Family Partnerships, Palliative Care and End of Life

Brent, Louise; Santy‐Tomlinson, Julie; Hertz, Karen

doi:10.1007/978-3-319-76681-2_11

Cited by 7 publications

(6 citation statements)

References 7 publications

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“…Families play a crucial role in EOL care, often providing support and decision-making. [38][39][40] Lack of preparation and support may contribute to their struggles. The findings underscore the need for better support for family caregivers.…”

Section: Discussionmentioning

confidence: 99%

A Qualitative Study of the Ethical Issues Encountered at End-of-life Care at a University Teaching Hospital in Nigeria

Udeh,

Ngozi,

Ezeome

2024

Preprint

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Background: End-of-life (EOL) care involves providing quality medical attention to the dying patient. It is fraught with some ethical challenges, often under-explored in African settings. This communication presents a qualitative analysis of ethical issues encountered by caregivers and their patients who are receiving end-of-life care in a teaching hospital in Nigeria. Methods: Ethical issues in EOL care encountered by 40 people (dying patients, their families, nurses, and doctors) at the University of Nigeria Teaching Hospital, Enugu (UNTH-E) Enugu State, Nigeria was explored over two months. The Participants socio-demographic data was analyzed using descriptive statistics, while qualitative data was analyzed using a thematic framework. The coding of transcripts was done with NVivo 12 software. Results: All participant groups encountered commonly reported ethical challenges in end-of-life (EOL) care, including issues of medical futility, treatment refusal, truthful disclosures, families requesting that a competent patient not be informed about their condition, confidentiality, limiting or withdrawing a treatment, limited or insufficient pain management, conflicting interests in care, an unfair financial burden without the patient consent, and an unfair burden on the healthcare system. Additionally, the uncommon issues included the patient unwillingness to discussions about their terminal status; families withdrawing due care and support prematurely, and delayed referrals. Conclusion: Ethical issues are commonly encountered in caring for the patient at EOL in the Nigerian environment notwithstanding the paucity of literature on them. This underscores the importance of adopting known preventive measures to eliminate or minimize these issues.

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Section: Discussionmentioning

confidence: 99%

A Qualitative Study of the Ethical Issues Encountered at End-of-life Care at a University Teaching Hospital in Nigeria

Udeh,

Ngozi,

Ezeome

2024

Preprint

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“…During care, various communication problems can arise between patients and nurses. Communication and collaboration with families can be central to achieving high-quality care, communicate with patients and good patient outcomes (Brent et al., 2018).…”

Section: Discussionmentioning

confidence: 99%

A Phenomenological Analysis of Experiences and Practices of Nurses Providing Palliative and End of Life Care

Yılmaz

Düzgün

et al. 2021

Omega (Westport)

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The aim of this study was to describe the experiences and practices of nurses providing palliative and end of life care. The study was conducted in the palliative care unit of a territory hospital in Turkey. The sample consisted of 11 nurses who had been working as palliative care nurses for at least one year. The face to face interview method was used to collect data, with a semi-structured in-depth individual interview. 5 main themes and 24 sub-themes were emerged in relation to the experiences and practices of the nurses. The majority of participant nurses pointed that inadequacy in the number of nurses, secondary nursing care activities, refusal of treatment, cultural and ethical problems were barriers in the provision of nursing care. They frequently experienced ethical issues when caring for end of life patients, and for this reason they felt the need for ethics counselling which they could consult.

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“…Comfort is an important need in palliative care, and patients and their families also refer to it (Brent et al., 2018). Patients and their families receiving palliative care often experience physical, psycho-spiritual, socio-cultural, and environmental discomfort (Nuraini et al., 2017).…”

Section: Discussionmentioning

confidence: 99%

Comfort Level in Caregivers of Palliative Care Patients and Affecting Factors: What Should We Know?

2021

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Caregivers are an important source of support for patients in palliative care. Comfort is an important concept in nursing care for both patients and their families, and nurses aim to increase comfort. The aim of the study was to determine the comfort level and influencing factors in caregivers of palliative care patients. The research sample consisted of 102 caregivers related to palliative care patients. The data were obtained with an Individual Information Form, the Edmonton Symptom Assessment Scale (ESAS) and the End of Life Comfort Scale (Caregiver/Family). The study was conducted in the palliative care clinic of Aksaray University Training and Research Hospital between October 2018 and April 2019. There was a significant relationship between the total comfort score of the caregivers and the patient's performance status, the caregivers' age, their economic situation, the length of the caregiving period and receiving help in care (social support) ( p < 0.05). Providing comfort is an important function and challenge for holistic nursing care, as comfort is a lifelong need in health and disease. Caregivers in the risk group should be aware of this issue and necessary precautions should be taken.

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Family Partnerships, Palliative Care and End of Life

Cited by 7 publications

References 7 publications

A Qualitative Study of the Ethical Issues Encountered at End-of-life Care at a University Teaching Hospital in Nigeria

A Qualitative Study of the Ethical Issues Encountered at End-of-life Care at a University Teaching Hospital in Nigeria

A Phenomenological Analysis of Experiences and Practices of Nurses Providing Palliative and End of Life Care

Comfort Level in Caregivers of Palliative Care Patients and Affecting Factors: What Should We Know?

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