Family Experiences Prior to the Initiation of Care for First-Episode Psychosis: A Meta-Synthesis of Qualitative Studies

“…Families may play a key role during illness and recovery for youth with psychosis-spectrum symptoms. Families of youth at CHR report significant emotional distress in seeing a family member experience psychosis-spectrum symptoms and fears about how stigma might affect their family (Baron et al, 2019;Chen et al, 2016;Mui et al, 2019;Oluwoye et al, 2019). Studies have found that caregivers' stigma and concealment of their child's mental health problems are associated with more internalized stigma in their children, and stigma from family members is prevalent (Moses, 2010a(Moses, , 2010b.…”

Section: Stigma Family and Psychosis-spectrum Symptomsmentioning

confidence: 99%

Predictors of internalized mental health stigma in a help-seeking sample of youth: The roles of psychosis-spectrum symptoms and family functioning.

Akouri-Shan¹,

Jay²,

Redman³

et al. 2021

Journal of Abnormal Psychology

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Experiencing psychosis-spectrum symptoms is challenging to youth. Among many difficulties, internalized mental health stigma-the internalization of negative stereotypes-can lead to shame and withdrawal. The objective of this study was to better understand the correlates of internalized stigma among a clinical sample of youth with psychosis-spectrum symptoms. Participants (n = 66; 12-25 years old) were referred by community providers in Maryland, United States. Psychosis-spectrum symptoms were measured via the Structured Interview for Psychosis-Risk Syndromes (SIPS); family-functioning was measured via the Family Assessment Device. Interviewers rated participants' social/role functioning via the Global Functioning: Social and Role Scales. Internalized stigma was measured using the Internalized Stigma of Mental Illness (ISMI) total scale and subscales. The sample included 34 individu-Protocol Title: Maryland Early Intervention Program.

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“…Young adults may be torn between distress and dissatisfaction relating to their symptoms and functioning on the one hand, and mistrust of mental health providers, treatments, and labels on the other ( 10 ). Family members and other loved ones often endure confusion and distress as they endeavor to convince the individual with psychosis (IP) to accept and utilize psychiatric services ( 11 – 13 ).…”

Section: Introductionmentioning

confidence: 99%

Motivational Interviewing for Loved Ones in Early Psychosis: Development and Pilot Feasibility Trial of a Brief Psychoeducational Intervention for Caregivers

et al. 2021

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Treatment delay and non-adherence in first episode psychosis is a pressing public health problem. Ambivalence regarding psychiatric intervention and labeling among young people with psychosis is a contributing factor. For these individuals, caregivers often facilitate the pathway to care and support ongoing engagement and adherence. Caregivers describe distress and burden associated with this role. This manuscript describes the development and pilot feasibility testing of a motivational interviewing-derived communication training for caregivers of individuals with untreated or under-treated early course psychosis. Individuals with lived experience were consulted in the intervention development process. The training consisted of four 60-min sessions teaching the philosophy and basic skills of motivational interviewing as well as two brief practice calls. Feasibility was assessed with regard to study enrollment, retention, and completion. Satisfaction was assessed through the Client Satisfaction Questionnaire and qualitative feedback. Thirty-one caregivers consented to this pilot feasibility trial and participated via telehealth over the course of 5 months. Intervention completion and reported satisfaction were high, with 94% of consented participants completing at least three training sessions and 84% reporting that they would “definitely” recommend the training to a friend in similar circumstances. There were no between-clinician differences in MILO session attendance (F[2] = 0.53, p = 0.596) or satisfaction total scores (F[2] = 1.03, p = 0.371). Brief motivational interviewing skills training appears to be a feasible and valued intervention for caregivers of individuals with poorly managed early course psychosis.Clinical Trial Registration:ClinicalTrials.gov Identifier: NCT04010747

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Family Experiences Prior to the Initiation of Care for First-Episode Psychosis: A Meta-Synthesis of Qualitative Studies

Abstract: Stigma as a stressor and transition to schizophrenia after one year among young people at risk of psychosis.

Cited by 16 publications

References 60 publications

An Intersectional Approach to Ethnoracial Disparities in Pathways to Care Among Individuals With Psychosis in Coordinated Specialty Care

An Intersectional Approach to Ethnoracial Disparities in Pathways to Care Among Individuals With Psychosis in Coordinated Specialty Care

Predictors of internalized mental health stigma in a help-seeking sample of youth: The roles of psychosis-spectrum symptoms and family functioning.

Motivational Interviewing for Loved Ones in Early Psychosis: Development and Pilot Feasibility Trial of a Brief Psychoeducational Intervention for Caregivers

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