Family-centered care for hospitalized children aged 0-12 years: a systematic review of qualitative studies

Abstract

had no easily accessible translation, and if they recruited subjects older than age 21. Study Participants & Setting: The target population included children with CP of all five GMFCS classification levels and any type of spasticity, ages 0-21 years. Materials/Methods: The initial search resulted in 280 potential articles, which were screened for the stated inclusion and exclusion criteria as well as for duplicates. Results: Fourteen articles satisfied the inclusion criteria. There were two case reports, one case series, one pilot study, three cohort studies, five quasi-experimental studies, and two ran-domized controlled trials. A total of 294 children with cere-bral palsy participated in these investigations. Sample size across the research studies varied from 1 to 46 children. The ages of the participants varied from 3 to 21 years old. Conclusions/Significance: The evidence suggests that aquatic therapy interventions and/or aquatic exercises are effective in the short term for improving gross movement and gait parameters as well as social function and self-esteem in children with CP ages 0-21, and that aquatic therapy or exercises are feasible , safe, and fun for this population. However, the overall body of evidence is inconclusive due to a lack of high-quality evidence, small sample sizes, and variability in intervention parameters (frequency, duration, intensity, etc.), severity of disease, and outcome measures. More research must be conducted with larger sample sizes, higher quality study design, and more consistent outcome measures to determine effective exercise parameters and to further support the success of aquatic exercises as a physical therapy intervention for this population.

Partnerships for safe care: A meta‐narrative of the experience for the parent of a child with Intellectual Disability in hospital

“…Reliance on parents compounded their existing burden and contributed to an overwhelming responsibility of caring for a child with ID, and similar findings have been described by others . The parental need for support, role negotiation and partnerships in care have been consistently reported in the paediatric healthcare literature across a variety of populations and settings .…”

“…Reliance on parents compounded their existing burden and contributed to an overwhelming responsibility of caring for a child with ID, and similar findings have been described by others . The parental need for support, role negotiation and partnerships in care have been consistently reported in the paediatric healthcare literature across a variety of populations and settings . Espezel and Canam (2003) note that it may be that current healthcare environments do not facilitate the parent‐nurse rapport and subsequent relationship development that precedes a perception of a partnership …”

What Is “Family-Centred Care”?

“…From our clinical practice and as we trawled the literature, we knew that there was a growing body of qualitative research on this topic and so we set up another JBI review assessing qualitative studies only [9]. We used the same tool for family-centredness [3] and JBI's tools for assessing the quality of these types of studies [7].…”

Parental involvement in decision‐making about their child’s health care at the hospital

“…This is in line with family‐centred care approaches, which expect parents to participate in partnership with HPs in the coproduction of children's health care (Smith, Swallow, & Coyne, ). Parents have valuable knowledge about their child and are important helpers in implementing their children's health care (Harrison, ; Watts et al, ). Increased parental involvement in DM about children's health care is expected to increase the individual customization of children's health care and thereby improve the quality of care and safety (Ministry of Health & Care services, ).…”