Facts first, then reaction—Expectant fathers' experiences of an ultrasound screening identifying soft markers

Åhman, Annika; Labas, P; Sarkadi, Anna

doi:10.1016/j.midw.2011.07.008

Cited by 25 publications

(29 citation statements)

References 33 publications

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“…Participants stated that their reactions might not have been as strong if they had been aware of the possibilities of such findings prior to the examination. (Ahman et al 2012;Ahman et al 2010;Green et al 2004;Larsson et al 2009). A review of 288 published articles (Green et al 2004) reported that the information parents receive about screening methods for chromosomal abnormalities are not sufficient to enable them to make an informed decision.…”

Section: Discussionmentioning

confidence: 99%

Swedish University Students’ Opinion Regarding Information About Soft Markers

Roshanai

Labas

Nordin

et al. 2015

Journal of Genetic Counseling

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The aim of this study was to investigate the opinions of Swedish university students about information regarding soft markers, when observed at second trimester ultrasound screening. A cross-sectional survey, where 85 Swedish university students completed a study specific questionnaire containing eleven hypothetical scenarios, involving various parameters (disease/syndromes/malformations with different characteristics), and location of the markers. Almost all participants indicated that they would wish to be informed, prior to the ultrasound examination, about the assessment and significance of soft markers. However, the number of respondents who requested information about a potential actual finding was considerably less. Several participants wanted to be informed about detected markers associated to serious conditions but not when the marker indicated an increased risk for a treatable disease. Also, the specific location of the marker was of importance to the participants. The majority of respondents wished to be informed about the soft markers if they were observed in the heart or the brain of the foetus, compared to if they were located in the intestine or the skeleton. The students' opinion, in this study, implicate the importance of pre-examination information to enable expectant parents to make informed choice regarding the second trimester ultrasound screening as well as on reciving information of actual findings.

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Section: Discussionmentioning

confidence: 99%

Swedish University Students’ Opinion Regarding Information About Soft Markers

Roshanai

Labas

Nordin

et al. 2015

Journal of Genetic Counseling

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“…In addition, they reduced passive decision making and improved client–practitioner communication . Decision aids can be used as a component of informed choice about fetal screening …”

Section: Implications For Practicementioning

confidence: 99%

“…[28][29][30] Most women and partners view the ultrasound as an important social event and are not emotionally prepared for abnormal findings. [31][32][33] When abnormalities of unclear significance are detected, there are no well-researched algorithms for clinical management, leaving providers and parents without clear information. 5,7 Several small studies of similar samples of women and couples found that most did not feel prepared for the possibility of abnormal ultrasound results and were displeased with the presentation of the findings.…”

Section: Emotional Effect Of Intracardiac Echogenic Focus Detectionmentioning

confidence: 99%

“…40 Decision aids can be used as a component of informed choice about fetal screening. 31 Women's partners should be more involved in the decision-making process, and midwife and women's counseling preferences differ somewhat. 7,35,36,41 Two studies of women's and partner's preferences in counseling found that midwives may need to shift the focus away from the distribution of information and materials, which can be perceived of as advice, to an exploration of women's and partner's views and wishes through open dialogue.…”

Section: Decision Aidsmentioning

confidence: 99%

See 1 more Smart Citation

Isolated Intracardiac Echogenic Focus on Routine Ultrasound: Implications for Practice

Murphy¹,

Phillippi²

2015

J Midwife Womens Health

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Ultrasound is widely used as a screening tool for fetal anomalies. An intracardiac echogenic focus (ICEF) is associated with fetal aneuploidy, particularly trisomy 21, when found with other minor abnormalities known as soft markers. However, when found in isolation, intracardiac echogenic foci are morphologic variations with little or no pathologic significance for the fetus. Ambiguity about the significance of ICEF and other soft markers and the lack of preparation prior to ultrasound can result in unnecessary worry for women and their partners. A variety of tools exist that providers can use to help pregnant women and their partners make informed decisions about ultrasound and fetal screening.

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“…Ahman et al [23] report on a small (17 participants) study in which Swedish men were questioned about their reactions to the disclosure of 'soft markers' on ultrasound. Ahman et al [23] report on a small (17 participants) study in which Swedish men were questioned about their reactions to the disclosure of 'soft markers' on ultrasound.…”

Section: The Father's Perspectivementioning

confidence: 99%

Supporting patients after disclosure of abnormal first trimester screening results

Fisher¹

2012

Current Opinion in Obstetrics &Amp; Gynecology

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With the shift in timing of screening programmes, there has been an emphasis in the literature on concerns about the provision of pretest information and counselling rather than what women find beneficial when dealing with results. The emotional impact of worrying news will always be significant and the ensuing decisions complex. The challenge for providers is to have a flexibility of approach that enables women and couples to be supported to understand the possible clinical implications of a screening result and what this might mean to them in the context of their individual lives.

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Facts first, then reaction—Expectant fathers' experiences of an ultrasound screening identifying soft markers

Cited by 25 publications

References 33 publications

Swedish University Students’ Opinion Regarding Information About Soft Markers

Swedish University Students’ Opinion Regarding Information About Soft Markers

Isolated Intracardiac Echogenic Focus on Routine Ultrasound: Implications for Practice

Supporting patients after disclosure of abnormal first trimester screening results

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