Factors Related to Agreement Between Child and Caregiver Report of Child Functioning With Chronic Pain

Birnie, Kathryn A.; Richardson, Patricia A.; Rajagopalan, Adithi; Bhandari, Rashmi

doi:10.1097/ajp.0000000000000794

Cited by 27 publications

(21 citation statements)

References 65 publications

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“…Finally, parent-proxy reports were collected for children <13 years of age and the consensus between parent-proxy and child-self reports of pain is unclear. Among children with chronic pain, agreement has been noted as poor to good, with parents tending to report worse symptoms than children’s self-reports (Birnie et al, 2020). Nevertheless, the current study adds to the current literature by beginning to characterize the prevalence, patterns and factors associated with pain among survivors of childhood cancer using longitudinal data and a large sample size.…”

Section: Discussionmentioning

confidence: 99%

The pain of survival: Prevalence, patterns, and predictors of pain in survivors of childhood cancer.

et al. 2021

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Objective: Survivors of childhood cancer experience late effects as a result of their cancer treatment. Evidence for the prevalence of pain as a late effect has been equivocal. This study aimed to describe the prevalence and patterns of pain and biospsychosocial variables that may be related to pain in this population. Method: Survivors of childhood cancer (n = 299; 52.5% male; median age = 16. 1[4.6-32.6] years; years off therapy = 9.1[2.0-23.7]) were included. Survivors completed a health assessment questionnaire as part of their long-term survivor clinic appointment (median = 3.0 appointments, range = 1.0-7.0) annually or biannually between 2014 and 2017 (Time 1-Time 4). Prevalence of pain was examined and latent class analysis (LCA) was used to identify patterns of pain based on longitudinal reports of pain. Binary logistic regression examined biopsychosocial variables at Time 1 (T1) associated with class membership. Results: Forty-seven percent of survivors reported pain during at least one clinic visit. Headaches were the most prevalent type of pain (26.4%). Survivors of Wilms' Tumor and Ewing's Sarcoma reported the highest prevalence of pain (51.5% and 50.0%, respectively). LCA revealed two clinically relevant profiles: "infrequent or no pain" (74.3%) and "persistent pain" (25.7%). Logistic regression showed that female sex (odds ratio, OR = 2.69, 95% confidence interval, CI [.99, 7.31]), depressive symptomatology at T1 (OR = 2.27, 95% CI [1.31, 3.94]), and drinking to intoxication at T1 (OR = 3.07, 95% CI [1.03, 9.15]), were related to persistent pain. Conclusion: Pain is prevalent among survivors of childhood cancer. Future research should characterize the experience of pain in this population so interventions may be developed. Assessment of pain during regular long-term follow-up appointments is warranted.

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Section: Discussionmentioning

confidence: 99%

The pain of survival: Prevalence, patterns, and predictors of pain in survivors of childhood cancer.

et al. 2021

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“…One clinical pediatric chronic pain registry is the Pediatric Collaborative Health Outcomes Registry (Peds-CHOIR) at Stanford University [22]. Peds-CHOIR is an opensource clinical registry with flexible web-based interface and graphical capabilities to inform point of care decisions and generate patient-oriented research [23][24][25][26][27][28][29]. Peds-CHOIR incorporates classical testing theory-based measures and item-response theory measures administered via computer adaptive testing, including PROMIS [21].…”

Section: Clinical Health Registriesmentioning

confidence: 99%

Evaluating Telehealth Implementation in the Context of Pediatric Chronic Pain Treatment during COVID-19

Richardson

Parker

Chavez³

et al. 2021

Children

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Telehealth has emerged as a promising healthcare delivery modality due to its ability to ameliorate traditional access-level barriers to treatment. In response to the onset of the novel coronavirus (COVID-19) pandemic, multidisciplinary pain clinics either rapidly built telehealth infrastructure from the ground up or ramped up existing services. As the use of telehealth increases, it is critical to develop data collection frameworks that guide implementation. This applied review provides a theoretically-based approach to capitalize on existing data sources and collect novel data to inform virtually delivered care in the context of pediatric pain care. Reviewed multisource data are (1) healthcare administrative data; (2) electronic chart review; (3) clinical health registries; and (4) stakeholder feedback. Preliminary telehealth data from an interdisciplinary pediatric chronic pain management clinic (PPMC) serving youth ages 8–17 years are presented to illustrate how relevant implementation outcomes can be extracted from multisource data. Multiple implementation outcomes were assessed, including telehealth adoption rates, patient clinical symptoms, and mixed-method patient-report telehealth satisfaction. This manuscript provides an applied roadmap to leverage existing data sources and incorporate stakeholder feedback to guide the implementation of telehealth in pediatric chronic pain settings through and beyond COVID-19. Strengths and limitations of the modeled data collection approach are discussed within the broader context of implementation science.

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“…Beyond the limitations related to generalization of the findings, it is important to recognize that the level of daily child pain intensity was reported by the parent, rather than the child, thereby potentially introducing a reporting bias and preventing us from inferring causal effects. Previous evidence indeed highlights discrepancies between parent and child reports on the child's functioning, particularly when parents endorse high levels of catastrophic thinking (Birnie et al, 2020). Specifically, heightened levels of parental catastrophic thoughts have been found to be related to increased perception of child's pain intensity and disability (Birnie et al, 2016(Birnie et al, , 2020.…”

Section: Limitationsmentioning

confidence: 99%

“…Previous evidence indeed highlights discrepancies between parent and child reports on the child's functioning, particularly when parents endorse high levels of catastrophic thinking (Birnie et al, 2020). Specifically, heightened levels of parental catastrophic thoughts have been found to be related to increased perception of child's pain intensity and disability (Birnie et al, 2016(Birnie et al, , 2020. While our findings align with a study utilizing child report (e.g., Neville et al, 2020), further research is needed to disentangle this complex interrelation between parental perceived pain intensity and catastrophic thinking.…”

Section: Limitationsmentioning

confidence: 99%

Parental Catastrophizing and Goal Pursuit in the Context of Child Chronic Pain: A Daily Diary Study

et al. 2021

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Background: Despite daily variability in children's chronic pain experiences, little is known about how parents' emotions and goals toward their child's pain are influenced by these daily changes. This diary study examined how daily child pain intensity (as perceived by parents) moderates the associations between parental catastrophic thoughts about child pain on the one hand, and daily parental distress and parents' goals with regard to their child's pain (pain control vs. activity engagement) on the other hand.Method: Participants were 25 parents of 20 different children (N = 18; 90% girls). Children, aged 8–14 years (M = 9.5, SD = 2.09), experienced either chronic headache or functional abdominal pain with an average pain duration of 22.5 months (SD = 24.5 months). Daily parental responses (i.e., perceived child pain intensity, distress and goal endorsement) were collected through a 3-week daily diary (resulting in 413 valid diary reports). Parents completed the Pain Catastrophizing Scale for Parents prior to starting the diary (PCS-P general) and a daily measure (PCS-P daily) included in the diary. To account for the interdependence of the data, the data were analyzed using multilevel modeling.Results: Perceived daily child pain intensity moderated the impact of parental general and daily catastrophic thoughts on parents' daily distress. Only for parents experiencing low general catastrophic thoughts an increase in distress was observed on days when they perceived their child's pain intensity as high. For all parents, high levels of perceived child pain intensity were related to more distress on days where parents reported high levels of catastrophic thinking (i.e., PCS-P daily). Perceived daily child pain intensity also moderated the impact of parental general catastrophic thinking on parents' daily endorsement of goals. Parents with high levels of general catastrophic thinking reported a lower focus on child pain control on days when child pain intensity was perceived to be low. Parents with low general catastrophic thinking reported lower endorsement of the activity engagement goal on days where the child's pain intensity was perceived to be low.Conclusion: These findings highlight the complexity of daily fluctuations in parental distress and goals regarding their child's pain. Clinical implications and future directions are critically assessed.

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Factors Related to Agreement Between Child and Caregiver Report of Child Functioning With Chronic Pain

Cited by 27 publications

References 65 publications

The pain of survival: Prevalence, patterns, and predictors of pain in survivors of childhood cancer.

The pain of survival: Prevalence, patterns, and predictors of pain in survivors of childhood cancer.

Evaluating Telehealth Implementation in the Context of Pediatric Chronic Pain Treatment during COVID-19

Parental Catastrophizing and Goal Pursuit in the Context of Child Chronic Pain: A Daily Diary Study

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