Family resilience and psychological well-being among Chinese breast cancer survivors and their caregivers

Li, Yuli; Qiao, Yuanjing; Luan, Xiaorong; Li, Shaojie; Wang, Kefang

doi:10.1111/ecc.12984

Cited by 107 publications

(107 citation statements)

References 41 publications

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“…Strong family support may be bene cial to improve the patient's resilience. Considering the signi cance of family networks in China, it is necessary to further focus on enhancing family resilience for the patients in breast cancer care [38,39]. However, patients with lower optimism and higher negative CS (i.e., avoidance and resignation) scores are a concerning group.…”

Section: Discussionmentioning

confidence: 99%

Perceived social support and coping style as mediators between resilience and health-related Quality of Life in women newly diagnosed with breast cancer: A cross-sectional study

Zhao

Bai

et al. 2020

Preprint

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Background: Breast cancer may impair health-related quality of life (HRQoL). We examined the mediating roles of perceived social support (PSS) and coping style (CS) in the relationship between resilience and HRQoL in newly diagnosed breast cancer patients. Methods: Four-hundred thirty-one patients completed a survey at two hospitals in Shaanxi Province, China using self-report measures assessing HRQoL, resilience, PSS, and CS. A one-sample t-test analyzed differences between resilience, PSS, and CS in breast cancer patients and the corresponding norm. Multivariate linear regression analyzed the independent predictors of HRQoL. The mediating roles of PSS and CS between resilience and HRQoL were investigated using structural equation modeling (SEM). Results: Participants had significantly lower scores for resilience and PSS, and higher scores for the avoidance and resignation CSs than their corresponding norm. SEM analysis showed resilience had significant direct effects on PSS (B = 0.59, 95% CI [0.49, 0.68], P = 0.003), CS (confrontation: B = 0.53, 95% CI [0.44, 0.62], P = 0.001; resignation: B = -0.66, 95% CI [-0.74, -0.57], P = 0.002), and HRQoL (B range from 0.54–0.58). Resilience had significant indirect effects (B range from 0.09–0.27), and PSS and CS had significant direct effects on HRQoL (P < 0.05). Conclusions: Newly diagnosed breast cancer patients had lower resilience and PSS, and higher negative CSs. PSS and CS appeared to mediated the influence of resilience on HRQoL. Multimodal intervention programs focusing on PSS and CS might increase the influence of resilience on HRQoL in breast cancer patients.

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Section: Discussionmentioning

confidence: 99%

Perceived social support and coping style as mediators between resilience and health-related Quality of Life in women newly diagnosed with breast cancer: A cross-sectional study

Zhao

Bai

et al. 2020

Preprint

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“…Moreover, Li, Qiao, Luan, Li, & Wang, (2019) showed that resilience of caregivers of cancer patients contributed to QOL of caregiver burden. These previous studies show that resilience may be related to QOL.…”

Section: Discussionmentioning

confidence: 99%

Development of Narrative Approach for Family Caregiver’s QOL at Home Hospice and Contents of Narrative

Ando¹,

Kukihara²,

Yamamoto³

et al. 2019

PSYCH

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Goal: The aim of this study was the development of a narrative approach program for family caregivers at home hospice. We examined the effect on quality of life (QOL) and the factors of their narrative. Methods: Ten family caregivers who were taking care of a patient with a terminal illness at home at the time of the study participated voluntarily. They received two interviews in the narrative approach, in which they narrated about one hour per interview. They completed the questionnaires about quality of life (positive emotion in Caregiver Quality of life Index-Cancer: CQOLC), Life Satisfaction, and mental health (General Health Questionnaire: GHQ). Data was analyzed by quantitative and qualitative analysis. This study was approved by the Ethical Board at St. Mary's College. Results: The CQCLC score significantly increased (p < 0.05) and the GHQ score decreased, though not to a significant extent. Life satisfaction didn't change because of ceiling effect. The categories about importance, changes after getting disease, hopes are selected. Conclusion: Narrative Approach may be useful to increase family caregiver's Quality of life (positive emotions), and have the possibility to reduce mental health problems. Selected categories suggested psychological process of caregivers, and that the narrative approach might promote the recognition of positive aspects or resilience. We propose a narrative approach program as a pilot study.

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“…Estudos apontam que as equipes designadas para cuidar do paciente com ferida neoplásica sentem-se pessoalmente angustiadas pelo sofrimento causado pela ferida, frustradas por não serem capazes de obter curativos adequados para as necessidades de seus pacientes ou não por terem tempo suficiente para ouvir, experimentando serntimentos de raiva, falta de esperança, frustração, inadequação, tristeza e culpa (Lazelle-Ali, 2007;Li, Qiao, Luan, Li, Wang & 2019).…”

Section: Resiliência Do Paciente Com Ferida Tumoral Malignaunclassified

Resiliência no processo do cuidado aos pacientes com feridas tumorais malignas: revisão integrativa

Beretta

Santos

et al. 2020

RSD

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1 Resiliência no processo do cuidado aos pacientes com feridas tumorais malignas: revisão integrativa Resilience in the process of care in patients with malignant tumor wounds: integrative review Resiliencia en el proceso de atención para pacientes con heridas de tumor maligno: revisión integrativa 2 Resumo A assistência ao paciente com feridas tumorais consiste em tarefa complexa; a resiliência confere adaptabilidade para o manejo nos diversos contextos. O objetivo foi verificar a resiliência no processo do cuidar aos pacientes com feridas tumorais malignas. Trata-se de uma revisão integrativa da literatura realizada nas bases de dados LILACS, MEDLINE, COCHRANE, CINAHL e SCOPUS (2003-2019) com a questão norteadora: Como ocorre a resiliência na dinâmica do cuidado a pacientes com feridas tumorais malignas? Identificaramse dezessete evidências científicas, sendo elaboradas três categorias de discussão: 1) Resiliência do paciente com ferida tumoral maligna; 2) Resiliência do familiar e/ou cuidador informal no processo do cuidar ao paciente com ferida tumoral maligna; 3) Resiliência da equipe multidisciplinar no processo do cuidar ao paciente com ferida tumoral maligna.Conclui-se que o estigma, a mudança da imagem corporal, a imprevisibilidade e descontrole do odor e do exsudato e a constante evidência de possuir uma doença incurável permite a prática de múltiplas estratégias de enfrentamento por parte dos atores envolvidos no cuidado, culminando em uma melhor vivência. Assim, deve-se considerar os aspectos psicossociais na práxis da enfermagem oncológica no cuidado de pacientes com feridas tumorais malignas. Palavras-chave: Cuidados Paliativos; Ferimentos e Lesões; Resiliência psicológica. AbstractAssistance to patients with tumor wounds is a complex task; resilience provides adaptability for handling in different contexts. The objective was to verify the resilience in the process of caring for patients with malignant tumor wounds. This is an integrative literature review carried out in the LILACS, MEDLINE, COCHRANE, CINAHL and SCOPUS (2003-2019) databases with the guiding question: How does resilience occur in the dynamics of care for patients with malignant tumor wounds? Seventeen scientific evidences were identified and three categories of discussion were elaborated: 1) Resilience of the patient with a malignant tumor wound; 2) Resilience of the family member and / or informal caregiver in the process of caring for patients with malignant tumor wounds; 3) Resilience of the multidisciplinary team in the process of caring for patients with malignant tumor wounds. It is concluded that the stigma, the change in body image, the unpredictability and uncontrolled odor and exudate and the constant evidence of having an incurable disease allow the practice of multiple coping strategies by the actors involved in the care, culminating in a better experience. Thus, psychosocial aspects must be considered in the practice of oncology nursing in the care of patients with malignant tumor wounds. ResumenLa asistencia a pacien...

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Family resilience and psychological well-being among Chinese breast cancer survivors and their caregivers

Cited by 107 publications

References 41 publications

Perceived social support and coping style as mediators between resilience and health-related Quality of Life in women newly diagnosed with breast cancer: A cross-sectional study

Perceived social support and coping style as mediators between resilience and health-related Quality of Life in women newly diagnosed with breast cancer: A cross-sectional study

Development of Narrative Approach for Family Caregiver’s QOL at Home Hospice and Contents of Narrative

Resiliência no processo do cuidado aos pacientes com feridas tumorais malignas: revisão integrativa

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