Family members' perspective of family Resilience's risk factors in taking care of schizophrenia patients

Fitryasari, Rizki; Yusuf, Ah; Nursalam, Nursalam; Tristiana, Rr Dian; Nihayati, Hanik Endang

doi:10.1016/j.ijnss.2018.06.002

Cited by 59 publications

(68 citation statements)

References 29 publications

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“…These findings suggest that providing care to affected family members may result in physical, emotional, financial and social burdens that can diminish their (family) quality of life. This is supported by studies in other fields [65][66][67][68]. However, in the present study we found that most people receive social and physical support from their families.…”

Section: Plos Neglected Tropical Diseasessupporting

confidence: 90%

The impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life: A qualitative study in Northwest Ethiopia

Noordende

Aycheh

Schippers³

2020

PLoS Negl Trop Dis

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Background Several studies have shown that leprosy, podoconiosis and lymphatic filariasis impact individual quality of life. In contrast, family quality of life has not received as much attention despite evidence that families are also affected. This is especially relevant given the crucial role of the family in most societies around the world. This study looks at the impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life. Methodology The study used a cross-sectional design with a qualitative approach. Both semi-structured interviews and focus group discussions were conducted. Participants, persons affected and their family members, were selected by purposive sampling. Data were collected between August and November 2017 in Awi zone, Northwest Ethiopia and analysed by three independent researchers using open, inductive coding and content analysis. Results A total of 86 participants were included in this study: 56 participants in the in-depth interviews and 30 participants in the focus group discussions. We found that participation restrictions, reduced productivity and marginalisation were common. In addition, discrimination in the communities occurred often, often extending to family members of persons affected. Divorce and difficulties in finding a spouse were common for persons affected and their family members. Many persons affected reported mental health problems. While most people got social and physical support from their families, there were a few exceptions. In particular, persons with younger children seemed to lack social support. Having to provide for their affected family member sometimes caused stress, school dropouts and an additional workload. Financial problems and loss of livelihood were reported by almost all participants.

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Section: Plos Neglected Tropical Diseasessupporting

confidence: 90%

The impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life: A qualitative study in Northwest Ethiopia

Noordende

Aycheh

Schippers³

2020

PLoS Negl Trop Dis

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“…Another important implication for both policy and research emanates from the absence of the caregivers' voice in mental health advocacy. The family burden of managing schizophrenia has been widely reported [45,46,80], with families identifying finances and disruption of family functioning [97], confusion and not knowing about schizophrenia [98]. It was evident from our study and fieldwork experience, interviews and talking with relatives of participants and mental health stakeholders, that there was a lack of an advocacy body representing the needs and affairs of family and relatives caring for participants with schizophrenia.…”

Section: Implications For Policy Practice and Researchmentioning

confidence: 82%

An ethnography exploring the quality of life of people living with schizophrenia in Zimbabwe: Implications for health service policy and practice

Chidarikire¹,

Cross

Skinner

et al. 2019

Preprint

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BackgroundSchizophrenia is a complex and severe mental disorder affecting more than 20 million people worldwide. Although understanding peoples' experiences of living with an illness is core to assessment, planning and delivering culture specific health care, little is known about the experiences of people living with schizophrenia in resource-poor countries. This article reports on a study that explored the everyday lives of eighteen people living with schizophrenia in Zimbabwe and its impact on their quality of life. MethodsThis focused ethnography was conducted over a three-month period in 2015. Data were collected using semi-structured interviews, non-participant observational fieldwork, and the short form of the World Health Organization Quality of Life questionnaire. Interview data were digitally recorded, transcribed and translated from Shona (local language) to English. Descriptive statistics and nonparametric tests were used to analyse questionnaire data. Qualitative data were analysed thematically using an established framework. ResultsSurvey data indicate internal consistency in the psychological and social relationships domains and poor quality of life for people aged 20-40. The major factors related to quality of life were: age, gender, family dislocation: living with stigma and discrimination; and limited and variable access to treatment and support. Obtaining and paying for antipsychotic medications were challenging and female participants recounted experiencing gender-based stigma. ConclusionsFindings from our study suggest that age, gender, family dislocation, stigma, discrimination, and variable limited access to affordable medications and support undermine quality of life by disrupting participants' ability to function in socially acceptable ways, their sense of belonging and self-worth, and family, work and social relations. Strengthening access to mental health services, addressing the affordability and availability of medications and initiatives to alleviate stigma and promote a sense of 3 belonging, especially for younger adults and women should be a priority for government and health service providers. Further research on managing mental health issues such as schizophrenia in Zimbabwe, should focus on initiatives to strengthen quality of life. Background Mental disorders, including schizophrenia, account for 5 per cent of the total burden of disease, 19 per cent of all disability in Africa [1] and exert an enormous financial, caring and support burden on the individual, family and community [2, 3]. The majority of those seeking help are unable to access treatment [2, 4, 5]. The urgent need for mental health service improvement and provision in all sectors including at country level, has been widely reported [6-9]. However, there is a paucity of literature concerning the experiences and quality of life of people living with schizophrenia in Zimbabwe. Schizophrenia is a complex and debilitating mental disorder that affects a person's thinking, emotions, language, behaviour and sense of self....

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“…Our results also showed that the participants in the SZ sample reported more conflict in their sibling relationships than the participants drawn from the general population. The emotional burden, characterized by feelings of fear and impotence on the part of family members, can manifest itself as hostile and critical comments [60]. This hostility from close family and friends, reported in the literature in terms of expressed emotion [61,62], substantially increases patients' risk of relapse [63], and perhaps their suicidality.…”

Section: Conflict In Sibling Relationshipsmentioning

confidence: 99%

Comparison of relationships among French adult siblings with or without schizophrenia using the ASRQ-S: mediating effect on emotional distress

et al. 2020

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Background: Good sibling relationships in adulthood are known to be a protective factor for mental health. The present study examined and compared the relationships of siblings with either a healthy brother or sister or one experiencing schizophrenia. Methods: In the first phase, we ran a statistical comparison of the two sibling groups on the quality of their sibling relationships (warmth, conflict, and rivalry), emotional distress, and self-esteem. In the second phase, we looked at whether the quality of the sibling relationship modifies the impact of having a brother or sister with schizophrenia on emotional distress and self-esteem. Results: Results showed that sibling relationships in schizophrenia are less warm and are characterized by heightened rivalry and conflict. In addition, analysis revealed a mediating effect of sibling relationship on the emotional distress of siblings with a brother/sister diagnosed with schizophrenia. Conclusion: More needs to be done to enhance the mental health of adults who have a brother or sister with schizophrenia, notably via their sibling relationships.

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Family members' perspective of family Resilience's risk factors in taking care of schizophrenia patients

Cited by 59 publications

References 29 publications

The impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life: A qualitative study in Northwest Ethiopia

The impact of leprosy, podoconiosis and lymphatic filariasis on family quality of life: A qualitative study in Northwest Ethiopia

An ethnography exploring the quality of life of people living with schizophrenia in Zimbabwe: Implications for health service policy and practice

Comparison of relationships among French adult siblings with or without schizophrenia using the ASRQ-S: mediating effect on emotional distress

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