Family‐centred health care for children with cerebral palsy

Shevell, Michael; Oskoui, Maryam; Wood, Ellen; Kirton, Adam; Rensburg, Esias van; Buckley, David; Ng, Pamela; Majnemer, Annette

doi:10.1111/dmcn.14053

Cited by 26 publications

(23 citation statements)

References 22 publications

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“…The family seeks the contribution of the health professionals to provide care and rehabilitation. In this perspective, rehabilitation nursing, which values family-centered care, highlighting their different needs and recognizing their individualities ( 21 ) , becomes promising, but little explored in the route of these children.…”

Section: Discussionmentioning

confidence: 99%

Seeking tirelessly for better health and life conditions for the child with myelomeningocele

Borges

Souza

et al. 2021

Rev. Latino-Am. Enfermagem

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Objective: to understand the experience of families in the care of children with myelomeningocele. Method: a qualitative research study, which adopted Symbolic Interactionism and Grounded Theory as its theoretical and methodological framework, and the semi-structured interview as a data collection instrument. Twenty-eight participants from thirteen families living in a municipality in the inland of São Paulo took part in the study. Results: the family tirelessly seeks better health and life conditions for the child with myelomeningocele; aiming at the child’s autonomy, it is mobilized to the necessary treatments, to learn the care, to adapt the routine, as well as to supply for all the child’s needs so that it reaches potential development, looking for a less dependent future with inclusion and social ascension. Conclusion: family nursing shows potential support in the face of myelomeningocele, due to its ability to apprehend the family system, evaluate it and enable intervention proposals in the care process. In this study, rehabilitation nursing was also emphasized, since it goes together with the child and the family who experience myelomeningocele.

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Section: Discussionmentioning

confidence: 99%

Seeking tirelessly for better health and life conditions for the child with myelomeningocele

Borges

Souza

et al. 2021

Rev. Latino-Am. Enfermagem

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“…It is observed that families who do not share the care of the child equally cannot provide enough coping power in the period from the emergence of problems to the solution process. This can be explained by the fact that all care-related responsibilities are placed on one person and therefore these person cannot provide and show problem solving skills (15,19).…”

Section: Discussionmentioning

confidence: 99%

Evaluation Of Family Functions Of Parents With Cerebral Palsy Children

Misyağci¹,

Büyükgönenç²

2021

EJOH

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Background: Family functions of families with children with cerebral palsy (CP) may be affected in to care burden directly.Objectives: In this study, it was aimed to evaluate the family functions of parents of children with cerebral palsy (CP).Methods: The sample of the descriptive study was made up of the parents of 118 children diagnosed with CP in Istanbul and Ankara provinces. All of the data obtained in the study were evaluated with SPSS 23.0 for Windows statistical package program.Results: The average scores of the parents who have children with CP who participated in the study on the Family Assessment Scale dimensions ranged from 1.62 ± 0.54 / 0.62 to 2.40 ± 0.58. Depending on the sociodemographic characteristics of the parents, the dimensions of the family assessment scale are related to the age, marital status, educational status, age of spouses, education status of spouses, employment status, income status, number of children, having another disabled child, sharing care, child; A significant correlation was found between the child's other health problems and school attendance, degree of cerebral palsy, time elapsed since diagnosis, and use of spasticity-reducing medication (p <.05). Conclusion:Nurses and health professionals should consider the child and the family as a whole while providing care, and should evaluate the functions of the family with all its sub-dimensions, considering that the problem in the family may also affect the child's care.

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“…Los padres, en cambio, articulan su implicación en el cuidado con su adecuación y una relación positiva con las enfermeras (21) . La participación de los padres en la atención es parte integrante de la atención en salud infantil e integra la filosofía de atención dominante y ampliamente aceptada como la más adecuada en pediatría (22) .…”

Section: Discussionunclassified

Estratégias para aumentar a satisfação com os cuidados de enfermagem da criança hospitalizada: painel delphi

Loureiro

Charepe

2021

Enf Global

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Introducción: La satisfacción con los cuidados de enfermería en el ámbito del niño hospitalizado está poco estudiada. La investigación se ha centrado en predictores y componentes de la satisfacción, y es fundamental identificar estrategias que la promuevan.Materiales y método: Se realizó un estudio transversal, observacional y exploratorio-descriptivo. Tiene como objetivo identificar las estrategias descritas por las enfermeras que contribuyan a incrementar la satisfacción de los niños en edad escolar y sus padres con la hospitalización. El panel delphi se utilizó como técnica de recolección de datos, y como técnicas de análisis de datos análisis de contenido (en la ronda 1) y estadística descriptiva (ronda 2). El estudio se aplicó entre noviembre de 2018 y febrero de 2019 a una muestra de 90 enfermeras pertenecientes a 6 instituciones de salud, después de obtener una validación positiva de los respectivos comités de ética.Resultados: Se obtuvo una tasa de respuesta del 52% (n = 47) en la ronda 1 y del 47% (n = 42) en la ronda 2. Se identificaron, en la ronda 1, en consenso en la ronda 2, 13 estrategias en relación con los niños que se dirigen principalmente a la transmisión de información, la participación familiar, el juego y el alivio del dolor. En cuanto a los padres, se identificaron 12 estrategias por consenso en la ronda 2.Discusión: La implicación familiar y la transmisión de información son áreas de intervención identificadas en ambos grupos.Conclusión: Fue posible investigar intervenciones de enfermería que pudieran promover un aumento en la satisfacción de niños y padres, enfocadas principalmente en la información y el apoyo y la participación familiar. Introduction: Satisfaction with nursing care in the area of hospitalized children is poorly studied. The investigation has been focused on satisfaction predictors and components therefore it is essential to identify strategies that promote satisfaction.Materials and method: A cross-sectional, observational and exploratory-descriptive study was carried out. It aims to identify the strategies described by nurses that contribute to increasing the satisfaction of school aged children and their parents with hospitalization. The delphi panel was used as a data collection technique and, as data analysis techniques, content analysis (in round 1) and descriptive statistics (round 2) were used. The study was applied between November 2018 and February 2019 to a sample of 90 nurses from 6 health institutions, after obtaining a positive feedback from the respective ethics commissions.Results: A response rate of 52% (n = 47) was obtained in round 1 and 47% (n = 42) in round 2. In round 1, 13 strategies were identified in relation to children, which reached consensus in round 2, being mainly directed to the transmission of information, family involvement, play and pain relief. Regarding parents, 12 strategies were identified by consensus in round 2. Discussion: Family involvement and the transmission of information are areas of intervention that have been identified in both groups.Conclusion: It was possible to determine nursing interventions that could promote an increase in the satisfaction of children and parents, focused primarily on information and family support and involvement. Introdução: A satisfação com cuidados de enfermagem, na área da criança hospitalizada, é pouco estudada. A investigação centra-se nos preditores e componentes da satisfação sendo essencial a identificação de estratégias que a promovam.Materiais e método: Efetivou-se um estudo de tipo transversal, observacional e exploratório-descritivo. Tem como objetivo identificar as estratégias descritas pelos enfermeiros que contribuem para o aumento da satisfação da criança em idade escolar e dos seus pais com a hospitalização. Utilizou-se enquanto técnica de recolha de dados o painel delphi e, como técnica de analise de dados, a análise de conteúdo (na ronda 1) e a estatística descritiva (ronda 2). O estudo foi aplicado entre novembro de 2018 e fevereiro de 2019 a uma amostra de 90 enfermeiros pertencentes a 6 instituições de saúde, após obtenção de parecer positivo das respetivas comissões de ética. Resultados: Obteve-se uma taxa de reposta de 52% (n=47) na ronda 1 e de 47% (n=42) na ronda 2. Foram identificadas, na ronda 1, e que obtiveram consenso na ronda 2, 13 estratégias em relação às crianças sendo principalmente direcionadas à transmissão de informação, envolvimento familiar, brincar e alívio da dor. Em relação aos pais foram identificadas com consenso 12 estratégias na ronda 2. Discussão: O envolvimento familiar e a transmissão da informação são áreas de intervenção que foram identificadas em ambos os grupos.Conclusão: Foi possível apurar intervenções de enfermagem passíveis de promover um aumento da satisfação das crianças e pais, focadas fundamentalmente na informação e no suporte e envolvimento familiar.

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Family‐centred health care for children with cerebral palsy

Cited by 26 publications

References 22 publications

Seeking tirelessly for better health and life conditions for the child with myelomeningocele

Seeking tirelessly for better health and life conditions for the child with myelomeningocele

Evaluation Of Family Functions Of Parents With Cerebral Palsy Children

Estratégias para aumentar a satisfação com os cuidados de enfermagem da criança hospitalizada: painel delphi

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