Family caregiving

Qualls, Sara Honn

doi:10.1016/b978-0-12-815970-5.00014-0

Cited by 6 publications

(15 citation statements)

References 94 publications

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“…The importance of the extended family’s support cannot be overstated (Bailey & Gordon, 2016; Qualls, 2021). Many family carers report a deep sense of loneliness, exacerbated when relatives and friends do not acknowledge the losses they are experiencing (Blandin & Pepin, 2017; Bramboeck et al, 2020; Sanders et al, 2008).…”

Section: Cultivating Balanced Compassion: Practical Implicationsmentioning

confidence: 99%

“…Many family carers report a deep sense of loneliness, exacerbated when relatives and friends do not acknowledge the losses they are experiencing (Blandin & Pepin, 2017; Bramboeck et al, 2020; Sanders et al, 2008). Compassion fatigue may also be accentuated by family conflict over decisions made or not made, uncertainty, or past conflicts in the extended family (Qualls, 2021).…”

Section: Cultivating Balanced Compassion: Practical Implicationsmentioning

confidence: 99%

“…Family meetings can provide family members the opportunity to articulate their concerns, explore misconceptions and misunderstandings, and address relevant issues during periods of critical decision-making (Qualls, 2021). It is inevitable that family systems will become imbalanced when members are coping with the everchanging and complex nature of caregiving.…”

Section: Cultivating Balanced Compassion On the Family Levelmentioning

confidence: 99%

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Supporting dementia family carers in balancing compassion for others with compassion for self.

Tolmacz¹,

Pardess²

2022

Professional Psychology: Research and Practice

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The aging of the population is creating unprecedented challenges for family members who care for relatives with dementia. There is a pressing need to develop effective practices that can support family carers in sustaining and nourishing themselves while providing care for the family member with dementia. In this article, we offer an intersubjective framework for understanding compassion fatigue, and we map the factors that may promote or impede compassionate care in the context of family dementia care. We conclude with a discussion of the practical implications for clinical intervention for promoting balanced compassion and preventing compassion fatigue on three levels: the individual carer, the family, and the community. Public Significance StatementThis article offers an intersubjective framework for understanding factors that may promote or impede compassionate care in the context of family dementia care, which creates unprecedented challenges for family members. The authors conclude with practical implications for the next generation of practitioners to meet the challenges of supporting family dementia carers on the levels individual, the family, and the community.

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Section: Cultivating Balanced Compassion: Practical Implicationsmentioning

confidence: 99%

Section: Cultivating Balanced Compassion: Practical Implicationsmentioning

confidence: 99%

Section: Cultivating Balanced Compassion On the Family Levelmentioning

confidence: 99%

See 1 more Smart Citation

Supporting dementia family carers in balancing compassion for others with compassion for self.

Tolmacz¹,

Pardess²

2022

Professional Psychology: Research and Practice

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“…This increase has been more evident in Sweden compared to other Nordic countries (Szebehely and Meagher 2018 ). In caregiving studies, it is important to separate spouses from adult children, as they reflect fundamental differences in both the experiences and consequences of caregiving (Qualls 2021 ). Caregiving can be a positive practice; however, children providing intensive care more often tend to have poorer health, lower labour market participation and fewer financial resources (Bastawrous et al 2015 ; Szebehely et al 2014 ).…”

Section: Introductionmentioning

confidence: 99%

“…Inequalities in formal and informal care reception among older adults are well-established. However, it is also crucial to understand the overall distribution and possible subgroup differences in the caregiving of older parents by adult children (Qualls 2021 ; Tokunaga and Hashimoto 2017 ; Ulmanen and Szebehely 2015 ). Only then can we identify potentially vulnerable groups of adult children providing care and risking adverse health and financial outcomes and provide social policy measures against increasing inequalities in family caregiving.…”

Section: Introductionmentioning

confidence: 99%

Will your child take care of you in your old age? Unequal caregiving received by older parents from adult children in Sweden

et al. 2023

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Intergenerational family care provided to older parents by adult children is growing and differs based on gender and socioeconomic status. Few studies consider these elements in relation to both the parent and their adult child, and little is known about the number of care tasks received even though those providing intensive levels of care are at risk of experiencing adverse consequences in their lives. This study uses data from the nationally representative 2011 Swedish Panel Study of Living Conditions of the Oldest Old (SWEOLD) and includes child-specific information from parents aged 76 years and above. Analyses used ordinal logistic regression and are presented as average marginal effects and predictive margins. Results show that parents in need of care report that one-third of all adult children in the sample provide care to three out of five of them. The care is most often non-intensive, yet nearly one in ten of all children provide more intensive care of two or more tasks. When adjusting for dyad characteristics as well as geographic proximity, results show adult–child gender differences where parents receive more care from manual-working-class daughters than manual-working-class sons. Overall, manual-working-class daughters are most commonly reported as carers among adult children, and they are particularly overrepresented in providing intensive care. We conclude that gender and socioeconomic inequalities exist among care receivers’ adult children, even in a strong welfare state such as Sweden. Knowledge about levels and patterns of intergenerational care have important implications for how to reduce unequal caregiving.

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Global rural health disparities in Alzheimer's disease and related dementias: State of the science

Wiese,

Gibson,

Guest

et al. 2023

Alzheimer's & Dementia

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INTRODUCTIONIndividuals living in rural communities are at heightened risk for Alzheimer's disease and related dementias (ADRD), which parallels other persistent place‐based health disparities. Identifying multiple potentially modifiable risk factors specific to rural areas that contribute to ADRD is an essential first step in understanding the complex interplay between various barriers and facilitators.METHODSAn interdisciplinary, international group of ADRD researchers convened to address the overarching question of: “What can be done to begin minimizing the rural health disparities that contribute uniquely to ADRD?” In this state of the science appraisal, we explore what is known about the biological, behavioral, sociocultural, and environmental influences on ADRD disparities in rural settings.RESULTSA range of individual, interpersonal, and community factors were identified, including strengths of rural residents in facilitating healthy aging lifestyle interventions.DISCUSSIONA location dynamics model and ADRD‐focused future directions are offered for guiding rural practitioners, researchers, and policymakers in mitigating rural disparities.HIGHLIGHTS Rural residents face heightened Alzheimer's disease and related dementia (ADRD) risks and burdens due to health disparities. Defining the unique rural barriers and facilitators to cognitive health yields insight. The strengths and resilience of rural residents can mitigate ADRD‐related challenges. A novel “location dynamics” model guides assessment of rural‐specific ADRD issues.

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Family caregiving

Cited by 6 publications

References 94 publications

Supporting dementia family carers in balancing compassion for others with compassion for self.

Supporting dementia family carers in balancing compassion for others with compassion for self.

Will your child take care of you in your old age? Unequal caregiving received by older parents from adult children in Sweden

Global rural health disparities in Alzheimer's disease and related dementias: State of the science

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