Family needs of parents of children and youth with cerebral palsy

Palisano, Robert J.; Almarsi, N.; Chiarello, Lisa A.; Orlin, Margo; Bagley, Anita; Maggs, Jill

doi:10.1111/j.1365-2214.2009.01030.x

Cited by 126 publications

(175 citation statements)

References 34 publications

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“…Consistent with earlier findings [6,15], high percentage of parents in our sample did express the need for community and financial resources. Most respondents said that they need financial aid to pay for treatment and care services, as well as to purchase things that are necessary for the child.…”

Section: Discussionsupporting

confidence: 81%

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Predictors of needs for community and financial resources for families of pre-school children with cerebral palsy

Bertule

Vētra

2016

SHS Web Conf.

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Abstract. An understanding of predictors of family needs for the families of preschool children with cerebral palsy (CP) is important for provision of efficient and cost-effective services. The aim of this study was to identify the characteristics of children, families and services that are risk factors to meeting family needs for community and financial resources. 234 parents of pre-school children with CP completed a modified version of the Family Needs Survey (FNS), the Measure of Processes of Care (MPOC-20), and a demographic questionnaire. The gross motor function level and communication function level of children were classified on the basis of the Gross Motor Function Classification System (GMFCS) and the Communication Function Classification System (CFCS) respectively. Two hierarchical multiple regression models were generated to determine the predictors of unmet family needs. The socialisation and communication skills of children, as well as caregiver employment and family income levels were significant predictors of family needs for community resources (adjusted R2=0.44). Significant risk factors in terms of family needs for financial resources included the child's gross motor limitations, caregiver employment, low levels of family income and no ability to receive services on the basis of enabling and partnership principles (adjusted R2=0.51). A child's limitations in terms of communication, gross motor functions and socialisation, as well as the socioeconomic status of the child's family, must be taken into account when planning services for families with preschool children with CP.

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Section: Discussionsupporting

confidence: 81%

“…Such families require various kinds of information, community and financial support, as well as social support [4][5][6][7][8]. Identification of the specific needs for…”

Section: Introductionmentioning

confidence: 99%

Predictors of needs for community and financial resources for families of pre-school children with cerebral palsy

Bertule

Vētra

2016

SHS Web Conf.

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“…Although some researchers have reported that having a child with developmental disability may have a positive impact on family functioning [1][2][3], the fact is that parents of children with disabilities are more likely to need information about the condition of their children, treatment options, and available services [4][5][6][7]. Such families also require additional support, community services [6,8], and respite care [9].…”

Section: Introductionmentioning

confidence: 94%

The family needs of parents of preschool children with cerebral palsy: The impact of child's gross motor and communications functions

Bertule

Vētra²

2014

Medicina

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“…Our findings were consistent with several studies. [8,14,15,[22][23][24] Disabilities related to neurodegenerative disorders were more common in the youngest age group. When prevelance of cardiovascular diseases was compared, it was seen that, cardiovascular diseases were more widespread among older and female patient groups.…”

Section: Discussionmentioning

confidence: 99%

Analyzes of health profiles of patients receiving home health care services over last five years in Diyarbakir, Turkey

Gümüş

Sarıbaş

2016

JHA

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Objective: To determine the health profiles of patients who have been delivered home health care services by public hospitals in over the last five years. Methods: Data which were recorded by the Ministry of Health and the Diyarbakır Directorate of Health Services had been provided from 1,826 patients from three city center and five district hospitals located in Diyarbakir, Turkey. Results: Of 1,826 patients, 989 (54%) were female and 837 (46%) were male. The patients were divided into three age groups: 0-18 years 467 (25%), 19-64 years 511 (28%) and +65 years 848 (47%). There were more female patients in +65 age group and male in 0-18 age group (χ 2 = 89.923, p < .001). In 2015, there was an increase in the number of people who received services in all age groups (χ 2 = 164.344, p < .001). It was found that neurodegenerative diseases were more widespread in +65 age group (χ 2 = 44.823, p < .001). Neurogenetic dieases were more seen in the 0-18 age group (χ 2 = 97.800, p < .001). In the +65 age group, musculoskeletal (χ 2 = 16.037, p < .001) and respiratory diseases (χ 2 = 6.054, p < .05) were detected to be more widespread. There were no significant sex-based differences between the years involved (χ 2 = 2.246, p > .05). Neurodegenerative diseases (χ 2 = 4.07, p < .05), neurogenetic diseases (χ 2 = 6.043, p < .05) and respiratory diseases (χ 2 = 5.254, p < .05) were determined to be more widespread in male patients. Musculoskeletal (χ 2 = 17.943, p < .001)and cardiovascular diseases (χ 2 = 11.994, p < .001) were seen more in female groups. Conclusions: Over the last five years, there has been an increase in the utilization of home health care services. Policy legislation for health care services to be provided at home is generating succesful results.

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Family needs of parents of children and youth with cerebral palsy

Cited by 126 publications

References 34 publications

Predictors of needs for community and financial resources for families of pre-school children with cerebral palsy

Predictors of needs for community and financial resources for families of pre-school children with cerebral palsy

The family needs of parents of preschool children with cerebral palsy: The impact of child's gross motor and communications functions

Analyzes of health profiles of patients receiving home health care services over last five years in Diyarbakir, Turkey

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