Family-Centered Care in the Intensive CareUnit—What Does Best Practice Tell Us?

Ludmir, Jonathan; Netzer, Giora

doi:10.1055/s-0039-1697957

“…There is growing appreciation of models of neonatal care designed to engage and empower families as primary caregivers. [1][2][3][4] These models of family integrated care (FiCare) are associated with improved outcomes for patients, their families and service providers. 5 6 Unrestricted family access is a key component of FiCare.…”

Section: Introductionmentioning

confidence: 99%

Asynchronous video messaging promotes family involvement and mitigates separation in neonatal care

Kirolos

¹

,

Sutcliffe

²

,

Clausen

³

et al. 2020

Arch Dis Child Fetal Neonatal Ed

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ObjectiveTo evaluate the parent and staff experience of a secure video messaging service as a component of neonatal care.DesignMulticentre evaluation incorporating quantitative and qualitative items.SettingLevel II and level III UK neonatal units.PopulationFamilies of neonatal inpatients and neonatal staff.InterventionUse of a secure, cloud-based asynchronous video messaging service to send short messages from neonatal staff to families. Evaluation undertaken July–November 2019.Main outcome measuresParental experience, including anxiety, involvement in care, relationships between parents and staff, and breastmilk expression.ResultsIn pre-implementation surveys (n=41), families reported high levels of stress and anxiety and were receptive to use of the service. In post-implementation surveys (n=42), 88% perceived a benefit of the service on their neonatal experience. Families rated a positive impact of the service on anxiety, sleep, family involvement and relationships with staff. Qualitative responses indicated enhanced emotional closeness, increased involvement in care and a positive effect on breastmilk expression. Seventy-seven post-implementation staff surveys were also collected. Staff rated the service as easy to use, with minimal impact on workload. Seventy-one percent (n=55) felt the service had a positive impact on relationships with families. Staff identified the need to manage parental expectations in relation to the number of videos that could be sent.ConclusionsAsynchronous video messaging improves parental experience, emotional closeness to their baby and builds supportive relationships between families and staff. Asynchronous video supports models of family integrated care and can mitigate family separation, which could be particularly relevant during the COVID-19 pandemic.

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“…Child life services at pediatric hospitals help to prioritize a family-centered approach to patient care, which involves the heavy consideration of familial and sibling needs [22,23]. Some of these needs can be met by on-site childcare centres; for example, the practical need for child supervision, and the emotional need for respite for both parents and siblings [22,23]. Adult patients who are parents are also in need of instrumental support, particularly outpatients with frequent and variable appointment schedules, such as cancer patients.…”

Section: Discussionmentioning

confidence: 99%

Mapping Childcare Support for Patients at North American Hospitals and Cancer Centres: An Environmental Scan.

Preston

¹

,

MacDonald

²

,

Giuliani

³

et al. 2021

Preprint

0

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Purpose Approximately one quarter of cancer patients are parents to young children. One unique challenge faced by this patient group is the difficulty of accessing childcare support during medical appointments. Hospital-based childcare options could represent a solution to this problem, but to this point, no comprehensive scans have described existing on-site childcare centres. The purpose of this study is to identify and characterize on-site childcare services available to patients at North American hospitals. This information could inform the development of similar programs for cancer patients. Methods Using publicly available information, an environmental scan of the grey literature was conducted to investigate Canadian and American hospitals for the presence of childcare services. A standardized data collection tool was used to extract centre characteristics. Results Twenty-six childcare centres were identified across 161 hospitals. The majority of the centres were associated with pediatric hospitals (77%) and were located in the United States (69%). Only a single childcare centre was associated with a cancer hospital. All centres accommodated children between the ages of 3 and 8. Most centres were open for over 30 hours per week (77%) and were free of charge to users (89%). Other characteristics, including capacity and staffing, varied widely. Conclusions These results represent an inventory of patient-accessible, on-site childcare services currently available at North American hospitals. Cancer patients who are also parents may especially need this kind of support, as they are at high risk for financial toxicity.

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“…Vários estudos demonstraram que a satisfação dos familiares está associada a melhor comunicação e possibilidade de tirar dúvidas com a equipe médica, entender sobre o prognóstico do paciente, sobre os cuidados de enfermagem e sobre os equipamentos utilizados no suporte do paciente e no que eles podem auxiliar seu parente no horário da visita 32,[33][34][35] . Uma diretriz da Sociedade Americana de Terapia Intensiva destaca a importância do ambiente no conforto da família, por exemplo com criação um espaço familiar para descanso e alimentação e com isso uma melhora satisfação 35 .…”

Section: Satisfação Familiar Na Utiunclassified

“…Vários estudos demonstraram que a satisfação dos familiares está associada a melhor comunicação e possibilidade de tirar dúvidas com a equipe médica, entender sobre o prognóstico do paciente, sobre os cuidados de enfermagem e sobre os equipamentos utilizados no suporte do paciente e no que eles podem auxiliar seu parente no horário da visita 32,[33][34][35] . Uma diretriz da Sociedade Americana de Terapia Intensiva destaca a importância do ambiente no conforto da família, por exemplo com criação um espaço familiar para descanso e alimentação e com isso uma melhora satisfação 35 . Neste contexto, a arquitetura da UTI tem papel importante, em promover conforto e bem-estar às famílias e aos pacientes, um ambiente com menos interferências externas para que os familiares se sintam mais bem acolhidos e compreendidos durante a visita, além de comunicação efetiva com a equipe médica.…”

Section: Satisfação Familiar Na Utiunclassified

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Comparacão do grau de estresse, burnout, fadiga e satisfacão entre familiares e funcionários de UTI em relacão a unidades com leitos individuais versus unidades com múltiplos leitos

Matos¹

0

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Family-Centered Care in the Intensive CareUnit—What Does Best Practice Tell Us?

Cited by 22 publications

References 70 publications

Asynchronous video messaging promotes family involvement and mitigates separation in neonatal care

Asynchronous video messaging promotes family involvement and mitigates separation in neonatal care

Mapping Childcare Support for Patients at North American Hospitals and Cancer Centres: An Environmental Scan.

Comparacão do grau de estresse, burnout, fadiga e satisfacão entre familiares e funcionários de UTI em relacão a unidades com leitos individuais versus unidades com múltiplos leitos

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