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Introduction. In modern global times, the answer to the question of how to live well is palliative care. It is a type of care that is dedicated to creating circumstances in which the process of dying, and death itself, becomes a dignified and acceptable moment. The palliative approach is based on empathy, understanding, preserving the dignity of the patient, open two-way communication, but also caring for the patient's family. Objective. This article comprises three aims. First aim refers to introducing our professional milieu to the basic concepts and philosophy of palliative care. Second aim points out to the importance of multidisciplinary and comprehensive care (physical, psycho-social and spiritual) in palliative care in general and third aim was to critically consider various obstacles and resistance that exists in our environment regarding the organization of palliative care, through the prism of various models of palliative care around the world, particularly in Europe and in the regional countries. To search the literature, we used the following databases: Web of Science, PubMed, SCIndeks, Google Scholar; by keywords: palliative care; neonatal palliative care; nursing; palliative pain; national palliative care program. We presented the analyzed data using a descriptive method. Conclusion. If the right to palliative care is seen as a special human right, it can be concluded that our country lags significantly behind developed countries in this regard. Hence, the preoccupation of the author in this paper is the theoretical foundation of palliative care, with special emphasis on the multidisciplinary team. The purpose of this paper is to point out the connection between palliative care and the phenomenon of quality of life, as something that is extremely important not only for each individual but for society as a whole.
Introduction. In modern global times, the answer to the question of how to live well is palliative care. It is a type of care that is dedicated to creating circumstances in which the process of dying, and death itself, becomes a dignified and acceptable moment. The palliative approach is based on empathy, understanding, preserving the dignity of the patient, open two-way communication, but also caring for the patient's family. Objective. This article comprises three aims. First aim refers to introducing our professional milieu to the basic concepts and philosophy of palliative care. Second aim points out to the importance of multidisciplinary and comprehensive care (physical, psycho-social and spiritual) in palliative care in general and third aim was to critically consider various obstacles and resistance that exists in our environment regarding the organization of palliative care, through the prism of various models of palliative care around the world, particularly in Europe and in the regional countries. To search the literature, we used the following databases: Web of Science, PubMed, SCIndeks, Google Scholar; by keywords: palliative care; neonatal palliative care; nursing; palliative pain; national palliative care program. We presented the analyzed data using a descriptive method. Conclusion. If the right to palliative care is seen as a special human right, it can be concluded that our country lags significantly behind developed countries in this regard. Hence, the preoccupation of the author in this paper is the theoretical foundation of palliative care, with special emphasis on the multidisciplinary team. The purpose of this paper is to point out the connection between palliative care and the phenomenon of quality of life, as something that is extremely important not only for each individual but for society as a whole.
Apstrakt: Ovaj članak obuhvata tri glavna cilja: Prvi cilj se odnosi na upoznavanje naše stručne javnosti sa osnovnim konceptima i filozofijom palijativnog zbrinjavanja dece i adolescenata. Drugi cilj podrazumeva ukazivanje na važnost multidisciplinarne i sveobuhvatne brige (fizičke, psiho-socijalne i duhovne) u palijativnom zbrinjavanju uopšte, a posebno u pedijatrijskoj populaciji. Treći cilj bio je da se kroz prizmu različitih modela palijativnog zbrinjavanja dece i adolescenata koji postoje u zemljama sveta, Evrope i regiona kritički osvrnemo na različite prepreke i otpore koji postoje u našoj sredini u vezi sa organizovanjem palijativnog zbrinjavanja dece i mladih. Palijativno zbrinjavanje dece predstavlja posebnu oblast, blisko povezanu sa palijativnim zbrinjavanjem odraslih. Ovaj pristup podrazumeva aktivno i sveobuhvatno zbrinjavanje tela, uma i duha deteta uz pružanje neophodne psiho-socijalne podrške i obolelom detetu i porodici tokom svih faza suočvanja sa neizlečivom bolešću, od postavljanja dijagnoze do kraja perioda žalosti zbog gubitka člana porodice. U širem smislu, palijativno zbrinjavanje može da poboljša kvalitet života i pacijenta i porodice, omogućavajući ublažavanje simptoma i kontrolu bola, adekvatnu psiho-socijalnu, psihoterapijsku i duhovnu podršku od momenta postavljanja dijagnoze do kraja života pacijenta, kao i psihološku proradu gubitka kod ožalošćenih članova porodice nakon smrti člana porodice. Palijativno zbrinjavanje dece može da bude sprovedeno u tzv. hospisima (posebnim kućama koje su uređene u skladu sa potrebama teško obolele dece i njihovih porodica), u ustanovama tercijarnog nivoa, u regionalnim centrima, kao i u domu deteta.
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