Family Survey of Understanding and Communication of Patient Prognosis in the Intensive Care Unit: Identifying Training Opportunities

Newcomb, Anna B.; Liu, Chang; Smith, Grace; Lita, Elena; Griffen, Margaret M.; Mohess, Denise; Grove, Charles C.; Dort, Jonathan

doi:10.1016/j.jsurg.2020.08.009

Cited by 4 publications

(2 citation statements)

References 32 publications

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“…This is not dissimilar from other seriously ill pediatric patients 82 or critically ill adults. [83][84][85][86][87] Without a realistic understanding of prognosis and disease effect, it is difficult to achieve true shared decision-making, the paradigm approach to medical decision-making. 30,88,89 Prognostic discussions with adolescent patients are often avoided by clinicians because of a multitude of barriers, including perceived parental preference to not discuss prognosis with their child and worry of limiting hope or optimism.…”

Section: Advance Care Planning: Communication Prognostic Awareness An...mentioning

confidence: 99%

Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association

Blume¹,

Kirsch²,

Cousino³

et al. 2023

Circ: Cardiovascular Quality and Outcomes

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AIM: This summary from the American Heart Association provides guidance for the provision of primary and subspecialty palliative care in pediatric congenital and acquired heart disease. METHODS: A comprehensive literature search was conducted from January 2010 to December 2021. Seminal articles published before January 2010 were also included in the review. Human subject studies and systematic reviews published in English in PubMed, ClinicalTrials.gov, and the Cochrane Collaboration were included. STRUCTURE: Although survival for pediatric congenital and acquired heart disease has tremendously improved in recent decades, morbidity and mortality risks remain for a subset of young people with heart disease, necessitating a role for palliative care. This scientific statement provides an evidence-based approach to the provision of primary and specialty palliative care for children with heart disease. Primary and specialty palliative care specific to pediatric heart disease is defined, and triggers for palliative care are outlined. Palliative care training in pediatric cardiology; diversity, equity, and inclusion considerations; and future research directions are discussed.

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Section: Advance Care Planning: Communication Prognostic Awareness An...mentioning

confidence: 99%

Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association

Blume¹,

Kirsch²,

Cousino³

et al. 2023

Circ: Cardiovascular Quality and Outcomes

View full text Add to dashboard Cite

show abstract

“…With these limitations, family members are expected to process complex updates about the patient’s illness and make decisions ( Davidson et al, 2017 ). While physicians are usually responsible for delivering significant updates on medical care, ICU nurses are expected to help families understand patients’ daily conditions and to provide emotional support ( Anderson et al, 2015 ; Newcomb et al, 2020 ; Pecanac & Schwarze, 2018 ).…”

Section: Introductionmentioning

confidence: 99%

Challenges and Learning Needs of Nurse-Patients’ Family Communication: Focus Group Interviews With Intensive Care Unit Nurses in South Korea

et al. 2022

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Intensive care unit (ICU) nurses are expected to facilitate effective day-to-day communication with patients and family members at the bedside. To date, communication training for ICU health care professionals has targeted mainly intensivists-in-training, but there is limited data on communication experience and needs to be evaluated among ICU nurses. This qualitative study used focus group interviews to explore daily communication experiences with patients’ families and communication training needs and preferences among ICU nurses in South Korea. Five focus group interviews were conducted with 27 ICU nurses (4–6 nurses per group). The results of inductive qualitative content analysis highlighted four main categories: “Perceived difficulties during communication,” “burden from working conditions,” “endeavors to promote communication skills,” and “strategies for cultivating effective communication.” Regarding suggestions for future communication training, nurses preferred interactive learning with peer-support over traditional methods (e.g., lectures). Nurses also suggested that communication training for ICU nurses should include learning skills appropriate for difficult situations (e.g., angry family members). Findings from this study can serve as a framework for stakeholders in ICU care and healthcare education (e.g., hospital and nursing administrators, nurse educators) when designing communication training to support ICU nurses with their practical knowledge and communication skills.

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An evaluation of surrogate decision maker health literacy in the neurology ward and neuroscience ICU

Carroll¹,

Giles²,

Lewis³

2023

Journal of the Neurological Sciences

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Family Survey of Understanding and Communication of Patient Prognosis in the Intensive Care Unit: Identifying Training Opportunities

Cited by 4 publications

References 32 publications

Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association

Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association

Challenges and Learning Needs of Nurse-Patients’ Family Communication: Focus Group Interviews With Intensive Care Unit Nurses in South Korea

An evaluation of surrogate decision maker health literacy in the neurology ward and neuroscience ICU

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