Family experience of living with children and adolescents with bladder and bowel dysfunction

Abstract

Objective: to understand the experience of families of living with children and adolescents with bladder and bowel dysfunction. Methods: a qualitative phenomenological interpretive research carried out through an in-depth open interview with parents of children and adolescents linked to Advanced Practice Nursing clinic in pediatric urology. Results: the following representative categories of the families’ experiences emerged: Knowledge and learning: building family knowledge; Living with the children’s BBD: symbolic representations; Management and adaptation to the children’s BBD: reorganizing family life. Final considerations: the experience of families related to positive and negative meanings, presence or absence of previous experiences, information gaps, learning process and access to specialized professional follow-up. Follow-up by nurses is important in pediatric urology care for the learning and consolidation of specific knowledge about bladder and bowel dysfunction.

Desenvolvimento e validação de material educativo para usuários infantis de cateterismo urinário intermitente e seus cuidadores

“…Nesse sentido, a disfunção urinária pode ser apresentada como um sintoma isolado (enurese monossintomática) ou acompanhada de outros sintomas, entre eles, a urgência miccional, o aumento ou diminuição da frequência urinária e alterações do jato urinário (Vasconcelos et al, 2013; Sociedade Brasileira de Pediatria, 2019). A DTUI é o termo que descreve os distúrbios nas fases da micção de armazenamento alteração da frequência urinária, incontinência, urgência e noctúria) ou de esvaziamento (hesitação, esforço, jato fraco ou intermitente e disúria), além de outros sintomas como manobras de contenção, sensação de esvaziamento incompleto, retenção urinária e gotejamento pós-miccional (Vasconcelos et al, 2013;Rodrigues, Martins, Silveira, 2020).…”

Prevalence of Urinary Symptoms and Predictive Factors in Kidney Transplant Patients in a Brazilian Center

“…The prevalence of lower urinary tract symptoms (LUTS) in the group of kidney transplant recipients is high and variable between studies, with rates reaching 80%³. Voiding dysfunction can be characterized by symptoms according to their relationship with the bladder storage phase (change in urinary frequency, incontinence, urgency and nocturia), bladder emptying phase (hesitation, straining, weak or intermittent stream and dysuria) or even with other symptoms (containment maneuvers, sensation of incomplete emptying, urinary retention, post-void dripping and urinary stream under pressure) 4 .…”