Factors Influencing Parent Reports on Quality of Life for Children with Asthma

Annett, Robert D.; Bender, Bruce G.; DuHamel, Thomas R.; Lapidus, Jodi

doi:10.1081/jas-120019030

Cited by 70 publications

(74 citation statements)

References 30 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…10,12,[14][15][16][17][18][19][20][21][22] Stress experienced by children or their parents may also have indirect effects on asthma by causing health-compromising behaviors and comorbidities that adversely affect disease management. [23][24][25][26][27][28][29][30][31][32][33][34] Caregiver stress, negative life events, problematic family relationships, parenting difficulties, critical attitudes of one's mother and violence exposure have been related to wheeze, asthma onset, and/or adverse asthma outcomes among infants and youths. 14,15,[20][21][22][29][30][31][32][35][36][37][38][39][40][41] The housing and health relationship has long been acknowledged, not surprising given that water, warmth, air, shelter, and safety are fundamental human needs.…”

Section: Introductionmentioning

confidence: 99%

Stress and the City: Housing Stressors are Associated with Respiratory Health among Low Socioeconomic Status Chicago Children

et al. 2010

View full text Add to dashboard Cite

Asthma disproportionately affects non-whites in urban areas and those of low socioeconomic status, yet asthma's social patterning is not well-explained by known risk factors. We hypothesized that disadvantaged urban populations experience acute and chronic housing stressors which produce psychological stress and impact health through biological and behavioral pathways. We examined eight outcomes: six child respiratory outcomes as well as parent and child general health, using data from 682 low-income, Chicago parents of diagnosed and undiagnosed asthmatic children. We created a continuous exposure, representing material, social and emotional dimensions of housing stressors, weighted by their parent-reported difficulty. We compared the 75th to the 25th quartile of exposure in adjusted binomial and negative binomial regression models. Higher risks and rates of poor health were associated with higher housing stressors for six of eight outcomes. The risk difference (RD) for poor/fair general health was larger for children [RD=6.28 (95% CI 1.22, 11.35)] than for parents [RD=3.88 (95% CI −1.87, 9.63)]. The incidence rate difference (IRD) for exercise intolerance was nearly one extra day per 2 weeks for the higher exposure group [IRD= 0.88 (95% CI 0.41, 1.35)]; nearly one-third extra day per 2 weeks for waking at night [IRD=0.32 (95% CI 0.01, 0.63)]; and nearly one-third extra day per 6 months for unplanned medical visits [IRD=0.30 (95% CI 0.059, 0.54)]. Results contribute to the conceptualization of urban stress as a "social pollutant" and to the hypothesized role of stress in health disparities. Interventions to improve asthma outcomes must address individuals' reactions to stress while we seek structural solutions to residential stressors and health inequities.

show abstract

Section: Introductionmentioning

confidence: 99%

Stress and the City: Housing Stressors are Associated with Respiratory Health among Low Socioeconomic Status Chicago Children

et al. 2010

View full text Add to dashboard Cite

show abstract

“…[5][6][7][8][9] Given that HRQoL in children and adolescents is the object of our study, there is a wide range of possibilities to assess it because proxy questionnaires can be applied to children and adolescents who have limiting conditions and also to those with reading comprehension d i f f i c u l t i e s o r w h o h a v e a l o w socioeconomic level. In this regard, parents are fundamental to assess their children's HRQoL 10 and make critical contributions to treatment-related decisions that will be implemented by physicians and specialists, 11,12 and to detect changes over time in their children's HRQoL. 13 However, the assessment made by a proxy may never replace the child/patient who could perform it correctly because they provide a more accurate assessment of psychosocial domains.…”

Section: Introductionmentioning

confidence: 99%

Parent-child discrepancy in the assessment of health- related quality of life using the EQ-5D-Y questionnaire

2017

View full text Add to dashboard Cite

Introduction. The assessment of health-related quality of life (HRQoL) serves to detect changes over time in patients' health status and allows to do a cost-effectiveness analysis of treatments. When children with special health features cannot perform a self-assessment, it is possible to assess their HRQoL through their parents or caregivers. To date, the discrepancy in the assessment of HRQoL using the EQ-5D-Y questionnaire among children with cerebral palsy (CP) and their parents has not been analyzed. The objective of this study was to analyze the level of agreement in the HRQoL assessment using the EQ-5D-Y questionnaire and its proxy version among children with CP and their parents or caregivers. Population and methods. Children and adolescents with CP, and their parents, from a special education school in the region of Extremadura (Spain) participated in the study. The EQ-5D-Y questionnaire was used for children and the EQ-5D-Y proxy version, for parents. Interviews were conducted in the first quarter of 2015. The level of agreement in the responses was analyzed using the Cohen's kappa coefficient for the five domains of the EQ-5D-Y and the intraclass correlation coefficient for the visual analogue scale. Results. Sixty-two children with CP and mild and/or moderate functional capacity impairment, and their parents, participated in the study. The level of agreement was poor in the HRQoL assessment between children and parents in all the questionnaire domains (<0.20) and fair or poor (<0.60) in the visual analogue scale. Conclusions. A high level of parent-child disagreement was observed in the HRQoL assessment in the population with CP using the EQ-5D-Y questionnaire.

show abstract

“…In studies of youth with epilepsy and asthma, child-parent agreement has been reported to increase with the child's age. 42,43 Future secondary analysis of data collected with this project will include the parental reports of health status and QOL. …”

mentioning

confidence: 99%

Self-Reported Health Status and Quality of Life in Youth With Cerebral Palsy and Typically Developing Youth

Bjornson

Belza

Kartin

et al. 2008

Archives of Physical Medicine and Rehabilitation

View full text Add to dashboard Cite

Objective-To describe self-reported health status and quality of life (QOL) of ambulatory youths with cerebral palsy (CP) compared with sex-and age-matched typically developing youth (TDY). Design-Prospective cross-sectional cohort comparison. Setting-Community-based.Participants-A convenience sample of 81 youth with CP (age range, 10-13y) with Gross Motor Function Classification System (GMFCS) levels I through III and 30 TDY participated. They were recruited from 2 regional children's hospitals and 1 regional military medical center. Interventions-Not applicable.Main Outcome Measures-Participants completed the Child Health Questionnaire-Child Form (CHQ-CF87) for health status and the Youth Quality of Life for QOL.Results-Youth with CP reported significantly lower health status than age-and sex-matched TDY in the following CHQ-CF87 subscales: role/social behavioral physical, bodily pain, physical function, and general health (CP mean rank, TDY mean rank,). There were significant differences across GMFCS levels. There were no significant differences in selfreported QOL.Conclusions-Self-reported health status, but not QOL, appears sensitive to the functional health issues experienced by ambulatory youth with CP. Pain management and psychosocial support may be indicated for them. KeywordsCerebral palsy; Health status; Quality of life; Rehabilitation The types of cerebral palsy (CP) compatible with independent ambulation, hemiplegia, and diplegia, comprise 48% to 79% of all cases. 1 All ambulatory persons with CP experience limitations in walking and other physical activities. It is generally believed that people who experience such limitations have less than optimal quality of life (QOL); below normal health-related QOL (HRQOL) in youth with CP has been reported by parents and other "Quality of life," as defined by the WHO, is a broader construct than "health status" because it includes aspects of the social and physical environment that may or may not be affected by health or a treatment. 6 HRQOL is often applied as an outcome measure that focuses on the aspects of life and activity that are influenced by health conditions or services. Patrick and Chiang 9 suggested that "health status" and "health-related quality of life" are most useful in the context of assessment of health services and treatment efficacy, while "quality of life" measures should be used to evaluate environments and/or issues external to the context of health care.The literature on health and/or QOL in youth with CP has been primarily based on parental report and historically has combined the constructs of "health" with "QOL" in reporting CHQ data as HRQOL. Self-reported life experiences for youth with CP based on the current WHO definition of QOL, separate from health status or HRQOL, have not been documented. In this crosssectional study, our aim was to investigate health status unique from QOL of youth with CP (appendix 1) compared with an age-and sex-matched group of typically developing youth (TDY). This comparison group controls fo...

show abstract

Factors Influencing Parent Reports on Quality of Life for Children with Asthma

Cited by 70 publications

References 30 publications

Stress and the City: Housing Stressors are Associated with Respiratory Health among Low Socioeconomic Status Chicago Children

Stress and the City: Housing Stressors are Associated with Respiratory Health among Low Socioeconomic Status Chicago Children

Parent-child discrepancy in the assessment of health- related quality of life using the EQ-5D-Y questionnaire

Self-Reported Health Status and Quality of Life in Youth With Cerebral Palsy and Typically Developing Youth

Contact Info

Product

Resources

About