Family carers' experience of caring for an older parent with severe and persistent mental illness

McCann, Terence V.; Bamberg, John; McCann, Flora

doi:10.1111/inm.12135

Cited by 66 publications

(65 citation statements)

References 37 publications

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“…Furthermore, accepting this destiny ameliorated chronic sorrow. Naming and exploring the purpose of imperfections has been shown to provide encouragement, satisfaction, and hope to sufferers . Researchers have suggested that helping sufferers adapt to culture‐focused grieving is preferable for motivating changes in their beliefs .…”

Section: Discussionmentioning

confidence: 99%

The chronic sorrow experiences of caregivers of clients with schizophrenia in Taiwan: A phenomenological study

Chang

Huang

Cheng

et al. 2017

Perspect Psychiatr Care

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Section: Discussionmentioning

confidence: 99%

The chronic sorrow experiences of caregivers of clients with schizophrenia in Taiwan: A phenomenological study

Chang

Huang

Cheng

et al. 2017

Perspect Psychiatr Care

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“…Their involvement with services is usually minimal, unplanned and unstructured, and constrained by confidentiality issues and service requirements [31]. AFMs frequently find that supporting a member with PSU has major detrimental effects on their own well-being and their coping resources are often exhausted [5], findings similar to those focusing on families of young people with first-episode psychosis [32] and older adults with mental health disorders [33]. Indeed, England, Kennedy and Horton [34] found that 32% of families report that anger, rage, aggression and violence by the person with PSU causes them the most concern, but often they do not seek external help.…”

Section: Introductionmentioning

confidence: 99%

Affected family members’ experience of, and coping with, aggression and violence within the context of problematic substance use: a qualitative study

et al. 2017

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BackgroundFamilies have an important role supporting a family member with problematic substance use (PSU), although this can often be challenging and confronting. Previous research has identified high rates of family aggression and violence within the context of PSU, although few studies have examined this issue from the perspective of affected family members (AFMs) supporting a member with PSU. The aims of the current study were to understand AFMs’ experience of aggression and violence while supporting a member with PSU, and to explicate the strategies they used to prevent and cope with this behaviour.MethodsSemi-structured, audio-recorded qualitative interviews were conducted with 31 AFMs from the state of Victoria in Australia. Interpretative Phenomenological Analysis was used to guide data collection and analysis.ResultsAlmost 70% of participants experienced PSU-related family aggression and/or violence. Two main themes and related sub-themes were abstracted from the data capturing their experiences of this behaviour and the strategies they used to try to prevent and cope in this situation. Aggression and/or violence were variable, changeable and unpredictable; and aggression and/or violence altering social interactions and family dynamics. As a consequence, it was upsetting, stressful and emotionally exhausting to AFMs. In response to this experience, and largely through trial and error, they used several direct strategies to try to prevent and cope with the behaviour; however, most continued to struggle in these circumstances. They also highlighted additional indirect measures, which, if adopted, would enhance their existing direct strategies.ConclusionsMore effective primary, secondary and tertiary preventive measures are needed to address family aggression and violence within the context of PSU. More support is needed for family members affected by PSU to enable them to ‘stand up to,’ to prevent and cope effectively with this behaviour, and to increase their help-seeking and access to specialist services and support groups. More appropriate policies and social services are needed to meet the needs of AFMs.

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“…Mental health nurses may be able to educate other nurses and clinicians in this regard, as they often have experience in supporting and helping to sustain carers by providing emotional support and by enhancing carers’ coping strategies (McCann et al . ).…”

Section: Discussionmentioning

confidence: 97%

Improving care planning and coordination for service users with medical co‐morbidity transitioning between tertiary medical and primary care services

Cranwell

Polacsek

McCann

2016

Psychiatric Ment Health Nurs

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This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes. Accessible summaryWhat is known on the subject?• Mental health service users with medical co-morbidity frequently experience difficulties accessing and receiving appropriate treatment in emergency departments.• Service users frequently experience fragmented care planning and coordinating between tertiary medical and primary care services.• Little is known about mental health nurses' perspectives about how to address these problems.What this paper adds to existing knowledge?• Emergency department clinicians' poor communication and negative attitudes have adverse effects on service users and the quality of care they receive.• The findings contribute to the international evidence about mental health nurses' perspectives of service users feeling confused and frustrated in this situation, and improving coordination and continuity of care, facilitating transitions and increasing family and caregiver participation.• Intervention studies are needed to evaluate if adoption of these measures leads to sustainable improvements in care planning and coordination, and how service users with medical co-morbidity are treated in emergency departments in particular.What are the implications for practice?• Effective planning and coordination of care are essential to enable smooth transitions between tertiary medical (emergency departments in particular) and primary care services for service users with medical co-morbidity.• Ongoing professional development education and support is needed for emergency department clinicians. There is also a need to develop an organized and systemic approach to improving service users' experience in emergency departments. AbstractIntroduction: Mental health service users with medical co-morbidity frequently experience difficulties accessing appropriate treatment in medical hospitals, and often there is poor collaboration within and between services. Little is known about mental health nurses' perspectives on how to address these problems. Aim: To explore mental health nurses' perspectives of the experience of service users with medical co-morbidity in tertiary medical services, and to identify how to improve care planning and coordination for service users transitioning between tertiary medical and primary care services. Method: Embedded within an experience-based

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Family carers' experience of caring for an older parent with severe and persistent mental illness

Cited by 66 publications

References 37 publications

The chronic sorrow experiences of caregivers of clients with schizophrenia in Taiwan: A phenomenological study

The chronic sorrow experiences of caregivers of clients with schizophrenia in Taiwan: A phenomenological study

Affected family members’ experience of, and coping with, aggression and violence within the context of problematic substance use: a qualitative study

Improving care planning and coordination for service users with medical co‐morbidity transitioning between tertiary medical and primary care services

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