Familial caregivers' experiences with home‐visit nursing for persons with dementia who live alone

Kitamura, Tatsuru; Tanimoto, Chie; Oe, Shingo; Kitamura, Masaru; Hino, Shoryoku

doi:10.1111/psyg.12352

Cited by 13 publications

(8 citation statements)

References 13 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In the Japanese cultural context, family caregivers experience significant social pressures related to family caregiving ( Kumagai & Ishii-Kuntz, 2016 ). Kitamura et al (2019) reported that Japanese family caregivers of PWDs experience considerable isolation and anguish after learning of the diagnosis. Therefore, it is particularly important that Japanese family caregivers who are physically, psychologically, and socially vulnerable acquire knowledge and information, accept support, and develop empowerment proactively.…”

Section: Introductionmentioning

confidence: 99%

Components of Empowerment Among Family Caregivers of Community-Dwelling People With Dementia in Japan: A Qualitative Research Study

Sakanashi

Fujita

Konno

2021

Journal of Nursing Research

View full text Add to dashboard Cite

Background Family caregivers of people with dementia (PWDs) experience significant physical, psychological, and social burdens. Empowerment, which refers to the process of gaining power in society through behavioral change, is important to coping successfully with care-related burdens. The high burden of care faced by family caregivers in Japan often makes accepting social support difficult for caregivers of PWDs, resulting in feelings of isolation. Clarifying what components constitute empowering experiences for family caregivers of PWDs is necessary to gain a better understanding of their empowerment experiences and to develop relevant support schemes. Purpose This study was developed to describe the components of empowerment experienced by family caregivers of community-dwelling PWDs in Japan. Methods This qualitative descriptive study used semistructured in-depth interviews to explore components of empowerment experienced by family caregivers of adults/older adults with dementia. Purposive sampling was used to recruit 20 family caregivers (age range: 50–87 years) from four self-help groups. A qualitative content analysis method was used to analyze the data. The components derived from the interviews were reviewed by three nursing researchers not directly involved in this study who are specialists in qualitative research and geriatric nursing. Results Four categories and 12 subcategories were derived to illuminate the components of empowerment among family caregivers of PWDs. Specifically, these categories were as follows: (a) proactive aspects of dementia care that were acquired through the caregiving experience, (b) creating a relationship that respects PWDs, (c) Building relationships based on mutual understanding of one's surroundings, and (d) understanding the social aspects of dementia care. Conclusions/Implications for Practice The findings of this study provide additional understanding of the components of the empowerment experiences of family caregivers of PWDs in Japan and in other East Asian countries experiencing increasing dementia diagnoses and population aging. In addition, the structural components of empowerment offer a useful perspective for health professionals on assessment and intervention that is framed on the cultural characteristics of East Asia. Ultimately, the results suggest that healthcare professionals should develop intervention programs that are tailored to the needs of caregivers at different levels of empowerment.

show abstract

Section: Introductionmentioning

confidence: 99%

Components of Empowerment Among Family Caregivers of Community-Dwelling People With Dementia in Japan: A Qualitative Research Study

Sakanashi

Fujita

Konno

2021

Journal of Nursing Research

View full text Add to dashboard Cite

show abstract

“…In other words, family members who relocated the PwD to a nursing facility showed ambivalence, and it can be assumed that this was reflected in sleep quality. These results imply that non-cohabiting family members of a PwD, especially those of a PwD who lives alone, may require appropriate interventions that consider the differences in their circumstances such as the "New Orange Plan, " a comprehensive support system for PwDs via home-visit nurses in Japan [32].…”

Section: Table 2 Continued From the Previous Pagementioning

confidence: 97%

“…bers. When the PwD lived alone, the probability of a family member experiencing poor sleep quality was the most prominent, which was presumably due to guilt and anxiety about not caring for the PwD directly [32]. Previous research reported that approximately 65% of caregivers for PwDs express feelings of guilt [33,34] and caregiving-related distress predicted sleep problems [35].…”

Section: Table 2 Continued From the Previous Pagementioning

confidence: 99%

Association Between Cohabitation Status and Sleep Quality in Families of Persons With Dementia in Korea: A Cross-sectional Study

Kim

Park

Jeong

et al. 2021

J Prev Med Public Health

View full text Add to dashboard Cite

Objectives: The aim of this study was to identify the association between cohabitation status and sleep quality in family members of people with dementia (PwDs).Methods: Data of 190 365 participants aged ≥19 years from the 2018 Korea Community Health Survey were analyzed. Participants were categorized according to their cohabitation status with PwDs. Multiple logistic regression and ordinal logistic regression analyses were performed to evaluate the relationship between the cohabitation status of PwDs’ relatives and sleep quality measured using the Pittsburgh Sleep Quality Index (PSQI) and PSQI subscales.Results: Compared to participants without PwDs in their families, both cohabitation and non-cohabitation with PwDs were associated with poor sleep quality (cohabitation, male: odds ratio [OR],1.28; 95% confidence interval [CI], 1.08 to 1.52; female: OR, 1.40; 95% CI, 1.20 to 1.64; non-cohabitation, male: OR, 1.14; 95% CI, 1.05 to 1.24; female: OR, 1.23; 95% CI, 1.14 to 1.33). In a subgroup analysis, non-cohabiting family members showed the highest odds of experiencing poor sleep quality when the PwD lived alone (male: OR, 1.48; 95% CI, 1.14 to 1.91; female: OR, 1.58; 95% CI, 1.24 to 2.01). Cohabiting male and female participants had higher odds of poor subjective sleep quality and use of sleeping medications than non-cohabiting male and female participants, respectively.Conclusions: The residence of PwDs and cohabitation status may contribute to poor sleep quality among PwDs’ family members. The circumstances faced by cohabiting and non-cohabiting family members should be considered when evaluating sleep quality in family members of PwDs, and appropriate interventions may be needed to improve sleep quality in both cohabiting and non-cohabiting family members.

show abstract

“…It was piloted with one of the panel members and was found to work well according to the purpose. The interview-guide was finally informed by previous research about family carers and dementia care [5,25,[48][49][50][51][52]. Given the hermeneutic and phenomenological approach, the topic guide consisted of open questions about subjective experiences.…”

Section: Designmentioning

confidence: 99%

Family carers’ involvement strategies in response to sub-optimal health services to older adults living with dementia – a qualitative study

2020

View full text Add to dashboard Cite

Background: While dementia policy strategies emphasize the importance of partnerships between families and formal carers to provide tailored care and effectively allocate community resources, family carers often feel left out or excluded. Poor communication has been identified as one reason for the lack of good partnerships. Few studies have investigated how family carers seek to involve themselves when they experience sub-optimal services, and how their strategies may depend on different considerations and personal abilities. Methods: Qualitative in-depth interviews were conducted with 23 family carers to explore their experiences with, perspectives on, contributions to, and interactions with healthcare services provided to older adults living with dementia. To capture nuances and variations, a semi-structured interview guide was used. Interviews were audiorecorded and transcribed verbatim. A four-step analysis of the transcripts was conducted, informed by hermeneutic and phenomenological methodology. Results: Two main involvement strategies were identified: 1) being "the hub in the wheel" and 2) getting the wheel rolling. The first strategy was used to support and complement health services, while the second was used to add momentum and leverage to arguments or processes. The two main strategies were used differently among participants, in part due to differences in personal resources and the ability to utilize these, but also in light of family carers' weighing conflicting concerns and perceived costs and benefits. Conclusions: Awareness and acknowledgment of family carers' strategies, personal resources, and considerations may help policymakers and healthcare personnel when they build or maintain good partnerships together with family carers. A better understanding of family carers' own perspectives on carer involvement is a necessary precursor to developing good care partnerships.

show abstract

Familial caregivers' experiences with home‐visit nursing for persons with dementia who live alone

Cited by 13 publications

References 13 publications

Components of Empowerment Among Family Caregivers of Community-Dwelling People With Dementia in Japan: A Qualitative Research Study

Components of Empowerment Among Family Caregivers of Community-Dwelling People With Dementia in Japan: A Qualitative Research Study

Association Between Cohabitation Status and Sleep Quality in Families of Persons With Dementia in Korea: A Cross-sectional Study

Family carers’ involvement strategies in response to sub-optimal health services to older adults living with dementia – a qualitative study

Contact Info

Product

Resources

About