Family Quality of Life for People With Intellectual Disabilities in <scp>C</scp>atalonia

Giné, Climent Giné; Gràcia, Marta; Vilaseca, Rosa; Beltran, Francesc S.; Balcells‐Balcells, Anna; Montalà, Mariona Dalmau; Adam-Alcocer, Ana Luisa; Pro, Maria Teresa; Simó-Pinatella, David; Mestre, Joana Maria Mas

doi:10.1111/jppi.12134

Cited by 37 publications

(59 citation statements)

References 59 publications

(87 reference statements)

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“…With regard to the first objective, namely to examine the QoL in families with a family member with intellectual disability, the overall mean FQoL was quite high; it was in line with other studies of FQoL conducted both in Catalonia (Giné et al . in press) and in other countries (Hoffman et al . ; Turnbull et al .…”

Section: Discussionmentioning

confidence: 95%

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Needs and Supports of People with Intellectual Disability and Their Families in Catalonia

Vilaseca

Gràcia

Beltran

et al. 2015

Research Intellect Disabil

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Section: Discussionmentioning

confidence: 95%

“…; Giné et al . in press). The findings also highlight the shortcomings in state provision of services for families, and the repercussions this has on their QoL (Giné et al .…”

Section: Discussionmentioning

confidence: 99%

Needs and Supports of People with Intellectual Disability and Their Families in Catalonia

Vilaseca

Gràcia

Beltran

et al. 2015

Research Intellect Disabil

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“…The breakdown of the results found in the studies included in Table 6 is as follows: Ten articles explicitly focus on describing the FQoL in the population of their respective countries. Spain [ 6 , 44 , 62 ] has three studies; Israel [ 32 , 60 ] has two, and Australia [ 36 ], Brasil [ 63 ], Colombia [ 59 ] and Malaysia [ 61 ] have one each. Two articles [ 64 , 65 ] relate FQoL to parental stress in families with children with autism.…”

Section: Resultsmentioning

confidence: 99%

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Mora

Ibáñez

Balcells‐Balcells

2020

IJERPH

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Background: In recent years, there has been a growing international interest in family quality of life The objective of this systematic review is to understand and analyze the conceptualization of the quality of life of families with children with disabilities between 0 and 6 years of age, the instruments for their measurement and the most relevant research results. Method: A bibliographic search was conducted in the Web of Science, Scopus and Eric databases of studies published in English and Spanish from 2000 to July 2019 focused on “family quality of life” or “quality of family life” in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed for their theoretical and applied contributions to the field of early care. Results: The functional conceptualization of family quality of life predominates in this area, and a nascent and enriching holistic conceptualization is appreciated. There are three instruments that measure family quality of life in early care, although none of them is based on unified theory of FQoL; none of them focus exclusively on the age range 0–6 nor do they cover all disabilities. Conclusions: The need to deepen the dynamic interaction of family relationships and to understand the ethical requirement that the methods used to approach family quality of life respect the holistic nature of the research is noted.

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“…The survey is lifespan-and culturally-sensitive. It is adaptable and can therefore be applied in several contexts, regardless of the subjects' age, education, family structure, and so on (Giné et al, 2015;Wang & Brown, 2009). Specifically, the FQOL-2006 survey assesses FQOL across nine domains of family life, including (a) health of the family, (b) financial wellbeing, (c) family relationships, (d) support from other people (e) support from disability-related services, (f) influence of values, (g) careers and preparing for careers, (h) leisure and recreation, and (i) community interaction.…”

Section: Fqol-2006 Surveymentioning

confidence: 99%

Family Quality of Life in Practice: A Practical Application of the Fqol-2006 Survey

Butler¹

2018

IJCYFS

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As families are increasingly recognized as the primary caregivers for their family members with disabilities, family quality of life (FQOL) research has focused on the impact of disability within the family. This field of research seeks to gain an understanding of the complex challenges and successes families have, with the goal of assisting families in expanding their FQOL. To accomplish this task, the FQOL survey (FQOL-2006) was created. Developed in 2000 and later revised, the FQOL-2006 survey has been used in over 20 countries to explore the perceptions of families, parents, and main caregivers of individuals with intellectual and developmental disabilities. While there has been considerable research using the FQOL-2006 survey, there is limited research that focuses on integrating the survey into practice. This article discusses a possible application of the survey in practical contexts by reflecting on some of the qualitative data collected from my recent FQOL master’s thesis study. Specifically, the article highlights the mutual benefits that service providers and families could receive by integrating the FQOL-2006 survey into service models, as it could allow professionals to establish a framework for assessing each client-family’s overall quality of life, including their greatest supports, strengths, challenges, and needs. This application provides a new research opportunity for the FQOL field for both researchers and professionals.

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Family Quality of Life for People With Intellectual Disabilities in Catalonia

Cited by 37 publications

References 59 publications

Needs and Supports of People with Intellectual Disability and Their Families in Catalonia

Needs and Supports of People with Intellectual Disability and Their Families in Catalonia

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Family Quality of Life in Practice: A Practical Application of the Fqol-2006 Survey

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