Family Conferences in Prenatal Palliative Care

Bernardes, Lisandra Stein; Jesus, Roberta Carolina de Almeida; Oliveira, Fernanda Figueiredo de; Benute, Gláucia Rosana Guerra; Gibelli, Maria Augusta Bento Cicaroni; Nascimento, Nathalia Bertolassi do; Bolibio, Renata; Barbosa, Tercilia Virginia Aparecida; Setubal, Maria Silvia Vellutini; Gomes, Ana Lúcia Araújo; Rocha, Luana Sarmento Neves da; Rosa, Gladys; Francisco, Rossana Pulcineli Vieira

doi:10.1089/jpm.2019.0579

Cited by 4 publications

(1 citation statement)

References 9 publications

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“…No Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo, os critérios de encaminhamento para o serviço de CPP são: gestantes de fetos com prognóstico indeterminado; gestantes de fetos com doença letal e que apresentem: doença materna que indique acompanhamento em centro terciário; doença fetal que indique investigação genética ou de a organização em relação aos cuidados a serem realizados durante o acompanhamento, os momentos durante a após o parto e a percepção das pacientes acerca das conferências familiares90 .Outra revisão retrospectiva dos registros médicos em prontuário, porém com um intervalo de 10 anos em um hospice perinatal, identificou 78 casos atendidos91 . Sobre o encaminhamento, 51% dos pacientes foram encaminhados pré-natal e 49% pós-natal.…”

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O processo do luto a partir do diagnóstico de anomalia fetal letal e da assistência em cuidado paliativo perinatal

Jesus¹

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O processo do luto a partir do diagnóstico de anomalia fetal letal e da assistência em cuidado paliativo perinatal

Jesus¹

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Perinatal Palliative Care: Additional Costs of an Interprofessional Service and Outcome of Pregnancies in a Cohort of 115 Referrals

Buchholtz

Fangmann

Siedentopf

et al. 2023

Journal of Palliative Medicine

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Pictures as mementos after perinatal death: a case study

Jesus¹,

Benute²,

Bertolassi

et al. 2022

Int J Palliat Nurs

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Background: The grieving process following perinatal loss caused by life-limiting conditions presents some particularities associated with the family's culture and the symbolic relationship with the deceased. Objective: To reflect on the symbolic meaning attributed to mementos, particularly pictures taken immediately after birth. Method: Case study–a qualitative analysis of the data collected through semidirected interviews. Results: Of the three women that took part in the study, one woman chose not to take a picture but opted to take home the hat with her son's name on it that was provided as a regular procedure for every birth at the maternity centre. During the interview, she questioned her decision. The two other women took pictures and still look at them affectionate. One of the women keeps the picture of her child in a shrine at home, thus attributing a symbolic religious meaning to the whole experience that alleviates her pain. Conclusion: The symbolic meaning attributed to pictures of the deceased can help parents process grief.

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Family Conferences in Prenatal Palliative Care

Cited by 4 publications

References 9 publications

O processo do luto a partir do diagnóstico de anomalia fetal letal e da assistência em cuidado paliativo perinatal

O processo do luto a partir do diagnóstico de anomalia fetal letal e da assistência em cuidado paliativo perinatal

Perinatal Palliative Care: Additional Costs of an Interprofessional Service and Outcome of Pregnancies in a Cohort of 115 Referrals

Pictures as mementos after perinatal death: a case study

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