Families of Young Children With Autism

Diagnostic practice and its impacts on parental health and child behaviour problems in autism spectrum disorders

“…Such impaired parental health and psychological functioning, in general, and high levels of parenting stress in particular, can in turn, lead to more acute child behaviour problems,47 50 and also to poorer child outcomes following treatment 28 29 52 53. For example, if parents are divided into less-stressed and more-stressed groups prior to the child commencing an intervention, then the children of lower-stressed parents show more progress on behavioural, social and educational measures than the children of higher-stressed parents 28 29.…”

“…Clearly, parental stress is extremely high around the time of diagnosis,51 and its level depends, in part, on the parental experiences during the period between first noticing a problem with their child and the diagnosis itself 67. However, there may also be a substantial contribution to parental stress from their diagnostic experiences 27 52 61…”

“…However, it is also known that communication with professionals has a high risk for producing stress in parents of children with ASD,27 51 and a key aspect of this concerns the process of getting a diagnosis 52 61 70. Critically, if the contact with professionals during diagnosis has been perceived by the parent as being unsatisfactory, this may lead to subsequent treatments undertaken by the child being less effective than they otherwise might have been 28 29 57…”

An In-Depth Analysis of the Life Experiences of Parents with Children with Autism Spectrum Disorder

“…Dolayısıyla, eşler çocuklarının bir yetersizlikten etkilenmiş olduğunu öğrendiğinde öfke, suçluluk, depresyon, gibi çeşitli olumsuz duygular yaşayabilmektedir. Ayrıca, bazen diğer çocuklar ve eşlerin aileleri de bu zorlayıcı yaşantılara ortak olabilmektedir (Akkök, 2003;Benson, 2010;Bloch ve Weinstein, 2009;Cavkaytar, 2013;Gray, 1993;Kaner, 2009;Özdemir, 2012;Öztürk, 2008;Tekin-İftar ve Kutlu, 2013;Turan, 2002;Turnbul vd., 2007;Varol, 2006;Wing, 2012). OSB olan bir çocuğa sahip olmak, aile sistemini şefkat, öz saygı, ruhsallık, ekonomi, günlük bakım, sosyalleşme, serbest zaman ve eğitim gibi tüm işlev alanlarında etkileyebilmektedir (Turnbull vd., 2007).…”

Development of the Parent Form of the Preschool Children’s Communication Skills Scale and Comparison of the Communication Skills of Children with Normal Development and with Autism Spectrum Disorder

“…Moreover, it has been suggested that children's relationship with their parents is more effective than their relationship with their teachers in terms of their adaptation to the preschool environment (Pianta, Nimetz, & Bennett, 1997). In particular when it comes to evaluating preschool children's deficiencies, parents play a key role in contributing to the development of their children by selecting appropriate remedial educational programs (Bloch & Weinstein, 2009;Estes et al, 2013). The parent form of the Preschool Children's Communication Skills Scale is considered beneficial for identifying children's fundamental communication skills and preparing suitable educational programs.…”