Family Involvement in Inpatient Care in Taiwan

Tzeng, Huey‐Ming; Yin, Chang-Yi

doi:10.1177/1054773808324655

Cited by 25 publications

(19 citation statements)

References 12 publications

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“…25 27 Importantly, the external validity of our study is limited to similarly developed Western nations as New Zealand. Our findings are less generalisable to countries with constrained healthcare resources (eg, developing nations, where access to care rather than patient choice determines healthcare delivery), or with significantly different cultural orientations (eg, familism in context of Confucian cultures such as Taiwan, where filial piety often precludes conservative care for end-stage renal disease (ESRD)) [29][30][31] .…”

Section: Discussionmentioning

confidence: 73%

To dialyse or delay: a qualitative study of older New Zealanders’ perceptions and experiences of decision-making, with stage 5 chronic kidney disease

et al. 2017

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BackgroundIssues related to renal replacement therapy in elderly people with end stage kidney disease (ESKD) are complex. There is inadequate empirical data related to: decision-making by older populations, treatment experiences, implications of dialysis treatment and treatment modality on quality of life, and how these link to expectations of ageing.Study populationParticipants for this study were selected from a larger quantitative study of dialysis and predialysis patients aged 65 years or older recruited from three nephrology services across New Zealand. All participants had reached chronic kidney disease (CKD) stage 5 and had undergone dialysis education but had not started dialysis or recently started dialysis within the past 6 months.MethodologySerial qualitative interviews were undertaken to explore the decision-making processes and subsequent treatment experiences of patients with ESKD.Analytical approach: A framework method guided the iterative process of analysis. Decision-making codes were generated within NVivo software and then compared with the body of the interviews.ResultsInterviews were undertaken with 17 participants. We observed that decision-making was often a fluid process, rather than occurring at a single point in time, and was heavily influenced by perceptions of oneself as becoming old, social circumstances, life events and health status.LimitationsThis study focuses on participants' experiences of decision-making about treatment and does not include perspectives of their nephrologists or other members of the nephrology team.ConclusionsOlder patients often delay dialysis as an act of self-efficacy. They often do not commit to a dialysis decision following predialysis education. Delaying decision-making and initiating dialysis were common. This was not seen by participants as a final decision about therapy. Predialysis care and education should be different for older patients, who will delay decision-making until the time of facing obvious uraemic symptoms, threatening blood tests or paternalistic guidance from their nephrologist.Trial registration numberAustralasian Clinical Trials Registry ACTRN 12611000024943; results.

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Section: Discussionmentioning

confidence: 73%

To dialyse or delay: a qualitative study of older New Zealanders’ perceptions and experiences of decision-making, with stage 5 chronic kidney disease

et al. 2017

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“…Increasing the patient’s costs and request for discharge before the determined time was another consequences of this research from viewpoint of families. According to other researchers increasing hospital costs associated with the presence of family provides the background for dissatisfaction and complaint (18, 29), and in some cases, leads to verbal and physical violence against nurses by patients and their family (30-33)…”

Section: Discussionmentioning

confidence: 99%

Family Participation in the Nursing Care of the Hospitalized Patients

Khosravan¹,

Mazlom²,

Abdollahzade³

et al. 2014

Iran Red Cres Med J

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Background:Few studies, especially in Iran, have assessed the status of family participation in the care of the hospitalized patients.Objectives:This study was conducted to assess why family members partake in caregiving of their patients in hospitals, the type of care that family provide, and the outcomes of the participation in the opinions of nurses and family members.Patients and Methods:In this comparative-descriptive study, data was collected by a two- version researcher-developed questionnaire, from 253 family members of patients by quota sampling method and 83 nurses by census sampling method from wards which had licensed for entering the families. Each questionnaire has three sections: the care needs of the patients which family participated to provide, the reasons to take part, and the outcomes of this collaborative care. The data was analyzed using descriptive statistics and also chi-squared test through SPSS software version 11.5.Results:The patients received more unskilled and non- professional nursing care from their family members. Most of the nurses and families believed that family participation is both voluntary and compulsory. The shortage of personnel in different categories of nursing and speeding up the patient-related affairs were the most important outcome of the participation, from the nurses’ viewpoint was speeding up the patient-related affairs and from the side of the family members, it was the patients’ feeling of satisfaction from the presence of one of their relatives beside them.Conclusions:Co understanding, skillfulness and competence of families and nurses in collaboration with each other were not good enough.Few studies, especially in Iran, have assessed the status of family participation in the care of the hospitalized patients.

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“…These results were related to the Chinese filial piety philosophy. Tzeng and Yin indicated that the motives of visiting a hospitalized loved one in Taiwan included fulfilling one of their responsibilities, coming to help voluntarily, showing filial piety for their parent and being afraid that the patient could not obtain appropriate care . The family involvement culture in Taiwan might have placed pressure on family caregivers to stay in the hospital or hire a labourer to take care of their relatives if they themselves were busy.…”

Section: Discussionmentioning

confidence: 99%

Use of Zarit Burden Interview in analysis of family caregivers' perception among Taiwanese caring with hospitalized relatives

Yeh

Chang

2014

Int J of Nursing Practice

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This study was conducted to examine the relationships between family caregivers' perception of caregiving and its influencing factors among Taiwanese with hospitalized relatives. The study used a cross-sectional and descriptive correlational design. A convenience sample of 200 primary caregivers of hospitalized patients diagnosed with cancer, stroke and chronic illness was recruited in a Taiwanese Medical Center; this focus was chosen because cancer, stroke and chronic illness generally require long term care. Data were collected by structured questionnaires. Pearson product-moment correlation and stepwise multiple regression analyses were used to analyse the results of this study. Family caregivers who lacked family support and whose patients' ADL (activities of daily living) dependency was increasing experienced a greater caregiving burden. Family caregivers who had better psychological well-being, better quality of relationship and more caregiving knowledge experienced a lower caregiving burden. Quality of relationship, lack of family support and patients' ADL dependency accounted for 43% of the Zarit Burden Interview variance. The results indicated that family caregivers' perception of caregiving included sacrifice, strain, embarrassment, anger and loss of control. It is vital for nurses to understand these caregiving perceptions and their related factors to provide a holistic care plan.

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Family Involvement in Inpatient Care in Taiwan

Cited by 25 publications

References 12 publications

To dialyse or delay: a qualitative study of older New Zealanders’ perceptions and experiences of decision-making, with stage 5 chronic kidney disease

To dialyse or delay: a qualitative study of older New Zealanders’ perceptions and experiences of decision-making, with stage 5 chronic kidney disease

Family Participation in the Nursing Care of the Hospitalized Patients

Use of Zarit Burden Interview in analysis of family caregivers' perception among Taiwanese caring with hospitalized relatives

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