Family-centered care: Four decades of progress.

Abstract

Family-centered care is a framework for the delivery of healthcare that is creating change in healthcare policies, programs, facility design, day-to-day practices of individual practitioners, and professional education. This paper traces the history of family-centered care over the past 35 years. It presents the conceptual basis for familycentered care. It includes an overview of the origin, activities, and future directions of the Institute of Family-Centered Care, a non-profit organization founded in 1992 to advance the understanding and practice of family-centered care.

Patient- and Family-Centered Care and the Pediatrician's Role

“…Federal legislation of the late 1980s and 1990s, ‡ much of it targeted at children with special needs, provided additional validation of the importance of family-centered principles. 7,10 Family-centered care has long been a characteristic of an effective medical home. 25 Family Voices, founded in 1992, advocates for family-centered, community-based services for children with special health care needs.…”

“…Recognizing and building on the strengths of individual children and families and empowering them to discover their own strengths, build confidence, and participate in making choices and decisions about their health care. 7,[10][11][12] A self-assessment tool is available for families to evaluate whether the care they are receiving fits into the realm of family-centered care and also can be used by pediatricians to evaluate the care they deliver.…”

Testing the Feasibility of Skype and FaceTime Updates With Parents in the Neonatal Intensive Care Unit

“…[1][2][3][4] In pediatrics, the focus of FCC is to build trusting relationships between parents and the health care team by using 9 core principles (eg, inclusion of families in decisions about treatment and care, flexibility with rules or practices in order to help families with particular needs or values, and sharing honest information on an ongoing basis in ways that families find useful). 3,5,6 Although FCC is a vital component in providing high-quality care, implementation of the FCC model in clinical practice presents a challenge to health care professionals.…”

Implementation and Case-Study Results of Potentially Better Practices for Family-Centered Care: The Family-Centered Care Map

“…8,9 The Institute for Family-Centered Care has identified 8 core concepts of FCC: respect, choice, information, collaboration, strengths, support, empowerment, and flexibility. 10 In a previous Vermont Oxford Network (VON) collaborative, an exploratory group identified and studied 10 potentially better practices (PBPs) that merged core concepts of FCC with quality improvement techniques and developed a set of evaluation tools. 11 The "Family Matters" exploratory group came together in the Neonatal Intensive Care Quality Improvement Collaborative 2002 (NIC/Q 2002) with the goal of creating an FCC map to serve as a guide for coordinating and implementing practices that enhance the delivery of FCC.…”