Family caregivers' perceived level of collaboration with hospital nurses: A cross‐sectional study

Hagedoorn, Ellen I; Paans, Wolter; Schans, Cees P. van der; Jaarsma, Tiny; Luttik, Marie Louise; Keers, Joost C.

doi:10.1111/jonm.13244

Cited by 8 publications

(7 citation statements)

References 39 publications

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“…Advancing the quality of health care means, in the logic of complexity thinking, welcoming and apprehending the mother caregiver in her uniqueness and complementarity, as well as transcending linear perceptions and achieving an integrated, collaborative and inseparable dynamic between theoretical knowledge and lived knowledge ( 28 ) . This evolution, which does not exclude disorder, implies recognizing that the quality of care is associated with the ability to evolve in the inseparability and dialogicity between the notions of order and disorder, with a view to (re)organization.…”

Section: Discussionmentioning

confidence: 99%

Mothers’ perception of the care of newborn in the home environment

Hammel,

Simas,

Rodrigues Junior

et al. 2024

Rev. Bras. Enferm.

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Objectives: to identify mothers’ perceptions about caring for newborns in the home environment, from the perspective of complexity thinking. Methods: qualitative, exploratory and descriptive research, carried out between November/2022 and February/2023. Data were collected through individual interviews with 21 mothers from southern Brazil who cared for newborns at home and analyzed using the thematic analysis technique. Results: the four thematic axes resulting from the data analysis: Living amidst order and disorder; embracing singularities; dealing with the certain and the uncertain; support network in the (re)organizing process demonstrate that the mother caring for a newborn in their home environment experiences a distinct and plural adaptive process, which must be welcomed and understood by health professionals who work within the family environment. Final Considerations: the care of newborns in a home environment, in the perception of mothers, requires differentiated attention and a formal or informal support network that considers the unique specificities of each woman/mother in the personal, family and social spheres. Therefore, in addition to the social support network, it is important to rethink home intervention approaches.

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Section: Discussionmentioning

confidence: 99%

Mothers’ perception of the care of newborn in the home environment

Hammel,

Simas,

Rodrigues Junior

et al. 2024

Rev. Bras. Enferm.

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“…Family members also reported not having enough opportunities to participate in care planning, aligning with a similar result that had been discovered earlier [ 14 ]. This may be due to limited contact with nurses, which makes it difficult to participate in care planning [ 35 ]. Perceptions of care quality have previously been shown to depend strongly on having clear information about the next step in care and follow-up [ 36 ].…”

Section: Discussionmentioning

confidence: 99%

Care quality and satisfaction at the cancer hospital – a questionnaire study of older patients with cancer and their family members

Launonen,

Vehviläinen-Julkunen,

Mikkonen

et al. 2024

BMC Health Serv Res

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Background The unique life situations of older patients with cancer and their family members requires that health care professionals take a holistic approach to achieve quality care. The aim of this study was to assess the perceptions of older patients with cancer and family members about the quality of care received and evaluate differences between their perceptions. A further aim was to examine which factors explain patients’ and family members’ levels of satisfaction with the care received. Methods The study was descriptive and cross-sectional in design. Data were collected from patients (n = 81) and their family members (n = 65) on four wards in a cancer hospital, using the Revised Humane Caring Scale (RHCS). Data were analysed using descriptive statistics, crosstabulation, Wilcoxon signed rank test, and multivariable Analysis of Covariance (ANCOVA). Results Family members had more negative perceptions of the quality of care than patients did. Dissatisfaction was related to professional practice (p < 0.001), interaction between patient and health care professionals (p < 0.001), cognition of physical needs (p = 0.024), and human resources (p < 0.001). Satisfaction with overall care was significantly lower among those patients and family members who perceived that they had not been involved in setting clear goals for the patient's care with staff (p = 0.002). Conclusions It is important that older patients with cancer and family members receive friendly, respectful, individual care based on their needs and hopes, and that they can rely on professionals. Health care professionals need more resources and education about caring for older cancer patients to provide quality care.

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“…The FCS was a 56-item scale before being revised by Lindhardt and colleagues [ 21 ]. Parallel to the Danish FCS is a version in Dutch revised as a 20-item scale, narrowing the focus and including only items on collaboration, evaluated using face and content validity [ 22 , 23 ]. In addition, the sample in the study based on the Norwegian version of the FCS was smaller (n = 147), with many drop-outs (34%), and the psychometric methods were different [ 24 ].…”

Section: Discussionmentioning

confidence: 99%

“…Previous studies using the FCS have shown that family caregiver characteristics such as age and cohabitation with the patient are positively associated with the perception of better collaboration. In addition, a higher frequency of contact with nurses was associated with the perception of better collaboration [ 22 ]. There are validated versions of the FCS in Dutch [ 23 ] and Norwegian [ 24 ], but there is as yet none in Swedish.…”

Section: Introductionmentioning

confidence: 99%

A Psychometric Evaluation of the Family Collaboration Scale and an Investigation of How the Close Family of Frail Older Patients Perceive the Collaboration with Healthcare Professionals on Acute Medical Wards at Hospitals in Sweden

2022

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The inclusion of family members in the acute care of older persons with complex needs results in better coordination of care and reduces the frequency and/or duration of rehospitalisation. Therefore, healthcare professionals need a tool to assess the collaboration with family members on acute hospital wards. The aims were to test the psychometric properties of the Swedish version of the Family Collaboration Scale (FCS), to investigate family members’ perception of collaboration with healthcare professionals on acute medical wards in Sweden and to compare the data with the corresponding Danish results. Three hundred and sixty family members of frail patients aged 65 or older from 13 acute medical wards answered the FCS questionnaire. In addition to descriptive statistics, psychometric methods were applied. The internal consistency of the Swedish version of the FCS was excellent, and confirmatory factor analysis revealed that its factor structure was equivalent to that of the original Danish FCS. The respondents’ ratings indicated better perceived collaboration than in the Danish case. Older age than 60 was associated with worse collaboration with healthcare professionals regarding Influence on discharge than younger respondents. Those with compulsory and health or nursing education showed better collaboration. The Swedish version of the FCS should be further evaluated for its retest reliability and as an outcome measure in intervention studies.

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Family caregivers' perceived level of collaboration with hospital nurses: A cross‐sectional study

Abstract: This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.

Cited by 8 publications

References 39 publications

Mothers’ perception of the care of newborn in the home environment

Mothers’ perception of the care of newborn in the home environment

Care quality and satisfaction at the cancer hospital – a questionnaire study of older patients with cancer and their family members

A Psychometric Evaluation of the Family Collaboration Scale and an Investigation of How the Close Family of Frail Older Patients Perceive the Collaboration with Healthcare Professionals on Acute Medical Wards at Hospitals in Sweden

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