Falling upward with Parkinson’s disease

Buetow, Stephen; Martinez‐Martín, Pablo; McCormack, Brendan

doi:10.1038/s41531-017-0031-3

Cited by 4 publications

(2 citation statements)

References 45 publications

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“…Our study suggests that following a stroke, people may perceive additional reasons to avoid reporting their falls, emphasising that clinicians need to strongly promote the positive benefits of taking a proactive response to falls to encourage people to report them. This may require work to change attitudes to falls amongst people with stroke, carers and healthcare professionals, for example as suggested by Buetow et al in their recent paper relating to falls in Parkinson's disease [39].…”

Section: Discussionmentioning

confidence: 99%

What are the perceptions and experiences of falls amongst people with stroke who live in the community?

Munford

Gunn

2018

Disability and Rehabilitation

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Purpose: To explore the perceptions and experiences of people with stroke living in the community with regard to the perceived causes, impact and solutions to minimise falls. Method: A qualitative research approach underpinned by a constructivist paradigm utilising a phenomenological methodology. 12 people with stroke participated in focus groups; the data was analysed using thematic analysis. Results: Three themes and one foundation theme were identified. 1. Trips and Triggers: falls were perceived to be linked to external triggers, one of which was walking aids. 2. Blame and Burden: self-blame and worry about being a burden may be associated with underreporting of falls. 3. Restrict and Reduce: people with stroke restrict activity and reduce participation to manage falls. The underpinning theme of self-efficacy highlights the apparent diminished falls self-efficacy, and the perception amongst the participants that falls are inevitable. Conclusions: This study highlights the perceived negative consequences of falls amongst people with stroke, and the potential contribution of falls to the reduced levels of physical activity often seen following a stroke. Our findings emphasise the need to address falls and balance related self-efficacy alongside strategies to promote safe mobility. A paradigm shift may be needed to highlight potentially modifiable intrinsic risk factors and emphasise the relevance and value of proactive fall prevention to people with stroke.

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Section: Discussionmentioning

confidence: 99%

What are the perceptions and experiences of falls amongst people with stroke who live in the community?

Munford

Gunn

2018

Disability and Rehabilitation

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“…For example, a recent paper identified falls in PD as a crucial clinical milestone, not from a negative point of view, but as a critical factor prompting a personal evolution in many possible ways. Specifically, the authors mentioned a readjustment of the perceived capabilities and safety measures, an inspiration to search for individual strategies or tips to avoid them, or to learn to fall safely, and to adopt a slower tempo in activities, thus allowing patients to cultivate a more serene and conscious presence 2 . In fact, many of the silver linings identified by our respondents are in line with these perhaps counterintuitive ideas (Table 1 and Supplementary Table ).…”

Section: Possible Implicationsmentioning

confidence: 99%

The silver linings of Parkinson’s disease

Alonso‐Cánovas

Voeten²,

Thomas³

et al. 2022

npj Parkinsons Dis.

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Parkinson’s disease (PD) is a neurodegenerative condition, characterized by motor, non-motor disability, and a reduced quality of life. Stimulated by a question raised by a person with PD, we posted an orienting survey on social media, asking whether there is possibly any “silver lining” (an upside) to having PD. Most respondents identified one or more positive changes, mainly a new focus in life, better coping skills, new activities, healthier lifestyle, and improved relationships with relatives and friends. This ability to perceive a silver lining of disease is in line with the concept of adversarial growth in illness, and positive health, which underscores resilience, self-management, and the ability to adapt. Importantly, not every respondent identified an upside to living with PD, so this is very much an example of personalized medicine. This is a delicate, difficult issue, and discussing the presence of silver linings may feel counterintuitive. However, exploring this issue may help people with PD and caregivers to better deal with the disease, and allow medical professionals to provide better support, to learn about coping strategies, to understand the degree of disease acceptance, and to enhance a healthier lifestyle. Further research should demonstrate whether addressing silver linings may impact positively on the outcome of PD and on the perceived quality of life. To facilitate this process, we have adapted a pre-existing silver lining questionnaire (SLQ-38) in light of the responses provided by people with PD, to offer a simple, feasible tool to further explore this issue in clinical and research settings.

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