Family Quality of Life and Partnership for Families of Students With Deaf-Blindness

Kyzar, Kathleen; Brady, Sara E.; Summers, Jean Ann; Turnbull, Ann P.

doi:10.1177/0741932518781946

Cited by 14 publications

(15 citation statements)

References 30 publications

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“…of the time management skills required for success. The study results were consistent with those of White ( 2014) (Kyzar et al, (2018).…”

Section: Discussionsupporting

confidence: 92%

“…The results of the study confirmed the validity of the first hypothesis of the study, as it proved the effectiveness of the family counseling program in improving the meaning of life for deaf-blind children, as the results confirmed the existence of statistically significant differences between the average of the previous and subsequent measurements of the experimental group on the meaning of life scale of deaf-blind children in favor of the dimensional scale. The results of the study agree with those of: Frederickson and Turner (2003), Kyzar (2010), Gaspar et al (2017), (Kyzar et al, 2018), Wolsey (2017), Sayed (2015), Ezzat (2010)and Abdul Hafith (2008). Many studies have found the effectiveness of a training program to develop daily life skills for the deaf-blind children.…”

Section: Discussionsupporting

confidence: 90%

“…Several studies confirmed the importance of focusing on improving the life quality of deaf blind children including the work of Dammeyer (2012)andWhite (2014. On the other hand, the studies of Kyzar, Brady, Summers and Turnbull (2018) and Roy, McVillly and Crisp (2019) emphasized the importance of partnership between the family and professionals as the main supporter for the deaf blind children's families, as well as, the necessity to focus on family interaction, parental well-being and the social well-being.…”

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confidence: 99%

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The effectiveness of a family counseling program in improving the meaning of life among deaf blind children

ahmed

2021

Egyptian Journal of Social Work

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The present study aims to examine the effectiveness of a family counseling program in improving the meaning of life for deaf-blind children. The sample of the study consisted of the families of 10 deafblind children in the age groups from 9 to 12 years. The study employed a measure of improving the meaning of life for deaf-blind children, and the results confirmed the existence of highly statistically significant differences between the measurements of the pre and post means on the scale of the meaning of life, for the experimental group. Deaf-blind children scored highest in all the three aspects; purpose of life, life satisfaction, adaptability, and; there fore, an indication of the effectiveness of the family counseling program in improving the meaning of life for deaf-blind children. The study also indicated that there are differences between the means of pre and post measurement for deaf blind children, males and females, on the meaning of life scale, in favor of female children, in terms of satisfaction with life alone. The study was concluded with recommendations for deaf-blind children. Key words: a family counseling program, the meaning of life, deaf blind children. Introduction:The group of deaf-blind people is one of the recently classified group as an independent group of handicapped, according to the World Health Organization's (WHO) report (World Health Organization [WHO], 2017). Also, the international classification of the functional performance, disability and health issued by the Nations International Children's Emergency Fund [UNICEF], indicated that deaf blind people are classified among the sensory disabilities group ( UNICEF, 2014).The NCDB stated that U.S.A has 9384 babies, children and youth who have been defined as having both hearing and visual disabilities, a much smaller number compared to the previous years. It also stated that almost 90% of the children and youth in the national census of deaf blind children have more than one disability, in addition to deafness and blindness (Wolford, 2016).The data of Helen Keller International Center suggested that there is about one million deaf blind adults in USA (Helen Keller National Center for Deaf-Blind Youths & Adults (HKNC), 2015).

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“…of the time management skills required for success. The study results were consistent with those of White ( 2014) (Kyzar et al, (2018).…”

Section: Discussionsupporting

confidence: 92%

Section: Discussionsupporting

confidence: 90%

mentioning

confidence: 99%

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The effectiveness of a family counseling program in improving the meaning of life among deaf blind children

ahmed

2021

Egyptian Journal of Social Work

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“…Boehm et al [84] investigate the relationship between the parents' religiosity and the improvement of the FQoL. In the demographic aspects category (c2), nine articles consider as predictive variables for FQoL the following factors: the age of the child with a disability [41,80,83,85], the gender of the child [24,39,82], the type of disability [31,80,84], the degree of disability [80,81], the number of siblings [58,81], and the marital status of the parents [44].…”

Section: Main Results On Fqol In the 0-to 6-year Stagementioning

confidence: 99%

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Mora

Ibáñez

Balcells‐Balcells

2020

IJERPH

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Background: In recent years, there has been a growing international interest in family quality of life The objective of this systematic review is to understand and analyze the conceptualization of the quality of life of families with children with disabilities between 0 and 6 years of age, the instruments for their measurement and the most relevant research results. Method: A bibliographic search was conducted in the Web of Science, Scopus and Eric databases of studies published in English and Spanish from 2000 to July 2019 focused on “family quality of life” or “quality of family life” in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed for their theoretical and applied contributions to the field of early care. Results: The functional conceptualization of family quality of life predominates in this area, and a nascent and enriching holistic conceptualization is appreciated. There are three instruments that measure family quality of life in early care, although none of them is based on unified theory of FQoL; none of them focus exclusively on the age range 0–6 nor do they cover all disabilities. Conclusions: The need to deepen the dynamic interaction of family relationships and to understand the ethical requirement that the methods used to approach family quality of life respect the holistic nature of the research is noted.

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“…The majority of the studies consulted in scientific literature examined the relationships between life satisfaction, parental self-efficacy, well-being, and coping strategies predominantly in the parents of children with sensory impairments. Widespread literature reports that protective and risk factors positively or negatively influence the quality of life in families with deaf or blind children, deaf-blind children, or children with other developmental disabilities [ 1 , 2 , 3 , 4 , 5 , 6 , 7 , 8 , 9 , 10 ]. Among the protective factors, several scholars assume the coexistence of psychological and situational variables: parental resilience, optimism, hope orientation, adaptability and meaning-focused coping with stress, good communication skills with sensory disabled children, marital satisfaction, and social support from formal and informal networks [ 11 , 12 , 13 , 14 , 15 ].…”

Section: Introductionmentioning

confidence: 99%

Are Coping Strategies with Well-Being in Deaf and Blind Parents Related?

Indiana

Sagone

Fichera

2021

EJIHPE

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The main purpose of this cross-sectional study, carried out with deaf parents and blind parents, is to analyze the association of coping strategies, life satisfaction, well-being, and generalized self-efficacy, compared to a group of parents without a sensory loss. The Coping Orientation to Problems Experienced, Satisfaction with Life, Generalized Self-efficacy, and Psychological Well-Being scales were applied. Results indicate that: (1) deaf parents and blind parents search for social support, use avoidance, and turn to religion more than those without a sensory loss; (2) deaf parents are more satisfied with life than blind parents and those without a sensory loss; (3) deaf parents and blind parents perceive themselves as less efficacious than those without a sensory loss; (4) deaf parents and blind parents report lower psychological well-being (autonomy and personal growth) than those without a sensory loss, except for self-acceptance. Searching for social support and turning to religion are negatively associated with life satisfaction in deaf parents and those without a sensory loss; further, these coping strategies (together with avoidance) affect the psychological well-being of deaf parents and parents without a sensory loss. Future research could investigate deeper into the effects of these dimensions on well-being and the styles of parenting in these families.

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Family Quality of Life and Partnership for Families of Students With Deaf-Blindness

Cited by 14 publications

References 30 publications

The effectiveness of a family counseling program in improving the meaning of life among deaf blind children

The effectiveness of a family counseling program in improving the meaning of life among deaf blind children

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Are Coping Strategies with Well-Being in Deaf and Blind Parents Related?

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