Family needs in caregivers of individuals with traumatic brain injury from Colombia, South America

Abstract

Family needs in caregivers of individuals with TBI from Colombia are similar, but more likely to be unmet, than those reported in previous studies. Interventions designed to meet family caregivers' needs in these areas should be implemented in Colombia.

Factors related to caregiving for individuals with spinal cord injury compared to caregiving for individuals with other neurologic conditions

“…care. The range reported by our sample was slightly lower than recently reported estimates of time spent providing informal care to persons with SCI (about 80 hours per week, on average); however, the large corresponding standard deviation 20 suggests that high variability of time spent providing informal care is not uncommon within this cohort. Providing informal care may make it difficult for caregivers to balance other aspects of their lives.…”

“…27 The current literature suggests that caregivers of individuals with SCI are likely to suffer from several negative mental health outcomes such as depression, anxiety, burden, and stress. 18,20,[28][29][30] Similarly, poor outcomes have been reported among caregivers of other neurological injury groups that have many physical needs and/or mobility limitations, such as TBI. 31 Our findings suggest that in terms of mental health status, perceived social/emotional support, and satisfaction with life, caregivers of persons with SCI are similar to other caregivers of neurological disorders.…”

Evaluación de las necesidades de los familiares de personas afectadas de Daño Cerebral Adquirido mediante el Cuestionario de Necesidades Familiares.

“…Estas necesidades coinciden en general con las necesidades más frecuentemente percibidas como importantes en otros estudios previos (Kreutzer et al, 1994;Witol et al, 1996), sugiriendo la equivalencia de dichas necesidades en diferentes culturas. Por ejemplo, Arango-Lasprilla et al (2010) han evaluado las necesidades de cuidadores de personas con un DCA en Colombia y confirman que las necesidades de los familiares colombianos son similares a las obtenidas en los estudios previos anglosajones, con la diferencia de que tienden a estar menos cubiertas.…”

Traumatic brain injury, the hidden pandemic: A focused response to family and patient experiences and needs

“…[12] Studies (mainly in developed countries) that have looked at families' needs (both met and unmet) and the problems they face in relation to TBI have identified high levels of stress, lack of education regarding TBI, lack of information on how to prepare for the future, behavioural problems and prob lems at school on the part of the TBI survivor, and survivors' loss of inter est in activities, anxiety, memory problems and aggressive tempera ment. [12][13][14][15][16] Commonly reported needs, which like the reported problems can change over time, include the need for social/instrumental care, emotional care and healthcare; the need for professional and financial support and information; the need for access to relevant information regarding TBI and its consequences; and the need to be actively involved with the care of the TBI survivor. [12][13][14][15] Successful TBI support will not only benefit survivors and their family units, but can also contribute towards a reduction in future violent acts perpetrated by TBI survivors.…”

“…[12][13][14][15][16] Commonly reported needs, which like the reported problems can change over time, include the need for social/instrumental care, emotional care and healthcare; the need for professional and financial support and information; the need for access to relevant information regarding TBI and its consequences; and the need to be actively involved with the care of the TBI survivor. [12][13][14][15] Successful TBI support will not only benefit survivors and their family units, but can also contribute towards a reduction in future violent acts perpetrated by TBI survivors. In SA, as in many other parts of the world, inadequate information and support, along with the lack of appropriate rehabilitation facilities, places a massive care burden on unprepared family members and community care workers.…”