Rev. Gaúcha Enferm.

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This is a theoretical-reflective study that aimed to analyze the contexts associated with gynaecological care for women with physical disabilities. Discussion consisted of contextual analysis according to Hinds, Chaves and Cypress, leading to four interconnected layers: immediate, specific, general and metacontext. Analysis showed that gynaecological assistance to clients with physical disabilities is influenced by attitudinal, structural, financial and informational barriers. Other influential issues are social beliefs and stigmas and the persistence of a biomedical model, which is hegemonic in this type of assistance. Therefore, gynaecological care must be valued based on the holistic paradigm offered by a transdisciplinary team in order to provide quality care to women with physical disabilities.

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Factors Associated with Self-Reported Mammography Use for Women With and Women Without a Disability

Abstract: Disparities in obtaining a mammogram at recommended screening intervals persist for women with disabilities. This demonstrates the need for continued health promotion and prevention activities directed toward women with a disability to improve their accessibility to obtaining a mammogram.

Cited by 47 publications

References 34 publications

Non-normal Screening Mammography Results, Lumpectomies, and Breast Cancer Reported by California Women, 2001–2009

Non-normal Screening Mammography Results, Lumpectomies, and Breast Cancer Reported by California Women, 2001–2009

More Than Just a Mammogram: Breast Cancer Screening Perspectives of Relatives of Women With Intellectual Disability

Contextual analysis of gynaecological care provided to women with physical disability

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