Family Members’ Responsibilities to Nursing Home Residents: “She Is the only Mother I Got”

Bern‐Klug, Mercedes; Forbes-Thompson, Sarah

doi:10.3928/00989134-20080201-02

Cited by 47 publications

(83 citation statements)

References 20 publications

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“…Findings from this study echo earlier findings from studies conducted in the USA (Bern‐Klug & Forbes‐Thompson, 2008; Chen et al., 2007; Curry, Hogstel, & Walker, 2007; Dempsey & Pruchno, 1993; Dijkstra, 2007; Dobbs & Montgomery, 2005; Gaugler, 2005, 2006; Gaugler et al., 2000, 2004). These studies found that after older adults had moved into a care institution, family members continued their involvement, sometimes providing direct care or instrumental care, as well as providing emotional and psychological care by making frequent visits and providing instrumental assistance.…”

Section: Discussionsupporting

confidence: 87%

“…In the opinion of family members, providing surveillance has become an important new responsibility of care. These duties include being on the look out for and exposing/reporting abuse, helping their elderly relatives understand and follow the nursing home's policies and regulations, maintaining harmonious staff–family relationships (Gaugler, 2005), supervising the quality of institutional services (Bern‐Klug & Forbes‐Thompson, 2008; Moss et al., 1993), and representing their elderly relative's interests and maintaining the family connections (Bern‐Klug & Forbes‐Thompson, 2008).…”

Section: Introductionmentioning

confidence: 99%

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The role of the family in institutional long‐term care: cultural management of filial piety in China

et al. 2011

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Zhan HJ, The role of the family in institutional long‐term care – cultural management of filial piety in China Int J Soc Welfare 2011: 20: S121–S134 © 2011 The Author(s), International Journal of Social Welfare © 2011 Blackwell Publishing Ltd and the International Journal of Social Welfare. This study used both qualitative and quantitative data collected in Nanjing, China, from 2008 to 2009, to examine the role of the family in long‐term institutional elder care. The qualitative data reported on four separate groups of family members and their elderly parents residing in institutions. The survey included information from 140 elder care institutions (over 95% of all urban elder care institutions) in Nanjing. The quantitative data provided a background from which to understand the qualitative responses of family members obtained during the focus group discussions. The qualitative data added a contextualized understanding of the reasons for institutional placement and aspects of the families' continued involvement in long‐term care. In conclusion, Chinese families, unlike families in the West, are currently struggling to manage the cultural demands of elder care together with the usual financial, caregiving, and emotional concerns. Managing stigma has been one of the adult children's prevalent themes in the transition from familial to institutional care.

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Section: Discussionsupporting

confidence: 87%

Section: Introductionmentioning

confidence: 99%

The role of the family in institutional long‐term care: cultural management of filial piety in China

et al. 2011

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“…LTC research indicates relationships are at the core of care, and improving outcomes for care recipients and formal and informal caregivers often is about building relationships and improving social relations (Holstein et al, 2011). Home care (Bourgeault, Atanackovic, Rashid, & Parpia, 2010; Dyck & England, 2012; Parks, 2003) and nursing home (e.g., Abrahamson, Suitor, & Pillemer, 2009; Bern-Klug & Forbes-Thompson, 2008; Gladstone & Wexler, 2002a, 2002b; Shield, 2003; Utley-Smith et al, 2009; Wilson, Davies, & Nolan, 2009) research bears this out. Across settings, it is essential to take a longer, evolutionary view of care and care arrangements.…”

Section: Discussionmentioning

confidence: 99%

Convoys of care: Theorizing intersections of formal and informal care

Kemp

Ball

Perkins

2013

Journal of Aging Studies

119

127

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Although most care to frail elders is provided informally, much of this care is paired with formal care services. Yet, common approaches to conceptualizing the formal–informal intersection often are static, do not consider self-care, and typically do not account for multi-level influences. In response, we introduce the “convoy of care” model as an alternative way to conceptualize the intersection and to theorize connections between care convoy properties and caregiver and recipient outcomes. The model draws on Kahn and Antonucci's (1980) convoy model of social relations, expanding it to include both formal and informal care providers and also incorporates theoretical and conceptual threads from life course, feminist gerontology, social ecology, and symbolic interactionist perspectives. This article synthesizes theoretical and empirical knowledge and demonstrates the convoy of care model in an increasingly popular long-term care setting, assisted living. We conceptualize care convoys as dynamic, evolving, person- and family-specific, and influenced by a host of multi-level factors. Care convoys have implications for older adults’ quality of care and ability to age in place, for job satisfaction and retention among formal caregivers, and for informal caregiver burden. The model moves beyond existing conceptual work to provide a comprehensive, multi-level, multi-factor framework that can be used to inform future research, including research in other care settings, and to spark further theoretical development.

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“…Lav tilfredshet med kontakten med personalet, liten innflytelse på pleien og lite meningsfull aktivisering av beboerne var funn i Berglunds studie (Berglund, 2007). Studier tyder på at flere pårørende ønsker å bidra ved å gi informasjon og sørge for kontinuitet, følge opp kvalitet i pleien og bidra til at hele gruppen beboere får det bedre (Bern-Klug & Forbes-Thompson, 2008;Davies & Nolan, 2006;Rognstad, Sagbakken & Nåden, 2015;Sandberg, Lundh & Nolan, 2001). Mange pårørende opplever likevel mangel på spesifikk og profesjonell informasjon basert på individuelle behov, og at det er pårørende selv som må ta initiativ til dette (Hertzberg et al, 2001;Norheim & Sommerseth, 2014).…”

Section: Bakgrunnunclassified

Pårørende en betinget ressurs? En kvalitativ studie av pårørende til langtidsbeboere i sykehjem sine erfaringer av egen rolle

Nakrem¹,

Hynne²

2017

TFO

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Family members often have roles as advocates and provide care for nursing home residents.Collaboration with families is an important part of a person-centred care and may increase the quality of care. The purpose of this study was to explore the experiences of long-term care residents' next-of-kin and how to encounter and support the relatives as collaborative partners and resources, in light of a person-centred care model. Qualitative method was used. Sixteen relatives were interviewed in three different focus groups. The findings indicate that the relatives had mixed feelings toward the nursing home and the role as next-of-kin. They felt a relief when the needs of their loved ones were taken care of, and had great confidence in the service when everything went well. However, they often felt insecurity when they experienced that quality of service was not good enough. This led to increased time spent in the nursing home and follow-up on care. Relatives experienced that they were either included and involved, or excluded and as outsiders. There is an interdependence between strengthening and involving families, and care that is person-centred and promotes residents' health in nursing homes.

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Family Members’ Responsibilities to Nursing Home Residents: “She Is the only Mother I Got”

Cited by 47 publications

References 20 publications

The role of the family in institutional long‐term care: cultural management of filial piety in China

The role of the family in institutional long‐term care: cultural management of filial piety in China

Convoys of care: Theorizing intersections of formal and informal care

Pårørende en betinget ressurs? En kvalitativ studie av pårørende til langtidsbeboere i sykehjem sine erfaringer av egen rolle

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