Family environment as perceived by children with a chronically ill parent

Peters, Lois C.; Esses, Lillian M.

doi:10.1016/0021-9681(85)90076-1

Cited by 58 publications

(31 citation statements)

References 22 publications

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“…Of the 18 eligible studies (see Table 1), locations of study participants were as follows: United States (n = 4) [12,15,16,18], Canada (n = 3) [13,17,22], Switzerland (n = 2, 1 of which also included Germany and Greece) [8,23], Greece (n = 2) [7,21], UK (n = 1) [14], Israel (n = 2) [24,25], Australia (n = 4) [5,10,19,20]. Cohort sizes ranged from 8 [10] to 281 [12], with a total of 2051 children or adolescents studied overall.…”

Section: Resultsmentioning

confidence: 99%

“…Four studies were both qualitative and cross-sectional in design [10,13,14,17]. Eight studies had a comparison group of children with ‘healthy’ parents [7,12,16,18,19,22,24,25]; the remainder had no control group.…”

Section: Resultsmentioning

confidence: 99%

“…Furthermore, adolescents with an MS parent exhibited a higher degree of responsibility and experienced more fear and anxiety compared with adolescents with healthy parents [24]. Higher conflict, lower cohesion and a general ‘lack of togetherness’ was reported by children with an MS parent compare with children of non-MS parents in one study [22] and higher levels of body concern, hostility constraint, interpersonal relations and a pattern of false maturity in another [12]. Both were of medium quality.…”

Section: Resultsmentioning

confidence: 99%

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Children and adolescents adjustment to parental multiple sclerosis: a systematic review

et al. 2014

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BackgroundFamilies are the primary source of support and care for most children. In Western societies, 4 to 12% of children live in households where a parent has a chronic illness. Exposure to early-life stressors, including parenting stress, parental depression and parental chronic disease could lead to harmful changes in children’s social, emotional or behavioural functioning. Little is known about the child living with a parent who has Multiple Sclerosis (MS). We systematically reviewed the literature regarding possible effects of having a parent with MS on the child’s or adolescent's psychosocial adjustment.MethodsThe following databases: MEDLINE, PsychInfo, CINAHL, EMBASE, Web of Knowledge, ERIC, and ProQuest Digital Dissertations were searched (from 1806 to December 2012). References from relevant articles were also manually searched. Selected studies were evaluated using the Graphic Appraisal Tool for Epidemiology (GATE).ResultsThe search yielded 3133 titles; 70 articles were selected for full text review. Eighteen studies met inclusion criteria. Fourteen studies employed quantitative techniques, of which 13 were cross-sectional and one was longitudinal. Four studies were both qualitative and cross-sectional in design. Only 2 of 18 studies were rated as having high methodological quality. Overall, eight studies reported that children of MS patients exhibited negative psychosocial traits compared with children of “healthy” parents. Specifically for adolescents, greater family responsibilities were linked to lower social relationships and higher distress. Three studies indicated that parental MS was associated with positive adjustment in children and adolescents, such as higher personal competence, while four found no statistically significant differences.ConclusionAlthough having a parent with MS was often reported to have negative psychosocial effects on children and adolescents, there was a lack of consensus and some positive aspects were also found. However, few high quality studies were identified which makes it difficult to draw evidence-based conclusions at this point. There are potentially important, long-term impacts of early life stressors, such as having a parent with a chronic disease, on subsequent life chances and health, and thus more extensive and higher quality research in this area is greatly needed.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Children and adolescents adjustment to parental multiple sclerosis: a systematic review

et al. 2014

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“…The extensive body of knowledge about chronic illness includes little specific to women (Deegan, 1985), and the expanding volume of women's health literature pays limited attention to the effects of motherhood on women's health (Boulton, 1983). What remains is a smattering of literature on aids and adaptations for pregnancy and childbirth for disabled women (Corbin, 1987;Shaul, Dowling, & Laden, 1985); a body of theoretical analysis on family dynamics when a mother is ill or incapacitated (Kopala & Egenes, 1984;Peters & Esses, 1985;Skipper, Fink, & Hallenbeck, 1968;Tilden & Weinert, 1987;Vargo, 1979); and an assortment of attempts to quantify the effects of a mother's illness on the behavioral and psychological variables in her children (Arnaud, 1959;Braham, Houser, Cline, & Posner, 1975;Romano, 1976). While it is assumed that chronically ill mothers require better supports and services than are commonly available (e.g.…”

Section: Mothers With Chronic Illnessmentioning

confidence: 99%

Mothers with chronic illness: A predicament of social construction

Thorne

1990

Health Care for Women International

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In the context of a larger qualitative study, a database including extensive interviews with a subset of sixteen chronically ill mothers was obtained. Secondary analysis revealed that the women's concerns about themselves and their children included issues of performance, availability, dependency, and socialization. Further, these women reported that the health care system seemed incapable of recognizing or accounting for the profound interrelationship between their mothering and their illness. Analysis of these findings in terms of the conflicting social obligations inherent in the roles of "mother" and of "chronically ill person" provides a means by which to understand the women's impressions that it was a contradiction in terms to be both an effective mother and a good patient.

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“…Research on the impact of MS has focused mainly on the family [13,[15][16][17][18][19][20][21]. But there are few indications how to evaluate families at risk.…”

Section: Introductionmentioning

confidence: 99%

Gender-Specific Differences in the Process of Coping in Families with a Parent Affected by a Chronic Somatic Disease (e.g. Multiple Sclerosis)

Steck¹,

Amsler²,

Kappos

et al. 2001

Psychopathology

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Based on the investigation of 52 families and their 87 offspring by means of semistructured interviews, we evaluated the coping abilities of the parent affected by multiple sclerosis (MS), the healthy parent and their children. The results show that the gender of the child significantly influences his or her coping behaviour. Daughters cope better than sons, independently of the gender of the MS-affected parent. Only the daughter’s coping is positively affected by age and disease variables. The correlation between the coping behaviour of parents and children is significant between children and their healthy parents and even stronger between children and healthy parents of the same gender. Healthy mothers and daughters cope better with the increasing disability of the father. This is not the case for healthy fathers and sons. Gender seems to be an important moderating factor in chronic parental disease and it has complex effects on the coping capacity of children.

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Family environment as perceived by children with a chronically ill parent

Cited by 58 publications

References 22 publications

Children and adolescents adjustment to parental multiple sclerosis: a systematic review

Children and adolescents adjustment to parental multiple sclerosis: a systematic review

Mothers with chronic illness: A predicament of social construction

Gender-Specific Differences in the Process of Coping in Families with a Parent Affected by a Chronic Somatic Disease (e.g. Multiple Sclerosis)

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