Family Caregivers of Older Adults, 1999–2015: Trends in Characteristics, Circumstances, and Role-Related Appraisal

Wolff, Jennifer L.; Mulcahy, John; Huang, Jin; Roth, David L.; Covinsky, Kenneth E.; Kasper, Judith D.

doi:10.1093/geront/gnx093

Cited by 197 publications

(130 citation statements)

References 28 publications

Supporting

Mentioning

126

Contrasting

Order By: Relevance

“…From 1999 to 2015, dementia caregivers were significantly less likely to report physical difficulties (from 30% in 1999 to 17% in 2015) and financial difficulties (from 22% in 1999 to 9% in 2015) related to care provision. In addition, use of respite care by dementia caregivers increased substantially (from 13% in 1999 to 27% in 2015) 338 . However, as noted earlier, more work is needed to ensure that interventions for dementia caregivers are available and accessible to those who need them.…”

Section: Caregivingmentioning

confidence: 98%

“…Caregivers of people with dementia report providing 27 hours more care per month on average (92 hours versus 65 hours) than caregivers of people without dementia 319 . An analysis of national caregiving trends from 1999 to 2015 found that the average hours of care per week increased from 45 in 1999 to 48 in 2015 for dementia caregivers; over the same time period, weekly hours of care decreased for non‐dementia caregivers from 34 to 24 338 …”

Section: Caregivingmentioning

confidence: 99%

See 1 more Smart Citation

2020 Alzheimer's disease facts and figures

2020

Alzheimer's & Dementia

2,033

653

View full text Add to dashboard Cite

This article describes the public health impact of Alzheimer's disease (AD), including incidence and prevalence, mortality and morbidity, use and costs of care, and the overall impact on caregivers and society. The Special Report discusses the future challenges of meeting care demands for the growing number of people living with Alzheimer's dementia in the United States with a particular emphasis on primary care. By mid‐century, the number of Americans age 65 and older with Alzheimer's dementia may grow to 13.8 million. This represents a steep increase from the estimated 5.8 million Americans age 65 and older who have Alzheimer's dementia today. Official death certificates recorded 122,019 deaths from AD in 2018, the latest year for which data are available, making Alzheimer's the sixth leading cause of death in the United States and the fifth leading cause of death among Americans age 65 and older. Between 2000 and 2018, deaths resulting from stroke, HIV and heart disease decreased, whereas reported deaths from Alzheimer's increased 146.2%. In 2019, more than 16 million family members and other unpaid caregivers provided an estimated 18.6 billion hours of care to people with Alzheimer's or other dementias. This care is valued at nearly $244 billion, but its costs extend to family caregivers’ increased risk for emotional distress and negative mental and physical health outcomes. Average per‐person Medicare payments for services to beneficiaries age 65 and older with AD or other dementias are more than three times as great as payments for beneficiaries without these conditions, and Medicaid payments are more than 23 times as great. Total payments in 2020 for health care, long‐term care and hospice services for people age 65 and older with dementia are estimated to be $305 billion. As the population of Americans living with Alzheimer's dementia increases, the burden of caring for that population also increases. These challenges are exacerbated by a shortage of dementia care specialists, which places an increasing burden on primary care physicians (PCPs) to provide care for people living with dementia. Many PCPs feel underprepared and inadequately trained to handle dementia care responsibilities effectively. This report includes recommendations for maximizing quality care in the face of the shortage of specialists and training challenges in primary care.

show abstract

Section: Caregivingmentioning

confidence: 98%

Section: Caregivingmentioning

confidence: 99%

2020 Alzheimer's disease facts and figures

2020

Alzheimer's & Dementia

2,033

653

View full text Add to dashboard Cite

show abstract

“…Nursing home usage among persons with ADRDs may decrease, in part due to the “rebalancing” of US states' long‐term care expenditures away from traditional nursing homes toward community‐based long‐term care services . Thus, use of community‐based long‐term services and supports that address dementia‐specific care needs for both persons living with dementia and their family caregivers will be critical now and into the future . Throughout the disease trajectory, most persons with dementia (PWD) rely heavily on familial support to assist with providing care .…”

mentioning

confidence: 99%

Adult Day Service Use Decreases Likelihood of a Missed Physician's Appointment Among Dementia Caregivers

Parker

Gaugler

Samus³

et al. 2019

J American Geriatrics Society

View full text Add to dashboard Cite

BACKGROUND/OBJECTIVE Adult day services (ADSs) that provide community‐based supervised support for persons with dementia (PWD) may also function as a respite for familial caregivers to attend to self‐care needs. Guided by a revised version of the Andersen Healthcare Utilization Model, the objective of this study was to identify the association between use of ADSs and a missed physician's appointment among family caregivers for community‐dwelling familial PWD. A secondary objective was to identify other predisposing, enabling, and need factors associated with a missed physician's appointment. DESIGN Secondary analysis of baseline, cross‐sectional data from two randomized controlled trials (Advancing Caregiver Training, n = 272; and Care of Persons With Dementia in Their Environments, n = 237). SETTING Community. PARTICIPANTS Community‐dwelling caregivers for PWD (n = 509). MEASUREMENTS Missed physician's appointment was measured using the caregivers' self‐report of one or more missed physician's appointments (yes/no) in the past 6 months. ADS use was measured using the caregivers’ self‐report of ADS use (yes/no). RESULTS Over a third of the caregivers utilized ADSs for their PWD. Caregivers who utilized ADSs for their familial PWD were 49% less likely (95% confidence interval = 0.32‐0.81) to miss a physician's appointment in the past 6 months. More black compared to white caregivers missed appointments regardless of ADS use. Caregivers with increased chronic health conditions were more likely to miss a physician's appointment compared to those with fewer conditions. CONCLUSION ADSs’ provision of respite enables caregivers the time to address self‐care needs by decreasing the likelihood that caregivers miss a physician's appointment. Findings suggest that ADSs may promote positive health behaviors for caregivers and should be expanded as part of comprehensive dementia care for families. Factors associated with missed physician appointments need further examination and intervention to support black caregivers.

show abstract

“…Emerging data suggest that while the majority of individuals find caregiving to be a rewarding experience it can also result in hefty physical, emotional and financial strains (SCAN ). As the population ages, the burden of chronic illness rises and the emphasis on community‐based care grows, it is timely that there is an increasing recognition of the role of unpaid or informal caregivers (Wolff et al., ). Moreover, in many countries ravaged by epidemics such as HIV and tuberculosis, caregiving reaches across multiple generations (Ogden, Esim, & Grown, ).…”

mentioning

confidence: 99%