Family conflict in dementia: prodigal sons and black sheep

Peisah, Carmelle; Brodaty, Henry; Quadrio, Carolyn

doi:10.1002/gps.1501

Cited by 83 publications

(47 citation statements)

References 29 publications

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“…Behavioural changes rather than the level of disability appear to be correlated with caregiver distress and burden in FTD [7] , although very few studies have been conducted. It is almost certain that other factors such as individual characteristics of caregivers including gender [10] , personal resources, family psychodynamics [11] , coping strategies and caregiver health are likely to play an important role in the genesis of stress, since these factors emerge repeatedly in studies of families coping with other dementias [12,13] .…”

Section: Introductionmentioning

confidence: 99%

Factors Underlying Caregiver Stress in Frontotemporal Dementia and Alzheimer’s Disease

Mioshi

Bristow

Cook

et al. 2009

Dement Geriatr Cogn Disord

122

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Background: Frontotemporal dementia (FTD) has devastating effects on patients and caregivers, yet the factors underlying caregiver stress are poorly understood. Methods: 108 caregivers (79 = FTD, 29 = Alzheimer’s disease) participated in a postal survey. Self-report measures of perceived stress, depression, social networks, as well as patient-based measures of behaviour change and activities of daily living were completed. Results: Depression was a cardinal feature in FTD caregivers, and it accounted for more than 58% of stress scores. Both depression and stress were significantly higher than in AD. Neither the severity of behaviour changes nor functional disability explained caregiver stress. Conclusion: Caregiver stress is a multidimensional construct, and FTD caregivers should receive more support than currently available. Depression plays a key role in coping ability.

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Section: Introductionmentioning

confidence: 99%

Factors Underlying Caregiver Stress in Frontotemporal Dementia and Alzheimer’s Disease

Mioshi

Bristow

Cook

et al. 2009

Dement Geriatr Cogn Disord

122

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“…Additionally, dementia patients often lack the recognition of their own illness at an early stage of the disease, which makes it more difficult for care providers to approach them [31,32,33,34]. Moreover, in spite of the expectation that the family is a basic resource to support the dementia patient, dementia can cause conflicts among family members and sometimes even lead to abuse [35,36,37]. To solve these problems, our analysis suggested that increasing awareness of the illness among citizens is particularly important, including warning people that anyone is susceptible to dementia, as was shown previously [38].…”

Section: Discussionmentioning

confidence: 99%

Present Status and Road Map to Achieve Inclusive and Holistic Care for Dementia in a Japanese Community: Analysis Using the Delphi Method

Takechi

Mōri

Hashimoto³

et al. 2014

Dement Geriatr Cogn Disord

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Background/Aims: Dementia is a priority issue in the public health realm. However, few reports address problems of dementia in the real world or provide comprehensive road maps to solve these problems. Methods: Nine groups of questions covering 4 topics were discussed using the Delphi method, relating to (1) current achievements and challenges regarding inclusive and holistic care in the community, (2) patients who are at a high risk of being excluded from care, (3) suggestions for a road map for the establishment of better and more inclusive medical and social care, and (4) unmet needs of patients with dementia. Results: In total, 477 opinions were obtained. Family issues, psychological/behavioral symptoms, and complications secondary to physical disorders are main factors for being excluded from care. To create a road map for care we have to address the topics of reaffirming care principles, multidisciplinary coalitions, and education for stakeholders. Conclusion: Further effective collaboration to promote dementia care is required.

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“…Older people with mental illness, particularly dementia, are vulnerable to influence by others by virtue of impaired judgement and inability to appraise others (Peisah et al, 2006). Sometimes they are persuaded to marry inappropriately by others who seek to gain by such unions, constituting a type of abuse that has hitherto received little attention in the literature.…”

Section: Introductionmentioning

confidence: 97%