Family caregivers' experiences of caring for neonates undergoing enterostomy in China: A qualitative study

Ni, Zhi Hong; Ding, Sheng; Wu, Jin Hua; Wang, Fang

doi:10.1002/nop2.1350

Cited by 4 publications

(3 citation statements)

References 47 publications

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“…10 Nursing care of a newborn with a stoma or tube stoma involves multidisciplinary work, which requires knowledge and skills that guarantee quality care. 11 It is important to adopt a familycentered care approach, which facilitates psychosocial adaptation to the stoma.…”

Section: Discussionmentioning

confidence: 99%

Stoma and tube stoma: two sides of the same coin? A scoping review

Grandi,

Midea,

Toscano

et al. 2024

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Introduction: A stoma is a surgical opening in the abdomen that allows for the passage of feces and/or urine. It can be temporary or permanent, and the type of stoma depends on the affected section of the intestine or urinary tract. In neonates, a stoma may be necessary for various congenital or acquired pathologies. Stoma management in this age group requires specific skills and presents different challenges compared to adults.Aim: The aim of this review is to compare the advantages and disadvantages of stoma and tube stoma in neonates, to identify the clinical and care strategy that guarantees a better quality of life for the child and their family.Methods: A scoping review was conducted in the PubMed and CINAHL databases. The search included studies comparing the use of stoma and tube feeding in neonates with different pathologies.Results: Data analysis showed that: stomas offer immediate access to the intestine for feeding and decompression, but can be associated with complications such as retraction, ischemia, and peristomal dermatitis. Tube stoma allows for controlled tissue expansion of the intestine and better management of short bowel syndrome but requires more complex management and greater training of healthcare personnel.Conclusions: The choice between stoma and tube stoma in neonates should be individualized, considering the different clinical variables and the needs of the child and their family.

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Section: Discussionmentioning

confidence: 99%

Stoma and tube stoma: two sides of the same coin? A scoping review

Grandi,

Midea,

Toscano

et al. 2024

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“…The limited level of community nurses is the macrosystem factor of self-management obstacle. Studies have shown that [39] foreign ostomy nursing includes the whole process of patients from hospitalization to discharge, connecting hospitals and communities, and truly realizing seamless nursing for patients with ostomy. CWOCN nurses transfer patients' major nursing problems and nursing plans to nurses of community medical service institutions.…”

Section: Barriersmentioning

confidence: 99%

Exploring the barriers and enablers of the self-management ability in colorectal cancer patients with enterostomy: a qualitative study based on social ecological model

WANG,

XU,

XING

et al. 2023

Preprint

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Background:Since enterostomy surgery changes the way a patient defecates, it is essential for the patient to be self-managing in order to adapt to this change. Objective:We aimed to explore the barriers and enablers affecting the self-management ability of colorectal cancer patients with enterostomy from the perspectives of social ecological model, to provide insight for developing self-management intervention programs to better meet the needs of patients. Methods:An exploratory qualitative study guided by social ecological model and followed the Consolidated Criteria for Reporting Qualitative Research (COREQ) guidelines was conducted . A total of 11 colorectal cancer patients with enterostomy from in the gastrointestinal surgery ward and ostomy clinic of a Grade A tertiary hospital in Shandong Province from January 2023 to April 2023 were recruited, and semi-structured in-depth interviews were used to collect data. Colaizzi data analysis and Nvivo 11.0 software were used to analyze the interview data. Results:Facilitators relating to self-management ability included perceived benefits of self-management, acquisition of enterostomy knowledge and skills, positive psychological adjustment, family responsibility drive, and improvement of the health care system. Barriers included lack of ostomy knowledge and skills, adverse experience of the disease, family barriers, social negative environmental influences, limited access to medical care, and barriers to information access. Conclusion:This study indicated that factors from the aspects of microsystem(e.g.,lack of ostomy knowledge and skills, adverse experience of the disease), mesosystem(e.g.,family barriers, social negative environmental influences), macrosystem(e.g.,limited access to medical care, and barriers to information access) would potentially affect the self-management ability of the colorectal cancer patients with enterostomy, interventions taget n these aspects might improve patients' self-management ability.

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“…En el manejo exitoso de las personas con ostomías de eliminación permanente los cuidadores familiares o informales tiene un rol de gran importancia, por tanto, los programas de manejo en esta patología deben tener el enfoque hacia los pacientes ostomizados y sus cuidadores (7,44,45). Estos programas, deben conocer las percepciones de las familias, de los cuidadores familiares y de los pacientes portadores de ostomías intestinales, pues los aspectos culturales y sociales de las dinámicas de convivencia de las familias, de la red de apoyo y de contextos de cada grupo familiar son diferentes (7,46,47), por tanto, de relevancia para establecer intervenciones de alto impacto en esta población.…”

Section: Rol De Los Cuidadores Familiares O Informalesunclassified

Percepciones e implicaciones en personas con ostomías de eliminación. Revisión narrativa

Vargas-Rodríguez,

Quemba-Mesa,

Díaz-Fernandez

et al. 2023

Rev. cienc. cuidad.

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Introducción: Las personas que experimentan el tener una ostomía de eliminación como parte de un tratamiento clínico enfrentan cambios que impactan su calidad de vida, a nivel familiar, social, laboral y económico. Metodología: Revisión narrativa, que incluyó artículos de todos los diseños metodológicos en español, inglés y portugués, disponibles en las bases de datos Scopus, Ovid Nursing, Pubmed, Web of Science, Lilacs, Sage, Sciencedirect, Scielo, Google Scholar y repositorios universitarios, con términos de búsqueda MeSH “Ostomy and Rural Population and caregivers”, de los últimos 10 años. Estos artículos surtieron análisis teórico para la construcción de categorías temáticas afines. Resultados: Las categorías temáticas obtenidas son: 1) significado de tener una ostomía: destino, estigma, cambio; 2) afectaciones en la calidad de vida: cambios físicos y de roles; 3) estrategias de afrontamiento: intervenciones integrales; 4) impacto de las intervenciones educativas: en el preoperatorio y para el cuidado; 5) importancia del autocuidado: facilita la adaptación; y 6) rol de los cuidadores: asumen la carga de cuidado. Conclusiones: Las personas con ostomías, sus cuidadores y familias experimentan diferentes cambios en las dinámicas y roles de vida, por lo cual requieren soporte en salud con apoyo emocional, en habilidades cognitivas e instrumentales.

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Family caregivers' experiences of caring for neonates undergoing enterostomy in China: A qualitative study

Cited by 4 publications

References 47 publications

Stoma and tube stoma: two sides of the same coin? A scoping review

Stoma and tube stoma: two sides of the same coin? A scoping review

Exploring the barriers and enablers of the self-management ability in colorectal cancer patients with enterostomy: a qualitative study based on social ecological model

Percepciones e implicaciones en personas con ostomías de eliminación. Revisión narrativa

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