Factors influencing health promoting activities of mothers caring for ventilator-assisted children

Kuster, Patricia A; Badr, Lina Kurdahi; Chang, Betty L.; Wuerker, Anne K.; Benjamin, A. E.

doi:10.1016/j.pedn.2004.05.009

Cited by 48 publications

(53 citation statements)

References 31 publications

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“…Inasmuch as these caregivers spend too little time on healthpromoting activities, it is not surprising that they have higher rates of morbidity. 11 Some can be directly attributed to stress, such as migraine headaches or decreased vitality, whereas others, such as cancer and heart disease, have a more tenuous link. 9,13 Studies on immune function done in the post-partum period have found that 4-months post-partum mothers of VLBW infants have decreased lymphocyte proliferation in vitro compared with mothers of term infants, and that these findings were independent of anxiety or depression.…”

Section: Discussionmentioning

confidence: 99%

“…The functional status of the child, the caregiving load and family function had a direct impact on the physical health of the parental caregivers. [10][11][12][13] The increased exposure to health-care professionals may benefit these parents, providing them with opportunities to discuss their ailments and allowing for earlier diagnosis.…”

Section: Discussionmentioning

confidence: 99%

“…The functional status of the child and improvement in maternal coping minimized the negative impact. 11 Similarly, an Arkansas study found that parental caregivers of children with spina bifida slept less and reported poorer overall well-being when compared with a group of families with children without spina bifida, findings that correlated directly with the level of the spinal lesion. 12 Finally, a group at Massachusetts General Hospital, in a study of mothers of technology-dependent children, found that these mothers had increased complaints of pain and lower vitality when compared with a group of mothers of recently hospitalized but otherwise healthy children.…”

Section: Physical Healthmentioning

confidence: 97%

“…Kuster et al 11 assessed the impact on the health-promoting behaviors of mothers of ventilator-dependent children. The selfselected group reported high scores on substance abuse and low scores on nutrition, exercise, relaxation and general health promotion.…”

Section: Physical Healthmentioning

confidence: 99%

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Biopsychosocial risks of parental care for high-risk neonates: implications for evidence-based parental counseling

Placencia

McCullough

2011

J Perinatol

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Objective: Provide an evidence base for counseling parents of high-risk neonates about the biopsychosocial impact of providing long-term care.Study Design: A review of the effects of long-term care on families of high-risk neonates. Our search was limited to 1993-2010. We used the terms 'long-term care,' 'family,' 'neonate' and 'technology dependence.' Results were organized based on Engel's biopsychosocial model.Result: PhysicalFparental caregivers reported more health problems, had fewer health-promoting behaviors and lower vitality.PsychologicalFparental caregivers had higher rates of post-traumatic stress disorder and depressive symptoms, although some improved with time. Siblings reported greater stress and depression. SocialFparental caregivers achieved fewer years of education, higher unemployment and lower incomes. Couples reported greater family strain. The effect on divorce was mixed. Siblings reported disruption in their academic and social lives. Conclusion:Providing long-term care involves biopsychosocial risks. Counseling of parents should identify them and advocate strategies for prevention.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Physical Healthmentioning

confidence: 97%

Section: Physical Healthmentioning

confidence: 99%

See 2 more Smart Citations

Biopsychosocial risks of parental care for high-risk neonates: implications for evidence-based parental counseling

Placencia

McCullough

2011

J Perinatol

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“…As intensas e constantes demandas associadas ao cuidado de uma criança com necessidades especiais podem afetar adversamente a saúde física e mental dos cuidadores familiares (107)(108)(109) , especialmente entre as mães que diminuem, drasticamente, suas atividades de promoção da saúde pessoal (109,110) .…”

Section: Capítulo I -Introduçãounclassified

Definindo o projeto de vida familiar: a família na transição para o cuidado domiciliar da criança com necessidades especiais

Silveira¹

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“Line care governs our entire world”: Understanding the experience of caregivers of children with intestinal failure receiving long‐term parenteral nutrition

Belza

Patterson

Ghent

et al. 2022

J Parenter Enteral Nutr

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Background: Children with intestinal failure (IF) receiving long-term parenteral nutrition (PN) require significant medical care, including high-risk procedures such as accessing a central venous catheter, with the majority provided by family caregivers in the home. This study sought to understand the experiences of family caregivers.Methods: This was a qualitative study of family caregivers of children with IF.Participants were recruited from an intestinal rehabilitation program to participate in virtual focus groups, which were recorded and transcribed. Thematic analysis was used to capture and describe experiences.Results: Thirteen caregivers providing care to 11 children participated in three virtual focus groups held between May and June 2020. Data analysis revealed five primary themes: (1) caregiving as a 24/7 commitment, (2) facing constant risk of death, (3) chronic illness creates difficult feelings and emotions, (4) effects on all aspects of family life, and (5) adapting and functioning as a family. The findings of this study pair well with the biopsychosocial model highlighting the need for multifaceted assessment and supports. Conclusion:The impact of caring for a child with IF receiving long-term PN is significant for caregivers and their families and has implications for all aspects of their lives. A better understanding of the impact on caregivers and their coping strategies lays the groundwork for the optimization of quality of life for caregivers and their family.

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Factors influencing health promoting activities of mothers caring for ventilator-assisted children

Cited by 48 publications

References 31 publications

Biopsychosocial risks of parental care for high-risk neonates: implications for evidence-based parental counseling

Biopsychosocial risks of parental care for high-risk neonates: implications for evidence-based parental counseling

Definindo o projeto de vida familiar: a família na transição para o cuidado domiciliar da criança com necessidades especiais

“Line care governs our entire world”: Understanding the experience of caregivers of children with intestinal failure receiving long‐term parenteral nutrition

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