2022
DOI: 10.1177/02692163211068282
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Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review

Abstract: Background: Advance care planning is important for people with advanced cancer. Family involvement in advance care planning may be instrumental to achieving goal-concordant care since they frequently become surrogate decision-makers. Aim: To examine components, contexts, effects and linkages with intended outcomes of involving family members in advance care planning. Design: A mixed-methods systematic review, in which quantitative and qualitative data were extracted and synthesised using thematic synthesis lea… Show more

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Cited by 41 publications
(35 citation statements)
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“…Nonetheless, when facilitating participation in decision-making, some patients may not want their families to be involved. 31 Nurses need to understand the kind of participation the patient and family prefer and support them to participate in decision-making in a way that is preferable to each patient and family.…”
Section: Discussionmentioning
confidence: 99%
“…Nonetheless, when facilitating participation in decision-making, some patients may not want their families to be involved. 31 Nurses need to understand the kind of participation the patient and family prefer and support them to participate in decision-making in a way that is preferable to each patient and family.…”
Section: Discussionmentioning
confidence: 99%
“…This in turn leads to a high degree of anxiety and decision-making con ict for SDMs and more invasive care than expected by the patient (17,18). Therefore, to align treatment and care with the individual's wishes, it is vital that priorities for future treatment and care be communicated to family members and health care professionals prior to loss of mental capacity (19). ACP with a wide range of advantages, such as less moral distress of health care professionals, higher rates of patient ADs; reduced admissions, reduced intensive and unnecessary EOL treatment; more probability of patient death in the preselected place; greater satisfaction with the quality of care; and a lower risk of stress and depression in family members during bereavement (9,20).…”
Section: Introductionmentioning
confidence: 99%
“…However, professionals must experience conversations about ACP while identifying patients who wish to share their care decisions. 7,[9][10][11] Due to the reported benefits, 9,11 a growing interest in ACP has been noted in middle-income countries. However, short questionnaires to assess cancer patients' comprehension and decision-making capacity about PC and ACP have not yet been developed and validated.…”
Section: Introductionmentioning
confidence: 99%
“…However, professionals must experience conversations about ACP while identifying patients who wish to share their care decisions. 7,911…”
Section: Introductionmentioning
confidence: 99%
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