Family Decision Making and Self-Determination Among Consumers With Schizophrenia in China: Cross-Cultural Implications

Chen, Ying; Lam, Chow S.; Deng, Hong; Corrigan, Patrick W.; Yau, Eva

doi:10.1176/appi.ps.201500255

Cited by 8 publications

(4 citation statements)

References 29 publications

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“…We found that individuals with mental illness would rather earn money through a menial job to help with their family's financial needs than participate in unpaid clubhouse psychosocial rehabilitation programs. This finding is congruent with established cultural findings in China that individuals make fewer autonomous decisions; family decision making is more prevalent, which is important for recovery programs to consider (35,36). Finally, we did not assess other types of psychosocial rehabilitation models, including workstations and farming communities.…”

Section: Resource Shortagessupporting

confidence: 77%

A Qualitative Study of Implementation Challenges of Mental Health Clubhouse Rehabilitation Services in China’s Hunan Province

Deng

Liu³

et al. 2019

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Psychosocial rehabilitation has been established as a critical component of client-centered recoveryoriented services for people with serious mental illness. Despite its importance, the implementation of mental health rehabilitation services in low-or middle-income countries has not been well studied. In this study, the authors document the regional challenges of planning and implementing mental health rehabilitation services in clubhouses in Hunan Province in the People's Republic of China. Methods: Participants were purposively selected and consisted of diverse stakeholders, including rehabilitation directors and psychiatric hospital leaders in Hunan Province, China. Information was collected from 33 individuals by using three focus groups, 23 semistructured interviews of key informants, and participant observation. Interview transcripts were coded and analyzed by using standard qualitative methods. Results: Implementation challenges were characterized by four themes: skepticism toward psychosocial rehabilitation services, resource shortage, insufficient system integration and incentives, and stigma of mental illness. • Major themes were skepticism about rehabilitation services, insufficient system integration and incentives, stigma of mental illness, and resource shortage.

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Section: Resource Shortagessupporting

confidence: 77%

A Qualitative Study of Implementation Challenges of Mental Health Clubhouse Rehabilitation Services in China’s Hunan Province

Deng

Liu³

et al. 2019

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“…Service providers described personal recovery from SMI as a cyclical, complex process that takes place over time. These findings are consistent with definitions of personal recovery as described in previous research conducted in HICs and LMICs (Chen et al, 2018 ; Güner, 2014 ; Leamy et al, 2011 ; Llewellyn-Beardsley et al, 2019 ; Mathew et al, 2018 ; Nxumalo Ngubane et al, 2019 ; Rashed, 2015 ; Slade & Longden, 2015 ; Soygür et al, 2017 ; Subandi, 2015 ). Although service providers in this study supported personal recovery as a concept, they did not clarify how mental health services at primary and tertiary levels of care could support personal recovery in practice.…”

Section: Discussionsupporting

confidence: 90%

“…An area of further consideration is the binary manner in which clinical and personal recovery is viewed. In South Africa, as in other LMIC countries, personal recovery starts once the MHSU is discharged back into their communities (Chen et al, 2018 ; Humphries et al, 2015 ; Nxumalo Ngubane et al, 2019 ; Rashed, 2015 ; Subandi, 2015 ), and not while they are in hospital.…”

Section: Discussionmentioning

confidence: 99%

Service Providers Perspectives on Personal Recovery from Severe Mental Illness in Cape Town, South Africa: A Qualitative Study

Gamieldien

Galvaan

Myers

et al. 2021

Community Ment Health J

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Severe mental illnesses (SMI) contribute significantly to the global burden of disease. In low-and-middle-income countries (LMICs), the treatment gap impacts the clinical and personal recovery of people living with an SMI. The drive to reduce this treatment gap in LMICs makes it pertinent to understand service providers’ views on recovery from SMI. Semi-structured interviews and focus groups with service providers from health services and non-profit organisations in the Western Cape Province, South Africa, were conducted in this qualitative study. Seventeen participants were purposively selected, and data were thematically analysed. Three major themes emerged: delineating recovery, available services supporting recovery from SMI, and facilitators and barriers to recovery at the service level. Health services favoured clinical over personal recovery. Participants thought that many service users’ personal recovery from SMI was hindered by intersecting social, economic, cultural, and political inequalities that extended beyond the influence of the health sector.

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“…The Consumer and Family Decision Making Scale (CFDMS) ( 33 ) was used to assess the opinions of patients on their daily autonomous decision-making. Chen Ying et al constructed the scale specifically for the Chinese population.…”

Section: Methodsmentioning

confidence: 99%

Disease information disclosure among patients with mental illness and their family members in China

Wang

An²,

Yang³

et al. 2023

Front. Psychiatry

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ObjectiveThe disclosure of mental illness is a first and crucial step in alleviating stigma and promoting mental recovery. However, at present, there is a lack of research on this subject in the Chinese context. Therefore, we conducted this survey among patients with mental illness and their family members and analyzed the influencing factors.MethodsQuestionnaires were distributed to qualified patients with mental illness and their family members, who were enrolled from the inpatient departments of two major mental health centers in China. Hierarchical linear regression analysis was used to evaluate the factors affecting the disclosure of disease information by patients with mental illness and their family members.ResultsA total of 153 patients and 159 family members were included. The percentages of patients and family members who intended to disclose disease information were 34.6 and 18.2%, respectively. Regarding the benefits of being out (BBO), marital status and the number of hospitalizations explained 13.1% of the variance, and stigma explained 4.3% of the variance. Regarding the reasons for staying in (RSI), marital status and family history of mental illness explained 14.4% of the variance, and stigma explained 14.8% of the variance. In the model predicting the influencing factors of family member disclosure, stigma was a predictor of both BBO and RSI, explaining 8.1 and 8.7% of the variance, respectively.ConclusionBoth patients and their families were more reluctant than willing to disclose. Marital status, number of hospitalizations and family history of mental illness were all influencing factors of patients’ intentions to disclose disease information. Stigma is closely related to disclosure intention and plays an important role in the disclosure intentions of patients and their families. This suggests that the disclosure of disease information is complex, and many factors need to be considered. Disclosure guidelines should be tailored to individuals.

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Family Decision Making and Self-Determination Among Consumers With Schizophrenia in China: Cross-Cultural Implications

Cited by 8 publications

References 29 publications

A Qualitative Study of Implementation Challenges of Mental Health Clubhouse Rehabilitation Services in China’s Hunan Province

A Qualitative Study of Implementation Challenges of Mental Health Clubhouse Rehabilitation Services in China’s Hunan Province

Service Providers Perspectives on Personal Recovery from Severe Mental Illness in Cape Town, South Africa: A Qualitative Study

Disease information disclosure among patients with mental illness and their family members in China

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