‘Falling through gaps’: primary care patients’ accounts of breakdowns in experienced continuity of care

Tarrant, Carolyn; Windridge, Kate C.; Baker, Richard; Freeman, George; Boulton, Mary

doi:10.1093/fampra/cmu077

Cited by 52 publications

(58 citation statements)

References 28 publications

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“…This part of the population is increasingly in urgent and lifelong need of frequent access to several points of the healthcare network, of being in touch with different professional categories and benefiting from continuous promotion and prevention actions. This setting requires a robust PHC that can coordinate users' therapeutic course and facilitate the timely provision of health services and actions at the right place 14,15 .…”

Section: Introductionmentioning

confidence: 99%

Atenção primária à saúde e coordenação do cuidado nas regiões de saúde: perspectiva de gestores e usuários

Bousquat

Giovanella

Campos

et al. 2017

Ciênc. saúde coletiva

102

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Section: Introductionmentioning

confidence: 99%

Atenção primária à saúde e coordenação do cuidado nas regiões de saúde: perspectiva de gestores e usuários

Bousquat

Giovanella

Campos

et al. 2017

Ciênc. saúde coletiva

102

View full text Add to dashboard Cite

show abstract

“…To receive advice at the right time instead of getting support "too late" was said to have a positive effect on the management of their daily life as well as their future. Tarrent, Windridge, Baker, Freeman, and Boulton (2015) describe the gap or lack of continuity in care as a common phenomenon that implies experiences of being rejected and distressed. Additionally, Gulliford, Naithani, and Myfanwy (2006) stressed that continuity in care as crucial if the goal is to focus on patients own views, and thereby secure quality and patient satisfaction, and this is a result that corresponds with the findings of our study on how women with osteoporosis describe their needs.…”

Section: Discussionmentioning

confidence: 99%

Experiences of striving to maintain daily life among women with osteoporosis

Nilsson

Lindberg

Juuso

et al. 2019

International Journal of Qualitative Studies on Health and Well

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In order to describe how women with osteoporosis strive to maintain daily life we interviewed 11 women using a reflective lifeworld approach based on phenomenological analysis. Osteoporosis is a major public health concern in the Western world, and is predominant among women. Our findings indicated that meanings of striving to maintain daily life imply a belief in oneself and one's own capabilities. The women expressly speak out for themselves as a way of finding reconciliation without giving in to the illness. Women with osteoporosis expect to gain support early in the course of their illness. They require advice on how to manage the disease as well as support for striving to maintain daily living. Therefore, it is crucial that the women not only are given information about the disease. Equally important is to establish continuity in healthcare encounters, and that health care offers support founded in the women's lived experiences with focus on their capacities.

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“…For clinicians, this can impede clinical decision making and workflow (Roland & Paddison, 2013). Most importantly for the patient, this can result in a disjointed care experience, feeling of "falling through the gaps" (Tarrant, Windridge, Baker, Freeman, & Boulton, 2015) and the need for a considerable effort to personally manage their overall care which may be beyond the capabilities of those more vulnerable on the grounds of poor health and/or limited health literacy (Haggerty, 2012).…”

Section: Introductionmentioning

confidence: 99%

Integrated care in cancer: What is it, how is it used and where are the gaps? A textual narrative literature synthesis

2017

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Integrated care is an underpinning concept of contemporary health care policy proffered as a strategy to overcome the fragmentations in care encountered by people with complex care needs (Shaw et al. [2011] What is Integrated Care? An Overview of Integrated Care in the NHS). Cancer patients have potential to benefit from such policy, often having needs that extend beyond cancer. This paper seeks to understand how the concept of integrated care is used in the cancer literature. A search of leading databases was conducted for original research relating to integrated care or an integration intervention aiming to improve outcomes of cancer patients, and analysed using textual narrative synthesis. 38 papers were included, each with a focus on improving cancer-specific aspects of care enhancing the capabilities of the cancer multidisciplinary team. Of the eight studies involving integration between the cancer service and other care providers, all focused on utilising the external provider to deliver aspects of cancer care or placed them in a passive role, as survey participant, a recipient of cancer-related clinical information or as the comparator "usual care" arm. Within the cancer literature, integration is predominantly used to describe initiatives to improve cancer-related aspects of care. Less attention is given to integration initiatives that enhance coordination across levels of the healthcare system or service providers.

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‘Falling through gaps’: primary care patients’ accounts of breakdowns in experienced continuity of care

Abstract: Background

Cited by 52 publications

References 28 publications

Atenção primária à saúde e coordenação do cuidado nas regiões de saúde: perspectiva de gestores e usuários

Atenção primária à saúde e coordenação do cuidado nas regiões de saúde: perspectiva de gestores e usuários

Experiences of striving to maintain daily life among women with osteoporosis

Integrated care in cancer: What is it, how is it used and where are the gaps? A textual narrative literature synthesis

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