Family Quality of Life Survey (FQOLS-2006): Evaluation of Internal Consistency, Construct, and Criterion Validity for Socioeconomically Disadvantaged Families

Samuel, Preethy S.; Tarraf, Wassim; Marsack, Christina N.

doi:10.1080/01942638.2017.1311393

Cited by 18 publications

(25 citation statements)

References 46 publications

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“…The CFA allowed us to establish the validity of this scale and supports the FQOL construct proposed by the authors of the original version of the instrument [30]. The CFA produced t indices clearly suitable for the nine-domain model, better than those obtained by previous studies [30,38]. We also found a high contribution of the Leisure and Community domains to FQOL, a similar result to that obtained by a previous study on the psychometric properties of the FQOLS-2006 [38].…”

Section: Discussionsupporting

confidence: 84%

“…The CFA produced t indices clearly suitable for the nine-domain model, better than those obtained by previous studies [30,38]. We also found a high contribution of the Leisure and Community domains to FQOL, a similar result to that obtained by a previous study on the psychometric properties of the FQOLS-2006 [38]. That is, the family's opportunities to participate and enjoy leisure activities and free time, as well as their involvement in social life, are factors that lead to better results of FQOL, results that are con rmed by previous scienti c literature [44,[47][48][49][50][51].…”

Section: Discussionmentioning

confidence: 47%

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Transcultural Adaptation and Psychometric Properties of Family Quality of Life Survey for Caregivers of People With Neurodegenerative Disease: A Study of Spanish Families Who Live in the Rural Spain-Portugal Cross-border

Badía

Orgaz

Vicario-Molina

et al. 2021

Preprint

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Background: Neurodegenerative diseases (NDs) are one of the main causes of disability and dependence that have a great impact both on the quality of life of people with disabilities and their families. A majority of people with NDs receive career and support from the family, but there is no tool in Spain with which to measure whole-family QOL. The aim of this study was the translation, cultural adaptation, and validation of the FQOLS–Dementia into Spanish to assess FQOL among family members of individuals with NDs who live in the Spain-Portugal cross-border area.Method: The Spanish version was translated and adapted following the international guidelines for cross-cultural adaptation tests. A sample of 300 family caregivers was interviewed, applying an adapted version of the Family Quality Survey (FQOLS–Dementia). Confirmatory factor analysis was performed to validate the factor structure, and convergent validity was examined with Pearson’s correlation coefficients of the global FQOL with the domains. Internal consistency reliability was determined using Cronbach’s alpha.Results: The domain structure of the FQOLS–ND showed a good fit. In the convergent validity, it was found that the total score and the subscale domain scores were associated with the global FQOL score, except for the Values domain. Internal consistency of nine domain subscales was strong (α = .80 to .91), and excellent for the total FQOL (α = .95) and the global FQOL (α = .87).Conclusion: The FQOLS–ND presented good validity and reliability in caregiver families with individuals with ND, so its application shows its usefulness in detecting areas of improvement and intervention strategies for FQOL in the Spain-Portugal cross-border area.

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Section: Discussionsupporting

confidence: 84%

Section: Discussionmentioning

confidence: 47%

Transcultural Adaptation and Psychometric Properties of Family Quality of Life Survey for Caregivers of People With Neurodegenerative Disease: A Study of Spanish Families Who Live in the Rural Spain-Portugal Cross-border

Badía

Orgaz

Vicario-Molina

et al. 2021

Preprint

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“…Eight studies focus on supports (b2). The support of professionals to families has received significant attention, and it has become one of the strongest predictors of FQoL [ 58 , 78 , 79 ]. Emotional support is better considered than practical support from both services and other informal aids [ 35 , 41 , 73 , 76 , 80 ].…”

Section: Resultsmentioning

confidence: 99%

“…To solve this problem, Brown et al, propose that one of the parents responds on behalf of the rest of the family [ 66 ], who would thus be represented by him or her [ 74 , 87 , 94 ]. However, as Giné et al, note, there is no way to ensure that this instruction of responding on behalf of the family has been followed by the family representative [ 58 ]. Feigin et al [ 95 ] understand that the participation of brothers and sisters of the child with disabilities, in addition to the parents, is a requirement of the systemic nature of the family.…”

Section: Discussionmentioning

confidence: 99%

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Mora

Ibáñez

Balcells‐Balcells

2020

IJERPH

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Background: In recent years, there has been a growing international interest in family quality of life The objective of this systematic review is to understand and analyze the conceptualization of the quality of life of families with children with disabilities between 0 and 6 years of age, the instruments for their measurement and the most relevant research results. Method: A bibliographic search was conducted in the Web of Science, Scopus and Eric databases of studies published in English and Spanish from 2000 to July 2019 focused on “family quality of life” or “quality of family life” in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed for their theoretical and applied contributions to the field of early care. Results: The functional conceptualization of family quality of life predominates in this area, and a nascent and enriching holistic conceptualization is appreciated. There are three instruments that measure family quality of life in early care, although none of them is based on unified theory of FQoL; none of them focus exclusively on the age range 0–6 nor do they cover all disabilities. Conclusions: The need to deepen the dynamic interaction of family relationships and to understand the ethical requirement that the methods used to approach family quality of life respect the holistic nature of the research is noted.

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“…The concept of FQOL has been applied through the FQOL-2006 survey to various family structures, socioeconomic levels, geographic regions, and time frames. For example, Samuel, Tarraf, and Marsack (2018) evaluated the FQOL-2006's analytical effectiveness by studying the effects of lower socioeconomic status on FQOL. As expected, families with lower socioeconomic status have less access to supportive resources for their children, and thus, their FQOL is relatively low compared with other families.…”

Section: Background Literaturementioning

confidence: 99%

Family Quality of Life in Practice: A Practical Application of the Fqol-2006 Survey

Butler¹

2018

IJCYFS

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As families are increasingly recognized as the primary caregivers for their family members with disabilities, family quality of life (FQOL) research has focused on the impact of disability within the family. This field of research seeks to gain an understanding of the complex challenges and successes families have, with the goal of assisting families in expanding their FQOL. To accomplish this task, the FQOL survey (FQOL-2006) was created. Developed in 2000 and later revised, the FQOL-2006 survey has been used in over 20 countries to explore the perceptions of families, parents, and main caregivers of individuals with intellectual and developmental disabilities. While there has been considerable research using the FQOL-2006 survey, there is limited research that focuses on integrating the survey into practice. This article discusses a possible application of the survey in practical contexts by reflecting on some of the qualitative data collected from my recent FQOL master’s thesis study. Specifically, the article highlights the mutual benefits that service providers and families could receive by integrating the FQOL-2006 survey into service models, as it could allow professionals to establish a framework for assessing each client-family’s overall quality of life, including their greatest supports, strengths, challenges, and needs. This application provides a new research opportunity for the FQOL field for both researchers and professionals.

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Family Quality of Life Survey (FQOLS-2006): Evaluation of Internal Consistency, Construct, and Criterion Validity for Socioeconomically Disadvantaged Families

Abstract: Although the internal consistency of the scales ranged from moderate to strong, the FQOLS-2006 had only a moderate degree of construct and criterion validity when used with a sample consisting predominantly of minorities from socioeconomically disadvantaged backgrounds.

Cited by 18 publications

References 46 publications

Transcultural Adaptation and Psychometric Properties of Family Quality of Life Survey for Caregivers of People With Neurodegenerative Disease: A Study of Spanish Families Who Live in the Rural Spain-Portugal Cross-border

Transcultural Adaptation and Psychometric Properties of Family Quality of Life Survey for Caregivers of People With Neurodegenerative Disease: A Study of Spanish Families Who Live in the Rural Spain-Portugal Cross-border

State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

Family Quality of Life in Practice: A Practical Application of the Fqol-2006 Survey

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