Family caregivers' burden: A hospital based study in 2010 among cancer patients from Delhi

Lukhmana, Shveta; Bhasin, Sanjiv Kumar; Chhabra, Puneet; Bhatia, '

doi:10.4103/0019-509x.175584

Cited by 75 publications

(61 citation statements)

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“…There is currently little support available specifically to assist caregivers in undertaking this important task. Health-care professionals are well placed to identify caregivers who may be at risk of significant burden and to support them through direct care or by referral to appropriate services to help meet their needs [16].…”

Section: Discussionmentioning

confidence: 99%

Family Burden and Stress Among Caregiver of Oral Cancer Patients at Krishna Hospital Karad

Hiremath

Mohite

Naregal

et al. 2017

Asian J Pharm Clin Res

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Objectives: Cancer is a major life-threatening disease and has its impact on both patients and their family members. Caregivers also play the very important role in the care of the patients with cancer. (1) Asses the burden among caregivers of patients with oral cancer using burden inventory. (2) Assess the perceived stress among caregivers of patients with oral cancer using Perceived Stress Scale (PSS). (3) Identify the correlation between burden and perceived stress with selected sociodemographic variable. There is mounting evidence that during advanced stages of illness, changes in family roles, and the burden placed on family caregivers may negatively affect quality of life for cancer patients, as well as their caregivers. Attending to the needs of the families of patients not only will benefit family members but also may help patients with their own emotional responses and management of their disease. The study objectives were to asses the burden and the perceived stress among caregivers of patients with oral cancer patients. Methods:Quantitative nonexperimental approach with descriptive survey design was selected for study. 40 caregivers of patients with oral cancer were selected through convenience sampling technique. The study included the caregivers of 21-50 years age group who is providing care patients with oral cancers, who are responding and interested to participate, and available at the time of the study. Caregiver's burden was assessed using caregiver burden scale. A stress of the caregiver was assessed by the PSS.Results: Demographic variable shows that maximum sample belongs 40-50 (40%) years of age group, male gender (65%), married (90%), nuclear family (65%), house wife by occupation (60%), spouse to the patients (45%), below graduated education (72%), 6 months to 1 year in providing care (47%), having health benefit from government (52%), and accompanying patient regularly to the hospital (72%). In this study, 3 (7.5%) caregiver were said that no burden, 13 (32.5%) samples shown mild burden, 15 (37.5%) relative indicated moderate burden, and 9 (22.5%) samples shown severe burden; 4 (10%) samples shown low stress, 22 (55%) caregiver presented moderate stress, and 14 (35%) samples had high stress. Conclusion:Caregivers are often patients' primary source of support, many experience significant burden, particularly with respect to their physical and psychological well-being, economic circumstances, and social and personal relationships.

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Section: Discussionmentioning

confidence: 99%

Family Burden and Stress Among Caregiver of Oral Cancer Patients at Krishna Hospital Karad

Hiremath

Mohite

Naregal

et al. 2017

Asian J Pharm Clin Res

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“…Following review of titles and/or abstracts, 1450 records were excluded and 23 full-text articles were obtained for detailed assessment. Eleven studies were selected after review of the full-text publications [13][14][15][16][17][18][19][20][21][22][23]. The study selection protocol is delineated in Figure 1.…”

Section: Comprehensive Literature Reviewmentioning

confidence: 99%

Quality of Life among Caregivers of Lower-Income Cancer Patients: A Single-Institutional Experience in India and Comprehensive Literature Review

Vashistha¹,

Poulose

Choudhari

et al. 2019

Asian Pac J Cancer Care

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Objectives: Quality of life (QOL) among caregivers of cancer patients is often diminished. For lower-income caregivers, the deterioration in QOL may be of greater impact. We aimed to evaluate QOL among lower-income cancer caregivers in Delhi, India and to comprehensively review similar investigations conducted internationally.Methods: A Hindi-version of the Caregiver Quality of Life Cancer (CQOLC) index was administered to 89 caregivers of lung cancer patients. Bivariate analyses were employed to evaluate associations between baseline demographics and CQOLC index scores. A systematic review of PubMed, EMBASE, and PsychInfo was undertaken.Results: Reduced QOL was observed for caregivers residing in homes earning less than our center’s median annual income per capita (p < 0.01) and for caregivers providing aid for 4 months or longer (p < 0.01). The burden of caregiving contributed most to summative index scores (p < 0.01). Eleven studies were selected by systematic review. Lower-income caregivers in Asia and the Middle East experience reduced QOL and increased burden. Available evidence does not suggest that lower-income caregivers in Europe and North America share worse QOL.Conclusion: Lower-income caregivers suffer loss in QOL, particularly in the developing world. Resourceful interventions are warranted to mitigate burden for this underappreciated population.

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“…Informal caregivers are important stakeholders of care management, but in many instances, their personal aspirations are sacrificed to accommodate patient care as that takes centre stage . While patient care is of paramount importance, caregiver's well‐being could have an impact on patient's health outcomes.…”

Section: Discussionmentioning

confidence: 99%

“…Caregivers, especially family members, perform diverse caregiving activities at all stages of illness, additionally to their routine work . Providing emotional or psychological support is one of the inherent caregiving activities and crucially includes managing psychological needs and feelings about having cancer .…”

Section: Introductionmentioning

confidence: 99%

Exploring perceptions and practices of cancer care among caregivers and care recipients of breast cancer in India

et al. 2020

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Objective: Cancer care is physically and psychologically challenging for both care recipients and caregivers. Caregiving in cancer is an area that needs urgent attention in India. Much of caregiving literature in India is limited to mental illnesses. This study thus examines the perceptions and practices of psychological caregiving among caregivers and care recipients of breast cancer in India.Methods: Participants were interviewed with the aid of a semistructured qualitative interview guide. Participants included 39 caregivers and 35 care recipients in different breast cancer stages. Interviews were transcribed, translated to English, and coded, and themes were derived for further analysis. Informed consent from participants and ethical clearance and permission from a tertiary hospital were obtained prior to data collection.Results: Psychological caregiving as perceived by the participants included actions such as encouraging, convincing care recipients, companionship, and maintaining a stress-free environment. Caregivers in particular felt that psychological caregiving meant reacting calmly to sensitive queries of nonfamily members, providing emotional support to other family members, and involvement in religious activities. Taking on such diverse responsibilities gave rise to several unmet psychological needs such as motivation and support in decision making from other family members.Conclusions: Irrespective of the status (caregiver or care recipient), participants in this study felt the need for structured counselling services to be incorporated into the standard care protocol. This is an area that needs to be further explored in the context of the breast cancer caregiver and care recipient dyad.breast cancer, breast oncology, caregiver, caregiving, India, psychological care, qualitative study 1 | BACKGROUND Caregivers, especially family members, perform diverse caregiving activities at all stages of illness, additionally to their routine work. [1][2][3][4] Providing emotional or psychological support is one of the inherent caregiving activities 5-7 and crucially includes managing psychological needs 8 and feelings about having cancer. 9 Literature suggests that about 74% to 80% of the cancer caregivers provide psychological

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Family caregivers' burden: A hospital based study in 2010 among cancer patients from Delhi

Cited by 75 publications

References 1 publication

Family Burden and Stress Among Caregiver of Oral Cancer Patients at Krishna Hospital Karad

Family Burden and Stress Among Caregiver of Oral Cancer Patients at Krishna Hospital Karad

Quality of Life among Caregivers of Lower-Income Cancer Patients: A Single-Institutional Experience in India and Comprehensive Literature Review

Exploring perceptions and practices of cancer care among caregivers and care recipients of breast cancer in India

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