Family Caregiver Challenges in Pain Management for Patients with Advanced Illnesses: A Systematic Review

Chi, Nai-Ching; Fu, Ying; Nakad, Lynn; Barani, Emelia; Gilbertson‐White, Stephanie; Tripp–Reimer, Toni; Herr, Keela

doi:10.1089/jpm.2020.0806

Cited by 5 publications

(3 citation statements)

References 83 publications

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“…Caregiving for older adults with chronic pain is a source of emotional stress. Among different caregiving responsibilities, pain management is recognized as a significant task that stresses caregivers [25]. Informal caregivers always feel frustrated, unprepared, and helpless because of several challenges they experience in managing pain for older adults.…”

Section: Caregivers' Challengesmentioning

confidence: 99%

Importance of Dyadic Approach in Managing Pain for Community-Dwelling Older Adults and their Informal Caregivers

2024

PSMPH

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Chronic pain impacts the quality of life of older adults and their informal caregivers physiologically, psychologically, and financially. Therefore, this paper examines the challenges of pain management among older adults and their informal caregivers. Moreover, the Dyadic Pain Management Program (DPMP), an alternative approach that empowers older adults and their caregivers to provide friendly care, has proven effective. The DPMP aligns with various dominant welfare ideologies in different regions around the globe, which can potentially reduce social expenditure by emphasizing the role of families. Therefore, this paper advocates for the broader implementation of DPMP and reviews the existing policies managing older adults' chronic pain by addressing its advantages at the micro-and macro levels of the DPMP.

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Section: Caregivers' Challengesmentioning

confidence: 99%

Importance of Dyadic Approach in Managing Pain for Community-Dwelling Older Adults and their Informal Caregivers

2024

PSMPH

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“…Many caregivers, particularly those from racial and ethnic minority groups, are reticent to raise pain-related concerns with medical professionals ( Bonds Johnson et al, 2022 ; Chi & Demiris, 2017 ) and express frustration with pain-related communication. Overall, caregivers report both a lack of knowledge regarding pain management and limited confidence in their ability to respond effectively to their care recipient’s pain ( Bullock et al, 2020 ; Chi et al, 2022 ; Havyer et al, 2017 ).…”

Section: The Role Of Family Caregivers In Pain Assessment and Managementmentioning

confidence: 99%

Establishing the Feasibility and Acceptability of a Caregiver Targeted Intervention to Improve Pain Assessment Among Persons With Dementia

Riffin

Brody

Mukhi

et al. 2023

Innovation in Aging

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Background and Objectives Despite its prevalence and impact, pain is under-detected and under-managed in persons with dementia. Family caregivers are well positioned to detect pain and facilitate its management in their care recipients, but they lack training in symptom recognition and communication. This study reports findings from a pilot trial evaluating the Pain Identification and Communication Toolkit (PICT), a multicomponent intervention that provides training in observational pain assessment and coaching in pain communication techniques. Research Design and Methods Family caregivers of persons with comorbid pain and moderate-to-advanced dementia were randomly assigned to PICT (n=19) or a control condition (n=15). Caregivers in the PICT group participated in 4 weekly sessions delivered by telephone with a trained interventionist; caregivers in the control group received an information pamphlet about pain and dementia. All participants completed surveys at baseline and 12-weeks. Caregivers in the intervention group also completed semi-structured interviews at 12-weeks. Quantitative data were analyzed using descriptive statistics and t-tests; qualitative data were analyzed using content analysis. Results All participants (100%) in the PICT group completed the intervention and most completed the 12-week assessment (94%). PICT randomized caregivers reported that the intervention helped them to feel more confident in their ability to recognize (67%) and communicate about pain symptoms (83%). At 12-weeks, caregivers in the PICT group showed a statistically significant improvement in self-efficacy in pain-related communication. In qualitative interviews, caregivers emphasized the utility of PICT’s components, including pain assessment tools, and offered considerations for future enhancements, such as technology-based adaptations and integration within care delivery systems. Discussion and Implications This pilot trial demonstrates that PICT is feasible to implement, acceptable to caregivers, and has the potential to improve confidence in recognizing and communicating about pain. Results support conducting a fully-powered efficacy trial, an important step toward future integration into real-world care delivery.

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“…On the other hand, it has been found that men also assume the caregiving role, although not at the same rate as women (17), al-though this number is rising and will continue to increase in the coming years, due to social and demographic trends (18). Bhan, in a study with a sample of 28,611 informal adult caregivers aged 18 and older from five countries, found that in 41.01 % of the cases, it was men who assumed this role (19).…”

Section: Introductionmentioning

confidence: 99%

Caregiver Experience from the Perspective of Men and Women: An Integrative Review

Caicedo Fajardo,

Ramírez-Perdomo,

Sánchez Castro

2023

Aquichan

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Introduction: The need for care has increased exponentially in recent years, along with chronic noncommunicable diseases. Caregivers have been predominantly women, although in recent years there has been an increase in the number of men assuming this role. Each of them approaches caregiving differently, shaping their caregiving experience differently from one another. Objective: To identify, through scientific evidence, the meaning of being a caregiver for men and women who assume this role. Methodology: This is an integrative literature review of articles published from 2012 to 2023, following Whittemore and Knafl’s proposal. Keywords in Spanish, English, and Portuguese were used. The databases searched were Scopus, CINAHL, Web of Science, Ovid, and PubMed. Twenty-four articles that met the inclusion criteria were analyzed. Results: The following themes emerged: “Losses and limitations due to the caregiver’s role,” “Feelings experienced by the caregiver,” “Caregiving as an act of love,” and “Transcendence of care: between spirituality and religiosity.” Conclusions: It was found that men focus their care on the person’s comfort, cleanliness, and medication, while women provide care focused on continuous emotional support, assuming this commitment at all times and places, building an experience of care aimed at “always being aware.” In both genders, the onset of stress, loss of meaning in life, and negative feelings are highlighted.

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Family Caregiver Challenges in Pain Management for Patients with Advanced Illnesses: A Systematic Review

Cited by 5 publications

References 83 publications

Importance of Dyadic Approach in Managing Pain for Community-Dwelling Older Adults and their Informal Caregivers

Importance of Dyadic Approach in Managing Pain for Community-Dwelling Older Adults and their Informal Caregivers

Establishing the Feasibility and Acceptability of a Caregiver Targeted Intervention to Improve Pain Assessment Among Persons With Dementia

Caregiver Experience from the Perspective of Men and Women: An Integrative Review

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