Family adaptation to cerebral palsy in adolescents: A European multicenter study

Abstract

Family is a dynamic system: facing disability, it tries to recover its balance with available resources and its perception of the situation. Literature highlights potential stressors and protecting factors that could affect the disabled child's family adaptation but few papers study a global model including most of these factors. This study validated a global theoretical model of family adaptation to disability at adolescence. It identified behaviour disorders and motor impairment level as main stressors, family functioning as the largest protecting factors, and equipment and financial support as non significant protective factors.

Structured Pattern for Parental Stress Based on Self-Conscious Affect and Family Performance of Children With Autism

“…Shame and guilt feelings are the effects that they experience [36]. In addition, shame and guilt have relationships with psychological stress [14]. According to the above, experiences of shame and guilt are related to "self" more than other feelings and are provocated by self-reflection and Self-evaluation.…”

“…Since families with ASD children experience stress and distress, to improve their adaptability and attention toward physical and psychological problems of child it is necessary to provide early intervention since the whole family is involved in this problem and good family performance is considered a protective factor against parental stress [14].…”

“…It is believed that since families that have a child with ASD experience severe stress and distress, to help them adapt with their conditions, in addition to paying special attention toward both physical and psychological problems, early interventions are necessary for the whole family since the whole family is involved in dilemma and a good performance of family is recognized as a buffer against parental stress [14].…”

“…In this regard, it was shown that main stressors are motor and behavioral disorders of child and a good family performance is considered as a buffer against such stresses [14]. In addition, parental positive views are related to low parental stresses.…”

Nörogeli̇şi̇msel Ve Edi̇nsel Beyi̇n Hasari Olan Çocuklarin Ai̇le Etki̇leni̇mleri̇ni̇n İncelenmesi̇

“…Disintegration, divorce, job and role loss, failure to cope, problem solving and communication problems are some of the negative impacts on the family (3). Finally, some families adjust better than others, but factors promoting this adaptation are poorly known (4).…”