Family Carebook: A Case Study on Designing Peace of Mind for Family Caregivers

Cruijsberg, M.; Vastenburg, Martijn H.; Stappers, Pieter Jan

doi:10.1007/978-3-642-28783-1_16

Cited by 3 publications

(2 citation statements)

References 8 publications

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“…Recent work in HCI has highlighted many of the above issues with a view to understanding the role technology might have in mitigating them. One area of research has attended to reducing some of the burdens of care work-such as reminder and information systems to avoid repetitive questioning [21,47], tools to share information between care receivers and networks of carers [14], remote monitoring and awareness systems [45] and technologies to avoid disruptive sleep [17]. Others have identified how technology can support carers in seeking emotional and informational support.…”

Section: Technologies To Support Caregivingmentioning

confidence: 99%

Connecting Those That Care

Long

Bakewell

McNaney

et al. 2017

Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems

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Care provision in many nations increasingly relies on the work of informal, or non-professional, carers. Often these carers experience substantial disruptions and reductions to their own sociality, weakened social support networks and, ultimately, a heightened risk of social isolation. We describe a qualitative study, comprised of interviews, design workshops and probes, that investigated the social and community support practices of carers. Our findings highlight issues related to becoming and recognising being a carer, and feelings of being ignored by, and isolated from, others. We also note the benefits that sharing between carers can bring, and routes to coping and relaxing from the burdens of care. We conclude with design considerations for facilitating new forms of digitally mediated support that connect those that care, emphasising design qualities related to transitioning, talking, belonging and escaping.

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Section: Technologies To Support Caregivingmentioning

confidence: 99%

Connecting Those That Care

Long

Bakewell

McNaney

et al. 2017

Proceedings of the 2017 CHI Conference on Human Factors in Computing Systems

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“…Some of these technologies are ambient devices mainly tackling the emotional and physical selves of informal caregivers [18,23]. Other devices address the need for caregivers to watch over their sick relatives and are intended to diminish their stress [15,16,46,58], while some technologies aim to lower the burden of interacting with a person with dementia, by offering memory assistance [47,54] by helping the caregiver to maintain the conversation flow [27], or by using games [26].…”

Section: Related Workmentioning

confidence: 99%

"Counting on the Group"

Tixier

Lewkowicz

2016

Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems

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Awareness of the huge amount of work faced by relatives in caring for a person suffering from a loss of autonomy has led to research focusing on ways to ease the burden on informal caregivers. Among them, services and devices aimed at providing social support and fighting the isolation that may be caused by the caregiving tasks appear important. However, little is known about the social support informal caregivers actually value and look for in practice. To fill this gap, we conducted a multi-sited study, focusing on older informal caregivers, because they are numerous and have lower experience with technology. Our study highlights that being part of a group is a key element in helping informal caregivers to feel that they are not alone, continue leisure activities, learn from others and sustain participation in organized activities. Through this understanding, we discuss design opportunities in a sociotechnical approach complementing online and offline social support.

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How Is the Caregiver Doing? Capturing Caregivers’ Experiences With a Reflective Toolkit

Bosch¹,

Kanis²,

Dunn³

et al. 2019

JMIR Ment Health

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BackgroundThis paper describes the Co-Care-KIT, a reflective toolkit designed to provide insights into the diverse experiences of home-based informal caregivers during the delivery of care to a relative or loved one.ObjectiveThe aim of this study was to evaluate the toolkit, including a custom-designed journal, tools for photography-based experience sampling, and heart rate tracking, which enables caregivers to collect and reflect on their positive and negative daily experiences in situ.MethodsA 2-week field study with informal caregivers (N=7) was conducted to evaluate the Co-Care-KIT and to capture their daily personal emotional experiences. The collected data samples were analyzed and used for collaborative dialogue between the researcher and caregiver.ResultsThe results suggest that the toolkit (1) increased caregivers’ awareness of their own well-being through in situ reflection on their experiences; (2) empowered caregivers to share their identities and experiences as a caregiver within their social networks; (3) enabled the capturing of particularly positive experiences; and (4) provided caregivers reassurance with regards to their own mental health.ConclusionBy enabling capturing and collaborative reflection, the kit helped to gain a new understanding of caregivers’ day-to-day needs and emotional experiences.

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Family Carebook: A Case Study on Designing Peace of Mind for Family Caregivers

Cited by 3 publications

References 8 publications

Connecting Those That Care

Connecting Those That Care

"Counting on the Group"

How Is the Caregiver Doing? Capturing Caregivers’ Experiences With a Reflective Toolkit

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