Family caregivers’ experiences of caring for children diagnosed with haematological malignancies receiving chemotherapy in Ethiopia: A qualitative study

Melesse, Tenaw Gualu; Chau, Janita Pak Chun; Yimer, Mulugeta Ayalew

doi:10.1016/j.ejon.2023.102376

Cited by 3 publications

(4 citation statements)

References 35 publications

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“…They stated that they would benefit from psychological support such as encouragement, empathy, interaction and sharing experiences with other caregivers of children with cancer, which is congruent with the other studies of caregivers of children with cancer conducted in Sri Lanka 31 and Ethiopia. 22 Malesee et al reported that caregivers need psychological support, such as encouragement during the cancer trajectory for both themselves and their child. 22 In Malawi, caregivers are vital in providing care and fulfilling essential caregiving responsibilities for their children.…”

Section: Discussionmentioning

confidence: 99%

“…22 Malesee et al reported that caregivers need psychological support, such as encouragement during the cancer trajectory for both themselves and their child. 22 In Malawi, caregivers are vital in providing care and fulfilling essential caregiving responsibilities for their children. 13 However, due to limited human resources, they often do not receive adequate psychological support and care.…”

Section: Discussionmentioning

confidence: 99%

“…This is in line with the previous studies, which showed that caregivers expressed the need for financial support due to high treatment costs, leaving their jobs and being unable to do business, which resulted in decreased income for caregivers. 22 , 23 Cancer is a chronic illness and requires long‐term treatment. Despite cancer treatment being free, most caregivers in the current setting experienced financial challenges related to transportation and food.…”

Section: Discussionmentioning

confidence: 99%

“… 19 Moreover, by examining the caregivers' experiences during their children's treatment, interventions can be developed to support their caregiving experience. While the experiences of caregivers of children with cancer have been studied in other countries, 20 , 21 , 22 , 23 little is known about the experiences of caregivers of children receiving cancer treatment in Malawi. The caregiving experience can be influenced by cultural, social and economic factors specific to each country.…”

Section: Introductionmentioning

confidence: 99%

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Experiences of caregivers of children with cancer in Malawi: A qualitative study

Phiri,

Li,

Phiri

et al. 2024

Cancer Medicine

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BackgroundStudies have shown that caregivers of children with cancer experience challenges when caring for their children. To date, no studies have examined the experience of caregivers of children with cancer in Malawi, a low‐income country in sub‐Saharan Africa. Hence, this study aimed to explore the experiences of caregivers of Malawian children receiving cancer treatment.MethodsThis explorative qualitative study used semi‐structured interviews to collect data from 22 caregivers of children receiving cancer treatment. The data were analysed using qualitative content analysis.ResultsFive themes emerged from the QCA. The caregivers perceived their children's cancer as a burden, a form of psychological torture and a disruptor of family routines and social lifestyles. They also reported self‐isolation due to the stigma that they faced in the course of caring for their children and a need for informational, psychosocial, spiritual and financial support.ConclusionCaregivers of Malawian children with cancer experience physical and psychosocial challenges as they are caring for their children with cancer. Developing appropriate interventions would enable nurses to offer optimal support to these caregivers in dealing with these challenges and meeting their needs effectively.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Experiences of caregivers of children with cancer in Malawi: A qualitative study

Phiri,

Li,

Phiri

et al. 2024

Cancer Medicine

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Can Large Language Models Aid Caregivers of Pediatric Cancer Patients in Information Seeking? A Cross-Sectional Investigation

Sezgin,

Jackson,

Kocaballi

et al. 2024

Preprint

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Background and ObjectivesIn pediatric oncology, caregivers seek detailed, accurate, and understandable information about their child’s condition, treatment, and side effects. The primary aim of this study was to assess the performance of four publicly accessible large language model (LLM)- supported knowledge generation and search tools in providing valuable and reliable information to caregivers of children with cancer.MethodsThis cross-sectional study evaluated the performance of the four LLM-supported tools — ChatGPT (GPT-4), Google Bard (Gemini Pro), Microsoft Bing Chat, and Google SGE- against a set of frequently asked questions (FAQs) derived from the Children’s Oncology Group Family Handbook and expert input. Five pediatric oncology experts assessed the generated LLM responses using measures including Accuracy (3-point ordinal scale), Clarity (3-point ordinal scale), Inclusivity (3-point ordinal scale), Completeness (Dichotomous nominal scale), Clinical Utility (5-point Likert-scale), and Overall Rating (4-point ordinal scale). Additional Content Quality Criteria such as Readability (ordinal scale; 5- 18th grade of educated reading), Presence of AI Disclosure (Dichotomous scale), Source Credibility (3- point interval scale), Resource Matching (3-point ordinal scale), and Content Originality (ratio scale) were also evaluated. We used descriptive analysis including the mean, standard deviation, median, and interquartile range. We conducted Shapiro-Wilk test for normality, Levene’s test for homogeneity of variances, and Kruskal-Wallis H-Tests and Dunn’s post-hoc tests for pairwise comparisons.ResultsThrough expert evaluation, ChatGPT showed high performance in accuracy (M=2.71, SD=0.235), clarity (M=2.73, SD=0.271), completeness (M=0.815, SD=0.203), Clinical Utility (M=3.81, SD=0.544), and Overall Rating (M=3.13, SD=0.419). Bard also performed well, especially in accuracy (M=2.56, SD=0.400) and clarity (M=2.54, SD=0.411), while Bing Chat (Accuracy M=2.33, SD=0.456; Clarity M=2.29, SD=0.424) and Google SGE (Accuracy M=2.08, SD=0.552; Clarity M=1.95, SD=0.541) had lower overall scores. The Presence of AI Disclosure was less frequent in ChatGPT (M=0.69, SD=0.46), which affected Clarity (M=2.73, SD=0.266), whereas Bard maintained a balance between AI Disclosure (M=0.92, SD=0.27) and Clarity (M=2.54, SD=0.403). Overall, we observed significant differences between LLM tools (p < .01).ConclusionsLLM-supported tools potentially contribute to caregivers’ knowledge of pediatric oncology on related topics. Each model has unique strengths and areas for improvement, suggesting the need for careful selection and evaluation based on specific clinical contexts. Further research is needed to explore the application of these tools in other medical specialties and patient demographics to assess their broader applicability and long-term impacts, including the usability and feasibility of using LLM- supported tools with caregivers.

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Exploring the Caregiver Experiences of Symptom Management in Children With Cancer: A Qualitative Systematic Review

Whalan,

Skrabal Ross,

Bowers

et al. 2024

Nursing & Health Sciences

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Although caregivers of children with cancer play an instrumental role in managing their child's symptoms, the impact of their own experiences or perspectives is under‐explored. Understanding these factors is essential as they influence caregiving behaviors and overall well‐being. This qualitative systematic review addresses this knowledge gap by synthesizing existing research on caregiver's experiences. The review is reported according to the Preferred Reporting Items for Systematic Reviews and Meta‐Analyses guidelines. Two reviewers utilized Rayyan to screen titles and abstracts retrieved from comprehensive keyword searches of five databases including CINAHL, APA PsycINFO, Embase, and MEDLINE. Databases and bibliographies were hand‐searched for additional articles. One reviewer completed full text assessment and data were extracted into an Excel spreadsheet. The Quality Assessment with Diverse Studies tool was used to appraise included studies. Thematic content analysis was used to synthesize findings, which are presented narratively. Twelve articles are included, representing the experiences of 597 caregivers, most of which (83%) were undertaken in high‐income nations. Quality appraisal scores indicated all studies were of moderate to robust quality. Three main themes were identified including: (1) caregivers as protectors in their role, (2) normalization of symptoms yet they remain disrupting, and (3) communication between the caregiver and child. Findings emphasize the importance of formalized information provision and education to better support caregivers in managing their child's cancer‐related symptoms. Nurses are uniquely positioned to provide this essential support thereby improving the quality of life for both caregivers and children.

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Family caregivers’ experiences of caring for children diagnosed with haematological malignancies receiving chemotherapy in Ethiopia: A qualitative study

Cited by 3 publications

References 35 publications

Experiences of caregivers of children with cancer in Malawi: A qualitative study

Experiences of caregivers of children with cancer in Malawi: A qualitative study

Can Large Language Models Aid Caregivers of Pediatric Cancer Patients in Information Seeking? A Cross-Sectional Investigation

Exploring the Caregiver Experiences of Symptom Management in Children With Cancer: A Qualitative Systematic Review

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