Family-centred care for hospitalised children aged 0-12 Years: A systematic review of quasi-experimental studies

Shields, Linda; Zhou, Huaqiong; Taylor, Marjory; Hunter, Judith; Munns, Ailsa; Watts, Robin

doi:10.11124/jbisrir-2012-32

Cited by 37 publications

(28 citation statements)

References 25 publications

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“…Next, we decided to cast our net more widely and so undertook a separate review of quasi-experimental studies of family-centred care, through the Joanna Briggs Institute (JBI) [6]. We used the same tool for family-centredness [3] and the quality assessment laid down by JBI [7].…”

Section: Does Fcc Work?mentioning

confidence: 99%

What Is “Family-Centred Care”?

Shields¹

2015

EJPCH

Self Cite

110

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Family-centred care is a ubiquitous term in paediatric health facilities. It means that an admitted child can never be treated as a single individual patient, that the family is the unit of care, as the parents and family are central to the child’s wellbeing, especially during traumatic experiences. There is no rigorous evidence that family-centred care works, but qualitative research is drawing out some grave concerns with how it is implemented. Part of the problem is that there are many descriptions of family-centred care, but few definitions, and some of its component parts may be in place in some health services without the whole model being in place. This causes confusion amongst health professionals and parents and children, and makes it impossible to test in a randomised controlled trial. This paper discusses these problems and suggests that a new model, child-centred care, may be a better model of care for children.

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Section: Does Fcc Work?mentioning

confidence: 99%

What Is “Family-Centred Care”?

Shields¹

2015

EJPCH

Self Cite

110

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“…Family-centred care is a ubiquitous model in paediatric health services across the world [1], but there is little sound evidence that it is effective [1][2][3]. While a wonderful ideal [4], concerns about its implementation occur where qualitative research shows problems that arise from ineffective application of its core tenets, such as the centrality of a child's parents in his or her care, or regard for the parent as the expert in knowledge of the child.…”

Section: Introductionmentioning

confidence: 99%

Measuring family-centred care: working with children and their parents in a Turkish hospital

Shields

Çavuşoğlu

Pars

et al. 2015

EJPCH

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Rationale, aims and objectives: Family-centred care is the model of care in most children’s hospitals, but is difficult to measure. This study examined health professionals’ attitudes to working with children and with parents in a Turkish hospital. It builds on previous studies, using the same questionnaire, to test a component of family-centred care. Method: The “Working with Families” questionnaire contains scores for working with children and parents and demographic questions. Nurses, doctors and allied health staff working with children in a Turkish paediatric hospital were asked to complete this anonymous questionnaire (response rate 91%). We used Wilcoxon signed rank test to compare the two scores; the influence of demographic characteristics was tested with ANOVA. Results: Participants (N=205) gave more positive mean scores for working with children (4.242, SD=0.53) than parents (2.26, SD=0.8) (p<0.05). Influencing factors were similar to other studies, except for participants having children of their own - those with children gave a less positive mean score for working with parents than working with children (p=0.003); holding a specialist paediatric qualification had a similar effect (p<0.001). Conclusion: Similarly to other studies in this series, health professionals were much more positive about working with children than parents, with much stronger differences. Questions about the applicability of family-centred care as a model of care in this Turkish hospital arise. Theoretically, if family-centred care was being implemented effectively, there would be no difference. Education about family-centred care is needed, as well as further research to investigate why these differences occur.

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“…A Cochrane systematic review, updated in 2012 with another update planned, found that no randomised controlled trials (RCTs) have been undertaken that have evaluated FCC 8. Similarly, a Joanna Briggs Institute review of quasiexperimental studies confirmed a lack of evidence about the effectiveness of FCC as a model of care for children in hospital 9. Although a second Joanna Briggs Institute review that evaluated qualitative studies found a growing evidence base about FCC, most worrying, the review highlighted that FCC is often misunderstood and is not implemented effectively 10…”

Section: Key Messages From the Twitter Chat (#Ebnjc)mentioning

confidence: 99%