Family-Centered practice in a Brazilian rehabilitation network service

Antunes, Ana Amélia Moraes; Vaz, Daniela Virgínia

doi:10.1016/j.bjpt.2021.02.003

Cited by 7 publications

(6 citation statements)

References 36 publications

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“…Based on the findings of this study, the best strategy for change was the improvement of staff and family knowledge. This is in agreement with the findings of previous studies ( 15 , 56 , 63 – 65 ). Our findings also highlighted the necessity of pre-education assessment of participants' educational needs, determination of the necessary resources and the dominant culture in the study setting, and continuous and specialized education in order to improve the perceived effectiveness of the educations and the action plan.…”

Section: Discussionsupporting

confidence: 94%

“…Findings showed lack of knowledge about the importance of FCC as a major barrier to successful FCC. This is in agreement with the findings of studies in Australia (8), Brazil (56), and Iran (15,33,57) which reported that parents and staff had limited knowledge about FCC provision in rehabilitation settings. Nonetheless, our findings revealed that some participants had limited adherence to the provided educations and resisted against change due to factors such as their overreliance on their previous experiences and routines.…”

Section: Discussionsupporting

confidence: 92%

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Improvement of family-centered care in the pediatric rehabilitation ward: a participatory action research

Nematifard,

Arsalani,

Nourozi Tabrizi

et al. 2024

Front. Pediatr.

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Background and aimThe improved life expectancy of children with disability in recent years has led to their increased request for using lifelong rehabilitation services. Family-centered care (FCC) is a model with potential positive effects on the rehabilitation of children with disability. The present study aimed at improving FCC in the pediatric rehabilitation ward.MethodsThis participatory action research was conducted in 2021–2023 in the pediatric rehabilitation ward of a hospital in Tehran, Iran. Participants were 16 rehabilitation staff and 48 mothers recruited via convenient and purposive sampling methods. Data were collected using semi-structured interviews, focus group discussions, and the 20-item and the 27-item Measures of the Processes Of Care (MPOC). Data were analyzed using qualitative content analysis as well as the Kolmogorov-Smirnov and the Wilcoxon's tests.FindingsThe major barrier to the implementation of FCC was staff and family limited knowledge about the importance and the benefits of FCC and the best facilitator to change was improvement of their knowledge. Therefore, an action plan based on staff and family education was designed and implemented. Participants' positive experiences of the plan were improvement of satisfaction, knowledge, collaboration, and coordination in care and their negative experiences were educational problems and dissatisfaction with the ward atmosphere. The strengths of the plan were adequate number of staff, long enough hospital stay of children, chronic course of disability, and mothers’ previous experiences. Its weaknesses were the long course of a single action plan cycle, exclusive focus on education, and the high risk of plan termination after the study. The practical problems of the study were also small physical space of the ward, transfer of some trained staff to other wards, and child discharge from the hospital.ConclusionStaff and family limited knowledge about the importance and the benefits of FCC is a major barrier to effective FCC. Continuous education as well as family and staff collaboration may improve FCC in pediatric rehabilitation ward.

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Section: Discussionsupporting

confidence: 94%

Section: Discussionsupporting

confidence: 92%

Improvement of family-centered care in the pediatric rehabilitation ward: a participatory action research

Nematifard,

Arsalani,

Nourozi Tabrizi

et al. 2024

Front. Pediatr.

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“…Embora o item Q11, "Preocupação dos fisioterapeutas em conhecer o contexto clínico e familiar da criança", da dimensão técnica, tenha sido avaliado positivamente por uma proporção de cuidadores próxima de 80% (75,6%), a percepção positiva não foi aceitável (p-valor<0,05) e, portanto, foi identificado como um aspecto que precisa ser melhorado, uma vez que cabe ao fisioterapeuta conhecer o ambiente e a rotina da criança em casa, de forma a promover a acessibilidade e a autonomia da criança com deficiência, para apoiar a sua inclusão nas atividades familiares e a participação da família na reabilitação da criança 2,7,[17][18][19] .…”

Section: Discussionunclassified

Percepção de cuidadores sobre a qualidade de serviços de Fisioterapia Neuropediátrica em Centros de reabilitação no estado da Paraíba, Brasil

Mélo,

Farias,

Neves

et al. 2023

SaudPesq

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This study evaluates the perception of caregivers of the quality of neuropediatric physiotherapy services offered at specialized rehabilitation centers (SRC) in Brazil. This is a cross-sectional, quantitative, evaluative study whose target population was caregivers of children in rehabilitation. The AQSF-Neuroped instrument was used to evaluate the quality of three SRC based on the perception of 320 caregivers. The one-proportion hypothesis test was used based on each AQSF-Neuroped item and dimension. The Weight of Evidence and Latent Class Analysis models were used to evaluate the influence of variables on the perception of quality. A mean overall quality score of 133±14 points indicated a positive perception of quality; however, there were aspects related to physical structure (Interpersonal Dimension) and access (Organizational Dimension II) that needed to be improved (p-values

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“…Finally, articles on the personcentered therapy developed by Carl Rogers were excluded because the articles took a therapeutic perspective on PCC, instead of a system-based perspective, which is of interest for this study. The selected literature comprises 29 research papers, 13,27,28,32,[38][39][40][41][42][43][44][45][46][47][48][49][50][51][52][53][54][55][56][57] two health policy documents, 26,58 and one conference abstract. 59 Most studies (n = 27) were published between 2013 and 2021.…”

Section: Descriptive Informationmentioning

confidence: 99%

“…Almost half of the articles (n = 15) were published by authors from Brazil, 38,39,41,42,44,45,47,[49][50][51][53][54][55]57,60 six were published by authors from Chile (two health policies, 26,58 four research articles 28,32,48 ), and five by authors from Mexico (one conference abstract, 59 four research articles 43,56,61 ). Four papers were published by authors from several Latin American countries, 13,27,40,62…”

Section: Descriptive Informationmentioning

confidence: 99%

Conceptualization of patient‐centered care in Latin America: A scoping review

Klimesch,

Martinez‐Pereira,

Topf

et al. 2023

Health Expectations

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IntroductionPatient‐centered care (PCC) has been declared as a desirable goal for health care in Latin American countries, but a coherent definition of what exactly PCC entails for clinical practice is missing. This article's aim was to identify how PCC is conceptualized in Latin American countries.MethodsScientific databases (MEDLINE, EMBASE, PsycINFO, CINAHL, Scielo, Scopus, Web of Science) and webpages of the ministries of health were searched, and experts were contacted for suggestions of literature. References were included if they contained one of a range of a priori defined keywords related to PCC in the title, were published between 2006 and 2021, and were carried out in or concerned Latin America. Definitions of PCC were extracted from the included articles and analyzed using deductive and inductive coding. Deductive coding was based on the integrative model of patient‐centeredness, which unites the definitions of PCC in the international literature (mainly North America and Europe) and proposes 16 dimensions describing PCC.ResultsThirty‐two articles were included in the analysis and about half of them were from Brazil. Numerous similarities were found between the integrative model of patient‐centeredness and the definitions of PCC given in the selected literature. The dimensions of the integrative model of patient‐centeredness that were least and most prominent in the literature were physical support and patient information, respectively. A differentiation between PCC and family‐centered care (FCC) was observed. Definitions of PCC and FCC as well as their cited references were diverse.ConclusionA considerable overlap between the conceptualization of PCC in Latin America and the integrative model of patient‐centeredness has been identified. However, there are substantial differences between countries in Latin America regarding the emphasis of research on PCC versus FCC and diverse conceptualizations of PCC and FCC exist.Patient ContributionThis scoping review takes the patient's perspective based on the integrative model of patient‐centeredness. Due to the study being a review, no patients, neither caregivers, nor members of the public, were involved.

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Family-Centered practice in a Brazilian rehabilitation network service

Cited by 7 publications

References 36 publications

Improvement of family-centered care in the pediatric rehabilitation ward: a participatory action research

Improvement of family-centered care in the pediatric rehabilitation ward: a participatory action research

Percepção de cuidadores sobre a qualidade de serviços de Fisioterapia Neuropediátrica em Centros de reabilitação no estado da Paraíba, Brasil

Conceptualization of patient‐centered care in Latin America: A scoping review

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